Siegel Rare Neuroimmune Association (SRNA)

SRNA Soundwaves

Health EN ↓ 223 episodes

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Author

Siegel Rare Neuroimmune Association (SRNA)

Episodes

Ask the Expert 511. Rheumatological conditions and ADEM, NMOSD, TM and ON 11.12.2017 59:18

Rheumatological conditions and ADEM, NMOSD, TM and ON

Ask the Expert 510. How to Manage and Cope with Grief 21.11.2017 58:08

How to Manage and Cope with Grief

Ask the Expert 509. How to get the most out of your appointments: Physician and patient perspectives 25.09.2017 1:02:12

How to get the most out of your appointments: Physician and patient perspectives with Dr. Greenberg and Kristin Smith

Ask the Expert 508. Gaining Functional Recovery through Occupational Therapy 22.08.2017 58:47

Gaining Functional Recovery through Occupational Therapy

Ask the Expert 507. Open Forum on Acute Disseminated Encephalomyelitis 13.07.2017 59:18

Open Forum on Acute Disseminated Encephalomyelitis

Ask the Expert 506. Open Forum on Neuromyelitis Optica Spectrum Disorder 21.06.2017 55:28

Open Forum on Neuromyelitis Optica Spectrum Disorder

Ask the Expert 505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis 25.05.2017 57:42

Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

Ask the Expert 504. The Role of Nutrition in Managing Your Health 18.04.2017 51:05

The Role of Nutrition in Managing Your Health

Ask the Expert 503. Managing your health after a rare neuroimmune diagnosis 21.03.2017 57:37

Managing your health after a rare neuroimmune diagnosis

Ask the Expert 502. Vaccinations and rare neuroimmune disorders 22.02.2017 57:03

Vaccinations and rare neuroimmune disorders

Ask the Expert 501. Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM) 19.01.2017 47:07

Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM)

411. Quality of Life in a Wheelchair 19.12.2016 1:02:23

Quality of Life in a Wheelchair

410. Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM 21.11.2016 58:36

Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM

409. Special Podcast — Understanding Acute Flaccid Myelitis 16.11.2016 35:00

Special Podcast - Understanding Acute Flaccid Myelitis

408. Sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM 27.10.2016 52:58

Warning: This presentation contains adult language and content. It is not suitable for anyone under the age of 18. This episode discusses sexual function and quality of life after a diagnosis of ADEM, NMOSD, and TM

407. Understanding Types of Research in ADEM, NMOSD, and TM, including AFM 29.09.2016 1:00:30

Understanding Types of Research in ADEM, NMOSD, and TM, including AFM

406. Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives 12.07.2016 1:02:06

Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives

405. Open Forum on TM including AFM, NMOSD, ON and ADEM 21.06.2016 54:15

Open Forum on TM including AFM, NMOSD, ON and ADEM

404. Learning About Acute Disseminated Encephalomyelitis 19.05.2016 1:00:23

Learning About Acute Disseminated Encephalomyelitis

403. The Power of Sharing Stories 30.03.2016 53:01

The Power of Sharing Stories

402. Comprehensive Management of Neuropathic Pain 24.02.2016 59:44

Comprehensive Management of Neuropathic Pain

401. Diagnosing TM, NMO and ADEM 27.01.2016 58:30

Diagnosing TM, NMO and ADEM

313. Our Lives: Our Stories 16.12.2015 59:14

Our Lives: Our Stories

312. Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM 30.11.2015 1:01:46

Warning: This presentation contains adult language and content. It is not suitable for anyone under the age of 18.

311. Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD 20.10.2015 1:03:32

Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD