Move It or Lose it - The Podcast

In this three part series, Dr. Jera Tolliver-Scott, an expert in the field of sexual intimacy for people with multiple sclerosis, who isn’t afraid to tackle this tricky subject. With years of research and studying, she’s compiled data from patients about common sexual dysfunction problems, like vaginal lubricants, physical pain, vaginal pain, erectile dysfunction, and communication when it comes t...

In this three part series, Dr. Jera Tolliver-Scott, an expert in the field of sexual intimacy for people with multiple sclerosis, who isn’t afraid to tackle this tricky subject. With years of research and studying, she’s compiled data from patients about common sexual dysfunction problems, like vaginal lubricants, physical pain, vaginal pain, erectile dysfunction, and communication when it comes t...

Part Two of our Multiple Sclerosis Treatment Discussion with Dr. Brandon Beaber, A Board-Certified Neurologist.  Dr. Brandon Beaber, a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system, answers questions from The Move It or Lose It Podcast listeners. Join us as we discuss early high-efficacy therapy, immuno-suppressa...

Multiple Sclerosis Treatment Discussion with Dr. Brandon Beaber, A Board-Certified Neurologist   Dr. Brandon Beaber, a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system, answers questions from The Move It or Lose It Podcast listeners. Join us as we discuss early high-efficacy therapy, immuno-suppressant drugs for mul...

This is Part Two of a Two Part interview with Kathy Costello of Can Do MS.  Kathy is the COO of Can DO MS.  Can Do MS is a national nonprofit organization that delivers health and wellness education programs on exercise, nutrition, symptom management, and motivation to help families living with MS thrive. Each month, a variety of live programs are offered to help people living with MS and their su...

This is Part One of a Two Part interview with Kathy Costello of Can Do MS.  Kathy is the COO of Can DO MS.  Can Do MS is a national nonprofit organization that delivers health and wellness education programs on exercise, nutrition, symptom management, and motivation to help families living with MS thrive. Each month, a variety of live programs are offered to help people living with MS and their su...

This is Part Two of a Three Part Series airing Back to Back to Back.  Kathy interviews a panel of single people with MS.  They take a deep dive into what it is like to has an Autoimmune Disease such as MS and be Single.  The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating. Find out more about my new DMAT Fitness Training program Visit MS Disrupted You can fi...

This is Part Two of a Three Part Series airing Back to Back to Back.  Kathy interviews a panel of single people with MS.  They take a deep dive into what it is like to has an Autoimmune Disease such as MS and be Single.  The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating. Find out more about my new DMAT Fitness Training program Visit MS Disrupted You can fi...

This is Part One of a Three Part Series airing Back to Back to Back.  Kathy interviews a panel of singles with MS.  They take a deep dive into what it is like to has an Autoimmune Disease such as MS and being Single.  The Discussion covers Dating, overcoming loneliness and even the potential of Online Dating. Find out more about my new DMAT Fitness Training program Visit MS Disrupted You can find...

This is an Encore presentation of Episode 63 and one of my favorites from earlier in 2022.  My guest was  Shari Short, a comedian, writer, and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS. In this episode, we talk about how Shari got started in comedy, her d...

For a special Holiday episode, I'm delighted to catch up again with Tamara Kahn and Terry Hord of Twins Coast 2 Coast. These ladies continue to navigate their lives with Secondary Progressive MS, advocating through their work with the National MS Society, on their website and social media channels, and now on their podcast. In this conversation, we talk about their plans for the holiday seaso...

This is the second part of my interview with Brandon Sedgwick, a participant in my DMAT training program.  Listen to the first part here . In this conversation, we talk about how things went following his HSCT (hematopoietic stem cell transplantation) treatment, how it felt to come home, the post-procedure crash he experienced, and the improvements to his health that he has noticed. Links and Reso...

Back in September we featured a chat with Brandon Sedgwick, a participant in my DMAT training program. In the earlier interview , Brandon was getting ready to go to Mexico for HSCT (hematopoietic stem cell transplantation), an intense chemotherapy treatment for MS. In the first of a two-part interview, we talk about his biggest fears immediately before starting the treatment, the facilities in Mex...

