SMA Invisible Life

Coming out of anxiety and depression little by little.

Courtney shares her experience about her most recent fall in public.

Courtney talks about over doing it and feeling very sore for the first time since starting Everysdi medication for Spinal Muscular Atrophy. Towards the end she will tell how how this can help to be prevented, and ways to help when overuse is an issue, but you still need to push on.

Courtney talks about current struggles she is facing with anxiety and depression and the times of feeling like she physically can't do anything although she wants to. She shares some insights and tips for a few things that have helped to try and motivate her to do household things while dealing with depression.

In this episode Courtney talks about burn out, recognizing what burn out is, why burn out might occur, and what to do when feeling burnt out. She shares moments from her life and current situation and explains why she has been away so long.

What are your goals for the New Year? Courtney shares hers in this episode.

Courtney talks about life

Woman with Spinal Muscular Atrophy, Type 3 explains the challenges and what it is like leading up to getting back into a routine of exercise. Join her as she talks about where to start and how long to exercise for when starting out.

Struggles of having a routine down, having something come up, and not being able to get back into routine

Do you ever feel one way about something one day, then completely different about the same exact thing the next day? Join Courtney as she talks about life with Spinal Muscular Atrophy, Type 3 and some of the different moods that can come with living with muscle disease.

Sometimes life has a weird way of reminding you of things!

Realities of life

Courtney, a woman with Spinal Muscular Atrophy (SMA), Type 3, shares her recent challenges with hurting her back and overcoming the struggles to get back to where she was. In addition, she shares an intimate look into her life.

Woman with Spinal Muscular Atrophy, Type 3 shares insight into her life and some challenges that go with them.

The world is already so negative. Can you find the positive in a challenging situation?

Courtney talks about her injury and what it has been like using crutches all week.

Fractures and pain tolerance

Courtney is a 31 year old, ambulatory female with Spinal Muscular Astrophy, Type 3. In this episode, she shares her recap of a fall yesterday, and all the emotions that come into play when you have a degenerative neuro-muscular disease.

Needing help to do something when you are used to being able to do everything independently is really though.

A snapshot of Courtney's current situation.

Who finds personal care way more exhausting rather than relaxing? Courtney will walk you through her experience.

Listen as Courtney talks about the effort required to do a fairly simple chore.

Listen to Courtney as she shares the challenges of going to the gym and being motivated to go.

Sometimes the more you try to get done, the less you accomplish. Life sometimes just gets in the way.

In this episode I talk about choices I make on New Year's. I even changed my mind and decided to set resolutions.