Not Just Patients

Join us for a powerful conversation with Stacy Hurt as we dive into what patient safety really means in clinical trials and everyday medical practice. Stacy is Chief Patient Officer at Parexel , where she leads efforts to embed the patient voice across clinical research and drug development. A patient, survivor, and caregiver herself, Stacy brings both professional expertise and lived experience t...

Joining Caitlin and Clarinda for this episode of Not Just Patients is Emma Doble , Patient and Public Strategy Editor at The BMJ , for a powerful conversation about what it really means to embed patients in medical publishing in more than just name. Emma leads the BMJ’s patient partnership strategy across the journal and BMJ Group, including the What Your Patient Is Thinking series, patient and pu...

Join us for an enlightening conversation with Dr Richard Fitton, retired GP and long-time champion of patient access to electronic medical records, as we explore what it really means to share data, power, and responsibility with patients. Richard’s journey spans more than four decades of pioneering work: from early computerised records in the 1980s, to leading one of the first NHS pilots for onlin...

Join us for an enlightening conversation with Jennifer Bright , President and CEO of the International Consortium for Health Outcomes Measurement (ICHOM) , where we talk about redefining value in healthcare by measuring what truly matters to patients. Jennifer is a long-time leader in patient-centered health policy and outcomes, with past executive roles at the Innovation and Value Initiative, the...

Join us for this special Rare Disease Day episode with Emily Reubin OBE , Co‑founder and CEO of Duchenne UK , as we talk about transforming grief into impact and reshaping rare disease care through patient advocacy. Emily co-founded Duchenne UK after her son was diagnosed with Duchenne muscular dystrophy (DMD). Emily launched the Duchenne Children’s Trust in 2012, which later merged with Joining J...

Join us for an inspiring conversation with Derick Mitchell , Executive Director of Patient Focused Medicines Development (PFMD) , adjunct professor at Trinity College Dublin , and a dedicated leader in patient engagement and multistakeholder healthcare innovation. Derick’s journey has taken him from translational research to his previous role as CEO of IPPOSI —the largest patient network in Irelan...

What was one key learning around patient engagement that you're taking away from 2025?  What gave you hope in patient engagement and advocacy this year?  What’s one thing you’d love to see in patient engagement next year? These are the questions that we asked not one... not two... but FIVE amazing guests for this special year-end episode of Not Just Patients. Listen to our incredible guests M...

Join us for an insightful conversation with Cécile Tardy-Srinivasan , EUPATI Fellow, patient advocate, and leader of the DayOne Accelerator, as we explore what it takes to bring meaningful patient and stakeholder involvement to health tech innovation. With over 20 years of cross-sector experience bridging pharma, healthcare technology, and patient advocacy, Cecile draws upon her own journey as a r...

Love to listen or prefer to watch? For the first time, the video recording of this episode is available on our YouTube channel: https://www.youtube.com/watch?v=ansbXaF9B6c Join us for the first in-person recorded episode of Not Just Patients! We were so excited to be invited to the launch of the National PPI Festival in Dublin, organised by the PPI Ignite Network and the Royal College of Surgeons...

Patient advocate and engagement consultant Trishna Bharadia joins Caitlin and Clarinda to explore how advocacy can be supercharged by tapping into diverse channels, from niche community networks to public mass-media platforms that reach millions.  Trishna works with multiple stakeholders to embed the patient voice into medicines development and healthcare. She's a visiting lecturer on patient...

Join us for a thought-provoking conversation with Mark Doyle , as we explore the vital role of empathy in healthcare and how truly understanding the patient experience can drive better outcomes for patients, professionals, and organisations alike. Mark Doyle is the founder of the award-winning, immersive patient experience company A Life in a Day .  He began his professional life as an actor and h...

Join us for an empowering conversation with Estelle Jobson , EUPATI Fellow and patient expert living with endometriosis, about equipping patients for shared decision-making. Estelle is a founding patient partner at Geneva University Hospitals (HUG) programme, PartnerREC , and a seasoned communications professional with an MSc in Publishing from NYU. With decades of experience supporting patient-ce...

