PEP Talks ISPEP

This episode features a conversation between host Emma and Rebecca Vermeulen, a VP at Roche Genentech, who clarify that the PEPs community and ISPEP are complementary, non-competing organisations working to raise industry standards. Moving from pharmacy into medical affairs, Rebecca built key capabilities at Roche—including MSL teams, publications, call centres, and a global patient partnership te...

‘Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity’. In this Pep Talks episode, Emma and Tiffany Patrick (Amicus Therapeutics) discuss the maturation of patient engagement. Tiffany highlights how Amicus embeds patient perspectives into executive decisions, reflecting a wider industry shift where pa...

‘Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity’. Helen McNaught, a specialist trial nurse with a rich background in clinical research, shares her journey and insights in the latest edition of PEP Talks, a podcast by the International Society for Patient Engagement Professionals. Sponsored by No...

Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity. Lindsay Randall, a children’s nurse and patient advocate, shares her journey of founding a patient advocacy group after her two children were diagnosed with the rare condition SLC6A1. This condition, affecting fewer than 40 families globally at the...

Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity. Trina Baria, a renowned patient advocate, pivoted from studying languages at the University of Manchester to healthcare advocacy following a multiple sclerosis diagnosis. This experience highlighted a lack of support, particularly within the South...

The latest episode of Pep Talks, a podcast series by the International Society for Patient Engagement Professionals (ISPE), features a conversation with Mark Duma, a veteran in patient engagement with over 30 years of experience. Mark shares his journey from a pharmacist to a leader in patient engagement, highlighting his role in founding the Patient Information Forum (PIF) to improve patient info...

Amy Cohen made history as the first person with sickle cell disease to complete a marathon. Diagnosed at birth due to mandatory newborn screenings in New York, she led a relatively normal childhood. Her motivation to run a marathon was inspired by watching Oprah Winfrey and was later reignited by New York's running culture. Amy's advocacy for the sickle cell community is driven by her personal exp...

Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity. In this episode of PEP Talks, sponsored by Novo Nordisk, host Emma interviews Ify, the Chief Patient Officer for the rare disease franchise at Novo Nordisk. Ify shares her journey from being a haematologist oncologist to becoming a Chief Patient Of...

In this hard-hitting Pep talk we hear first hand what it’s like to endure a decade where healthcare systems fail to take your life threatening symptoms seriously. John Nelson suffered with mental illness for over a decade, trying numerous medications and treatments without success, until he underwent deep brain stimulation surgery that has put him into complete remission. He is passionate about "p...

Emma hosts a PEP Talks session with Dr. Roz, a renowned figure in patient engagement, discussing her journey and insights in the field. Dr. Roz, a pulmonologist with a rich background in clinical practice and academia, shares her experiences from her tenure at Pfizer and BioMarin, highlighting the importance of patient engagement in the biopharmaceutical industry. She emphasises the need for liste...

Lisa Petermann, Chief Patient Experience Officer at Roche Canada, shares her journey and insights in a PEP Talks podcast. Her role, co-created with Roche's patient co-creation council, marks a bold step in patient engagement, emphasising collaboration and precision engagement. Lisa's diverse background, including a PhD in medical history, informs her approach to amplifying patient voices. She disc...

In this episode of PEP Talks, Emma interviews Marlena Vincent, a patient engagement professional at Intercept Pharmaceuticals. Marlena shares her journey in patient advocacy, inspired by her father's healthcare work in Mexico and her own experiences in immigration advocacy. She discusses the challenges and rewards of working in patient engagement across different pharmaceutical companies, includin...

Danielle Alstat, a patient advocate diagnosed with primary biliary cholangitis (PBC), shares her journey from diagnosis to becoming a prominent voice in patient advocacy. After facing the shock of her diagnosis and the challenges of working as a respiratory therapist during the COVID-19 pandemic, Danielle found solace and support through online communities, notably the PBC Foundation. Her advocacy...

