Siegel Rare Neuroimmune Association (SRNA)

SRNA Soundwaves

Health EN ↓ 223 episodes

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Author

Siegel Rare Neuroimmune Association (SRNA)

Category

Health

Podcast website

wearesrna.org

Latest episode

Jul 6, 2026

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Episodes

Ask the Expert 714. Nerve Transfers and AFM: Part One 09.08.2019

The TMA is pleased to be joined by surgeons Dr. Amy Moore from Washington University School of Medicine and Dr. Dan Zlotolow from The Shriners Hospital for Children Philadelphia and Greenville, The Philadelphia Hand to Shoulder Center, and The Hospital for Special Surgery in New York. The doctors discuss the purpose of nerve transfers in patients with acute flaccid myelitis (AFM) and what the surg...

Ask the Expert 713. Imaging Patterns in Myelopathies and Myelitis 08.08.2019

The TMA is joined by Dr. Eoin Flanagan, Associate Professor of Neurology and Consultant in the departments of Neurology and Laboratory Medicine and Pathology at the Mayo Clinic (Rochester, MN). Dr. Flanagan defines different imaging techniques and discusses how imaging is used to diagnose rare neuroimmune disorders. He discusses what imaging results can tell us about prognosis and the likelihood o...

Ask the Expert 712. Understanding Spinal Cord Strokes and Other Vascular Myelopathies 24.07.2019

The TMA is joined by Dr. Nicholas L. Zalewski from Mayo Clinic and Dr. Olwen Murphy from Johns Hopkins University to help our listeners better understand spinal cord strokes and other vascular myelopathies. Definitions of spinal cord stroke and vascular myelopathy were given. The experts explained the similarities and differences of spinal cord stroke and transverse myelitis. Signs and symptoms of...

Ask the Expert 711. The Role of CDC in AFM Surveillance 24.07.2019

The TMA is joined by Dr. Janell Routh and Dr. Manisha Patel from the Centers for Disease Control and Prevention, as well as Dr. Benjamin Greenberg from University of Texas Southwestern Medical Center, to discuss the role of CDC in Acute Flaccid Myelitis (AFM) surveillance. The history of the CDC’s response to AFM is discussed. The medical experts explain the difference between polio and AFM. The e...

Ask the Expert 710. Managing Neuropathic Pain and Paresthesia 19.06.2019

Managing Neuropathic Pain and Paresthesia

Ask the Expert 709. The Q Study — Q&A 19.06.2019

The latest episode of the Ask the Expert Podcast Series

Ask the Expert 708. Quality of Life: Adaptive Driving 24.05.2019

Quality of Life: Adaptive Driving

Ask the Expert 707. Managing Pediatric Urological Issues 22.05.2019

Managing Pediatric Urological Issues

Ask the Expert 706. Parent's Perspective on AFM 16.05.2019

Parent's Perspective on AFM

Ask the Expert 705. Quality of Life: Mindset and Healthy Habits 24.04.2019

Quality of Life: Mindset and Healthy Habits

Ask the Expert 704. Managing Adult Urological Issues 24.04.2019

Managing Adult Urological Issues

Ask the Expert 703. Relapsing vs Monophasic Rare Neuroimmune Disorders 12.04.2019

Relapsing vs Monophasic Rare Neuroimmune Disorders

Ask the Expert 702. Pediatric MOG Antibody Associated Disease and ADEM 20.03.2019

Pediatric MOG Antibody Associated Disease and ADEM

Ask the Expert 701. Autoimmune Encephalitis and Rare Neuroimmune Disorders 18.01.2019

Autoimmune Encephalitis and Rare Neuroimmune Disorders

Ask the Expert 611. Pregnancy and Rare Neuroimmune Disorders 20.12.2018

Pregnancy and Rare Neuroimmune Disorders

Ask the Expert 610. What You Need to Know about Caregiving 18.10.2018

What You Need to Know about Caregiving

Ask the Expert 609. 2018 Podcast on Acute Flaccid Myelitis 18.10.2018

Acute Flaccid Myelitis (AFM)

Ask the Expert 608. Air Travel with a Disability: Your Rights, Best Practices, and Suggestions 24.09.2018

Air Travel with a Disability: Your Rights, Best Practices, and Suggestions

Ask the Expert 607. Research 101: Finding, Reading, and Understanding Research 04.09.2018

Research 101: Finding, Reading, and Understanding Research

Ask the Expert 606. Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More 10.07.2018

Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More

Ask the Expert 605. What is MOG Antibody-Associated Disease? 10.07.2018

What is MOG Antibody-Associated Disease?

Ask the Expert 604. Aging with rare neuroimmune disorders 24.04.2018

Aging with rare neuroimmune disorders

Ask the Expert 603. Understanding and Managing Spasticity 27.03.2018

Understanding and Managing Spasticity

Ask the Expert 602. Alternative therapies for the treatment of rare neuroimmune disorders 01.03.2018

Alternative therapies for the treatment of rare neuroimmune disorders

Ask the Expert 601. Stem Cells as a Treatment for Rare Neuroimmune Disorders 23.01.2018

Stem Cells as a Treatment for Rare Neuroimmune Disorders

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