Join us for this inspiring conversation with Urvashi Prasad as we discuss how patients can be involved in shaping healthcare policy. Urvashi was a Director in the Office of the Vice Chairman at NITI Aayog , the Government of India's premier policy think tank, and co-authored India's first Voluntary National Review on Sustainable Development. She also contributed to the management of the...

This episode of Not Just Patients is all about the need for viewing patient engagement as a professional practice integral to healthcare, rather than just passion work. Our expert guest today is Emma Sutcliffe , Chief Patient Officer at the International Society for Patient Engagement Professionals (ISPEP) . Emma is one of the most cited and published experts in the field of patient engagement and...

In celebration of our First Anniversary at Not Just Patients, we hosted a very special LinkedIn LIVE Podcast Takeover with Guest Host Joel Nelson on World Health Day, the 7th of April 2025.  An award-winning patient advocate who uses his story of psoriatic-associated juvenile idiopathic arthritis to inspire change, Joel is the Founder of Psoriatic Disease UK . He also hosts The Joel Nelson Podcast...

On this episode, we talk to Lilly Stairs about thriving in your career and managing your health while living with a chronic illness. Lilly Stairs is an internationally recognized patient advocate, serial entrepreneur, philanthropist, and sought after speaker. Her purpose was ignited in a hospital bed after being diagnosed with multiple autoimmune diseases. She is the Founder of Patient Authentic ,...

Join us for this special Rare Disease Day episode of Not Just Patients, where we speak with Jo Balfour , Managing Director and Co-founder of Cambridge Rare Disease Network (CamRARE) , about research in rare disease.   Jo is the driving force behind the CamRare's innovative events program, designed to raise awareness about rare diseases and encourage cross-sector collaboration. She manages the...

Join us for an insightful conversation with Maya Zlatanova , CEO and Co-founder of FindMeCure and TrialHub, as we discuss patient-aligned clinical trials that consider both scientific rigour and patient needs. Maya is a health-tech entrepreneur and pharma industry speaker with over 15 years of experience in feasibility, operations, and patient recruitment and engagement. Guided by her strong sense...

Join us for this special (unedited) recording of Not Just Patients , which was streamed LIVE on LinkedIn! To celebrate our 10th episode, we were joined by two incredibly inspiring advocates, Danielle Drachmann and Sumaira Ahmed . Listen to this uplifting, raw, and real conversation as these two amazing women share how they turned their adversity into advocacy, and the unspoken realities of their d...

Join us for a compelling conversation with Professor Lara Bloom , President and CEO of the Ehlers-Danlos Society. A strong patient advocate, Lara has a passion for pushing boundaries and fighting for progression DE&I in healthcare and LGBTQIA+ rights. Throughout our discussion, we dissect the complex relationship between health equity and inclusion on a global scale. The episode also explores...

On this episode, Dr. Anke-Peggy Holtorf joins us to help demystify the complex processes of regulatory affairs and health technology assessment (HTA) and explain the crucial role of patients in these processes. Anke acts as Secretary of the Board at Health Technology Assessment international  and is a Steering Committee member and project coordinator for the Patient and Citizen Involvement in HTA...

On this episode, we speak to Mark Duman , Chief Patient Officer at MD Healthcare, about digital health and health data, how digital therapeutics get developed and approved, and how challenges around access and equity can be navigated. Mark is a clinician, management consultant, and patient advocate who works with several healthcare organisations to harness digital health, improve market access, an...

On this episode, we speak to Avishek Pal about how patients can better access and contribute to medical publications. In parallel to his day job as Global Medical Director of Cell & Gene Therapy at Novartis, Avishek is affiliated with the Institute for Biomedical Ethics at University of Basel, investigating how medical research information in plain language may improve health literacy and auto...

In this episode, we speak to Dr. Victor Montori about the importance of shared decision-making in healthcare. Dr. Montori is the Robert H. and Susan M. Rewoldt Professor of Medicine at Mayo Clinic. An endocrinologist, health services researcher, and care activist, he is the author of more than 750 peer-reviewed publications and is among the most cited researchers in clinical medicine and in social...

On this episode, we talk to Robert Joyce about the critical role of patient involvement in clinical research and the various ways in which patients can bring rich perspectives to the research and development process. Robert has lived with chronic illness all his life, but following a traffic accident in 2014, he was left with debilitating symptoms. No longer able to work, Robert started his blog,...