Although the focus of my work is the importance of maintaining physical health, more and more we're all aware of the need to maintain a healthy mind. So I love to bring you conversations that cover the psychological impact of living with a chronic illness. Especially when they also focus on the impact on caregivers, a subject that is very dear to my heart. And if the person I'm speaking...

Jenn Powell is an active advocate in the Multiple Sclerosis community, imparting hopeful optimism to the real-life challenges facing those of us living with MS. Jenn is the Brand and Marketing Manager for BioNews, an organization that strives to create dynamic communities that give patients and caregivers a powerful voice.  Jenn also writes for Multiple Sclerosis News Today (a subsidiary of BioNew...

Jenn Powell is an active advocate in the Multiple Sclerosis community, imparting hopeful optimism to the real-life challenges facing those of us living with MS. Jenn is the Brand and Marketing Manager for BioNews, an organization that strives to create dynamic communities that give patients and caregivers a powerful voice.  Jenn also writes for Multiple Sclerosis News Today (a subsidiary of BioNew...

One of the biggest stories in the world of health over the last few years has been the use of Cannabis and CBD as a treatment for pain, anxiety, depression, and more. CBD, or cannabidiol, is an essential component of medical marijuana and is either derived directly from the hemp plant or manufactured in a laboratory.  CBD does not cause a "high" by itself but the claims made for its use...

As a physician and patient living with MS, Dr. Susan Payrovi has a unique perspective on managing the condition. Her medical training initially meant putting her faith in the diagnosis-to-medication pathway. But by studying integrative and functional medicine Dr. Susan was able to widen her understanding of chronic disease and find new tools to manage a complex condition like MS. In this interview...

I'm constantly inspired by the courage and passion that our young disability advocates display.  My guest today is Isabel Mavrides-Calderón, whose passion for activism was sparked by her medical journey as a disabled Latina teen. At the time of this recording, Isabel was still only 17 but she is already well-established as a community organizer and activist.  Isabel focuses on community outre...

Geoff Allix lives in Devon, England, and was diagnosed with Multiple Sclerosis in 2015. Geoff was determined to do whatever he could to remain well, so he and his wife launched into action and Googled as much as they could about the condition. They came across the Overcoming MS Program, which Geoff has been following ever since. He now hosts the Living Well with MS podcast for OMS. And even though...

 Meet Brandon Sedgwick. Brandon is a participant in the DMAT Disrupt, Move and Transform - Autoimmune Training Program and Future HSCT - Hematopoietic stem cell transplantation therapy recipient. Kathy discusses Brandon preparation for his HSCT treatment in Mexico which includes his strength training preparation in Kathy's DMAT Program. Listen to Brandon tell his story while getting ready for...

Jacqueline Kaufman, PhD, is an Associate Professor within the Department of Physical Medicine and Rehabilitation at the University of Michigan. Dr. Kaufman is the co-founder of the Michigan Adapted Cognitive Assessment Clinic (M-ACAC), the only known clinic of its kind, which conducts cognitive assessments for children and young adults with severe speech and motor impairment. Patients have travele...

Chris Dunbar is a man who speaks my language. When his first neurologist told him that he would soon be unable to walk, Chris became more determined than ever to get his body moving, and keep it moving. In this episode, Chris talks about his life in the military before his diagnosis, his first symptoms and horrible Lumbar Puncture experience, and how he powered through to continue as a National Qu...

Shahd Alshammari is a Kuwaiti-Palestinian author and academic. She is the author of Notes on the Flesh (Faraxa Press, 2017) and Head Above Water (Neem Tree Press, 2022), and was diagnosed with Multiple Sclerosis at the age of only 18. Despite her doctors preparing her for a tragic life and early death, she threw herself into education - not because she wanted to achieve anything in particular, but...

My guest this week is Shari Short, a comedian, writer, and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS. In this episode, we talk about how Shari got started in comedy, her diagnosis with MS, her experiences of loss during the COVID pandemic, and why sometim...