Siegel Rare Neuroimmune Association (SRNA)

SRNA Soundwaves

Health EN ↓ 223 episodes

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Author

Siegel Rare Neuroimmune Association (SRNA)

Episodes

310. CAPTURE - Town Hall Meeting 02.09.2015 55:36

CAPTURE - Town Hall Meeting

309. Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury 24.08.2015 47:48

Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury

308. Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond 13.07.2015 55:26

Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond

307. Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult 15.06.2015 56:34

Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult

306. NMO Studies and Clinical Trials: What Should I Know? 13.05.2015 1:00:07

NMO Studies and Clinical Trials: What Should I Know?

305. Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada 17.04.2015 42:08

Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada

304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM 13.04.2015 55:36

Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM

303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101 13.03.2015 52:23

Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101

302. Hablemos de Mielitis Transversa y Neuromielitis Óptica 16.02.2015 56:41

Hablemos de Mielitis Transversa y Neuromielitis Óptica

301. Understanding Vaccinations and Autoimmune Diseases 22.01.2015 59:45

Understanding Vaccinations and Autoimmune Diseases

210. Understanding Transverse Myelitis: TM 101 09.12.2014 58:55

Understanding Transverse Myelitis: TM 101

209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM? 13.11.2014 53:31

Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?

208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis 16.10.2014 49:23

Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis

207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases 13.10.2014 56:06

The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases

206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM 16.09.2014 55:43

Alternative Therapies and Lifestyle Management after TM, NMO and ADEM

205. Understanding Clinical Trials in NMO and TM 18.08.2014 56:08

Understanding Clinical Trials in NMO and TM

204. Understanding Pediatric NMO, ADEM and TM 18.07.2014 1:01:03

The podcast on “Understanding Pediatric NMO, ADEM and TM” as part of TMA's Ask the Expert podcast series was held on July 18, 2014 a 4:30 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from University of Texas Southwestern and Dr. Teri Schreiner from University of Colorado School of Medicine and Children's Hospital Colorado. Over 30 people dialed-in to listen to the Live Po...

203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury 16.06.2014 54:05

The podcast on “The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on June 16, 2014 a 12 pm EST. The physician-experts on the panel were Dr. Becker from the International Neurorehabilitation Institute, Dr. Farrar from University of Texas Southwestern and Dr. Zackowski from Johns Hopkins Medicine. Over 50 people diale...

202. Understanding & Managing Neuropathic Pain 10.05.2014 35:28

The podcast on “Understanding and Managing Neuropathic Pain” as part of TMA's Ask the Expert podcast series was held on May 9, 2014 a 1 pm EST. The physician-experts on the panel were Dr. Newsome from The Johns Hopkins Transverse Myelitis Center and Dr. Allen DeSena from University of Texas Southwestern. Over 40 people dialed-in to listen to the Live Podcast, which was moderated by our guest moder...

201. Understanding Autoimmunity & Rare Neuroimmune Disorders 25.03.2014 44:29

The podcast on “Understanding Autoimmunity and Rare Neuroimmune Disorders” as part of TMA's Ask the Expert podcast series was held on March 25, 2014 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Carlos Pardo from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishn...

103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations 17.12.2013 59:52

The podcast on “Children with rare neuroimmune disorders: understanding medical, educational and social considerations” as part of TMA's Ask the Expert podcast series was held on December 16, 2013 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Lana Harder from y. Over 20 people dialed-in to listen to the Live Podcast, which was moderated by TMA Ex...

102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury 17.09.2013 46:24

The podcast on “Understanding Repair and Recovery After non-traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on September 16, 2013 a 1 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Michael Levy from Johns Hopkins University . Over 75 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive...

101. Ask the Expert Podcast in Collaboration with RGI 08.02.2013 48:05

The Transverse Myelitis Association collaborated with Rare Genomics Institute to host an “Ask the Experts Podcast”. Rare Genomics Institiute (RGI) is a non-profit organization that gives families afflicted by rare genetic disorders access to genome sequencing and expert analysis. RGI helps patients with orphan diseases initiate and fund personalized research projects through a dedicated crowd-fund...