Siegel Rare Neuroimmune Association (SRNA)

SRNA Soundwaves

Health EN ↓ 231 episodes

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Be sure to visit the podcast's website and support the creator: wearesrna.org

Author

Siegel Rare Neuroimmune Association (SRNA)

Episodes

405. Open Forum on TM including AFM, NMOSD, ON and ADEM 21.06.2016 54:15

Open Forum on TM including AFM, NMOSD, ON and ADEM

404. Learning About Acute Disseminated Encephalomyelitis 19.05.2016 1:00:23

Learning About Acute Disseminated Encephalomyelitis

403. The Power of Sharing Stories 30.03.2016 53:01

The Power of Sharing Stories

402. Comprehensive Management of Neuropathic Pain 24.02.2016 59:44

Comprehensive Management of Neuropathic Pain

401. Diagnosing TM, NMO and ADEM 27.01.2016 58:30

Diagnosing TM, NMO and ADEM

313. Our Lives: Our Stories 16.12.2015 59:14

Our Lives: Our Stories

312. Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM 30.11.2015 1:01:46

Warning: This presentation contains adult language and content. It is not suitable for anyone under the age of 18.

311. Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD 20.10.2015 1:03:32

Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD

310. CAPTURE - Town Hall Meeting 02.09.2015 55:36

CAPTURE - Town Hall Meeting

309. Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury 24.08.2015 47:48

Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury

308. Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond 13.07.2015 55:26

Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond

307. Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult 15.06.2015 56:34

Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult

306. NMO Studies and Clinical Trials: What Should I Know? 13.05.2015 1:00:07

NMO Studies and Clinical Trials: What Should I Know?

305. Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada 17.04.2015 42:08

Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada

304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM 13.04.2015 55:36

Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM

303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101 13.03.2015 52:23

Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101

302. Hablemos de Mielitis Transversa y Neuromielitis Óptica 16.02.2015 56:41

Hablemos de Mielitis Transversa y Neuromielitis Óptica

301. Understanding Vaccinations and Autoimmune Diseases 22.01.2015 59:45

Understanding Vaccinations and Autoimmune Diseases

210. Understanding Transverse Myelitis: TM 101 09.12.2014 58:55

Understanding Transverse Myelitis: TM 101

209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM? 13.11.2014 53:31

Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?

208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis 16.10.2014 49:23

Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis

207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases 13.10.2014 56:06

The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases

206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM 16.09.2014 55:43

Alternative Therapies and Lifestyle Management after TM, NMO and ADEM

205. Understanding Clinical Trials in NMO and TM 18.08.2014 56:08

Understanding Clinical Trials in NMO and TM

204. Understanding Pediatric NMO, ADEM and TM 18.07.2014 1:01:03

The podcast on “Understanding Pediatric NMO, ADEM and TM” as part of TMA's Ask the Expert podcast series was held on July 18, 2014 a 4:30 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from University of Texas Southwestern and Dr. Teri Schreiner from University of Colorado School of Medicine and Children's Hospital Colorado. Over 30 people dialed-in to listen to the Live Po...