This episode features Dr Anthony Yanni, global head of patient centricity at Astellas Pharma. Sponsored by Intercept Pharmaceuticals, the episode delves into the importance of patient engagement and centricity in the pharmaceutical industry. Dr Yanni discusses his methodology of "dull nagging pressure" to advocate for patient centric approaches, emphasising persistence and the need for industry-wi...

Emma hosts a Pep Talks episode, sponsored by Intercept Pharmaceuticals, featuring Alexandra Charge, CEO of ISPEP. The podcast explores patient engagement leaders' journeys, focusing on Alex's extensive pharmaceutical experience. With over 20 years in clinical trials and operations, Alex shares her passion for humanising healthcare and prioritising patients. She discusses her career path, challenge...

In this episode of Pep Talks, Emma interviews Michaela Dinboeck, the Head of Patient Engagement at Novartis. Michaela discusses her role in integrating patient perspectives into the development and R&D lifecycle at Novartis, emphasizing the importance of patient-focused drug development. She shares insights on the challenges and successes of building a robust patient engagement function within...

In this episode of Pep Talks, Emma interviews Rina Newton, a renowned expert in compliance, particularly within the pharmaceutical industry. Rina shares her journey into the field of compliance, emphasising the importance of understanding and navigating the complexities of self-regulation. The discussion delves into the challenges faced by pharma companies in patient engagement and the fear of bre...

In this episode of PEP Talks, Emma interviews Dr. David Gillen, the Chief Medical Officer of Norgine, discussing the evolution and importance of patient engagement in the pharmaceutical industry. Reflecting on their first meeting 16 years ago, they explore how patient demands and advocacy have shaped industry practices. Dr. Gillen emphasises the critical role of patient engagement professionals in...

Emma hosts the third series of Pep Talks, sponsored by Norgine Pharmaceuticals, featuring Mark Bradley, a pioneer in patient engagement. Mark shares his journey from a student nurse in Northern Ireland to founding the People With platform. He discusses the importance of personalized medicine and the need for better understanding patient profiles to improve treatment outcomes. Mark's vision is to u...

This PEP Talks episode features an engaging conversation between Emma and Paul Simms, founder and chief executive of Impatient. Sponsored by Norgine, the discussion delves into the challenges and frustrations of patient engagement in the pharmaceutical industry. Paul shares his journey and the motivation behind founding Impatient, emphasising the need for a culture of continuous experimentation an...

Emma hosts another edition of PEP Talks, featuring Dr. Gudula Peterson, the global patient engagement lead at Grunenthal. Gudula shares her extensive experience in the pharmaceutical industry, highlighting her journey from compliance to patient engagement. She discusses the evolution of patient involvement in clinical trials, emphasizing the importance of integrating patient perspectives early in...

In this episode of the Pep Talks podcast, Emma talks to Liselotte Hyveled, the Chief Patient Officer at Novo Nordisk. Liselotte shares her unconventional journey from a pharmacist to her current role, emphasizing her focus on patient-centricity throughout her career.  She discusses the importance of understanding patient experiences and integrating those insights into the development of treat...

This Pep Talks episode features Begonya Nafria Escalera, head of patient engagement in research at St. John De De Children's Hospital, who champions the inclusion of children and young people in clinical research, a practice not yet widespread in Spain. Begonya discusses the challenges of communicating complex trial protocols to young patients and their families, highlighting the innovative method...

On PEP Talks, Emma interviews communications coach and advocate Monica Kleijn Evason. They recall meeting at a cancer conference where survivors' "FUCK cancer" shirts sparked a discussion on disruptive language in advocacy. Monica shares her advocacy journey, prompted by her son's brain tumor diagnosis and their struggles with the medical system. She stresses communication and empathy in healthcar...

Pep Talks, hosted by Emma Sutcliffe, is a podcast series sponsored by the International Society for Patient Engagement Professionals (ISPEP). In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPE, about her new role as Chief Patient Officer. Emma shares her journey from a medical biochemist to a patient engagement professional, emphasizing the importance of empathy and strategic busines...