Sickle Cell Society

Sickle Cell Society Podcast

Health EN ↓ 13 episodes

The Sickle Cell Society is having open discussions about challenging subjects in this podcast. There are challenges to living with sickle cell disorder, and there are a lot of subjects that aren't openly discussed, in a way that might help others to live their best life with the condition. We are unpicking some subjects by inviting sickle cell doctors and patients onto the podcast couch to share their experiences and answer questions. About us We're the Sickle Cell Society, and we're the UK’s patient charity for people living with sickle cell disorder.  We believe that people living with the c...

Author

Sickle Cell Society

Category

Health

Podcast website

www.sicklecellsociety.org

Latest episode

Jun 18, 2026

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Episodes

4. Sickle cell and my work life : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

10. Advice to my younger self : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder This series of podcast episodes gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand...

2. Growing up : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

3. Having a sickle cell crisis : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder   This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

1. Introduction : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

5. Managing priapisms : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

6.Priapism: Sleep studies and therapies : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

7.Priapism: Sex and relationships : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

9. Improving management of sickle cell : My life with sickle - a patients perspective on living with sickle cell disease and priapism. 18.06.2026

Living with sickle cell – podcasts with Mr Majed Shabbir, Consultant Urological Surgeon at Guy’s and St Thomas’ NHS Foundation Trust, and Andrew*, who lives with sickle cell disorder  This series gives an insight into living with sickle cell disorder, and is aimed at patients with sickle cell, their friends, loved ones, family, and carers, and anyone else who wants to understand what life is like...

Pregnancy Planning and NHS Screening for Sickle Cell and Thalassaemia 12.02.2026

When it comes to sickle cell and thalassaemia; genetic testing and screening— early checks that can identify a condition or carrier status, often before any symptoms appear — can shape life-changing decisions. Yet many people trying to understand their risk still face confusion, stigma, and unequal access to care. In this episode of The Sickle Cell Society Podcast , host Kesewaa Browne brings toge...

Dating, relationships and sickle cell 14.02.2025

When we asked the sickle cell community about their ‘private life’ and sickle cell, it was clear that dating and relationships were providing for some challenging times and difficult conversations. Our host, Kesewaa Browne, asked our panel about their experiences of navigating their love life with sickle cell disorder. The discussion covers looking for love, relationships, situationships and settl...

Love life, family planning, and sickle cell. 24.01.2025

We asked the sickle cell community to send us their burning questions about their intimate life, family planning and sickle cell. The response was clear - you wanted to hear more about : - Starting a family while taking hydroxycarbomide - Priapism - Fertility and pre pregnancy care and support - Risks, medications, care and support during pregnancy and while breastfeeding - Pregnancy and birth wit...

Transition from child to adult sickle cell care 19.06.2024

This episode generates a discussion between health care professionals and patients about how to get the best out of the transition from child to adult sickle cell services. This period can last from age 12 and last a decade, depending on needs, so there's a lot to unpack. Led by host, Kesewaa Browne, the panel exchange experiences and share insights from their clinics and lived experience, an...

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