Move It or Lose it - The Podcast

In this episode, I had the pleasure of chatting with Amanda Phillips, the director and creator of BeWell, a company dedicated to improving the lives of individuals with autoimmune diseases through thoughtfully designed apparel and products.  As you'll hear, Amanda's story began with her struggle to manage Crohn's disease during long car rides, leading her to devise a makeshift emerg...

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis. There are many ways to manag...

Warning Explicit Language Adam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk.  His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th.  Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that.  The links below are available for your...

In this episode, I had a wonderful conversation with my close friend Jamie, whose handle on Instagram and TikTok is LoveWarriorHugs. Jamie was diagnosed with epilepsy at 18 and later with MS at 24, and we discussed life before diagnosis, the impact of her conditions on her daily life, and the importance of advocacy and support systems. Jamie emphasized the significance of finding a good doctor and...

As well as featuring stories of individuals who are living with MS on the podcast, I also like to shine a light on organizations that are working to offer support to our community. One of my favorites is Can Do MS, a national nonprofit organization that provides education, resources, and support for people with MS and their support partners. In this episode, I had the pleasure of speaking with Jul...

Anthony (AJ) McGinty's MS journey began when he experienced symptoms of fuzzy vision when he was traveling for work, leading to a full diagnosis six years ago. Like so many of us, before being diagnosed, he had no experience or knowledge of MS. As you'll hear, he and I share a lot of the same views about the importance of exercise and staying active when you have MS. In this episode, Ant...

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted. This time around we delve into my journey of public speaking, from sharing my experiences as a pastor's wife to speaking at events for women and youth groups. My spe...

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted. The heart of the episode is the introduction of my new 10 Weeks to Disrupt MS Program , which addresses fitness, nutrition, and mental health, all tailored to the unique...

In this deeply personal and candid episode of the Move It or Lose It podcast, I, along with my guests Julie Stamm and Dawn Morgan, dive into the emotional rollercoaster that comes with living with Multiple Sclerosis. We share our raw and real experiences, discussing how our days can take unexpected turns due to the unpredictable nature of MS, and the profound impact it has on our emotional well-be...

In this episode of the Move It Or Lose It podcast, I am joined by Adam Powell, my friend and truly one of the most inspiring people that I know. Adam joined me to talk about his journey after knee surgery. In this interview, he talks about how his knee suddenly locked up one day, which caused him to realize that he had experienced similar problems before. Although Adam clarifies that his knee issu...

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior. In the final part of our two-part conversation, Roxanne talks more about the importance of surrounding ourselves with positive and supportive people. We discuss how toxic relationships can hinder our growth and how important it is to have a co...

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior. In the first part of a two-part conversation, Roxanne shares her experience of being diagnosed with multiple sclerosis and how it motivated her to create a fulfilling career that accommodated her health needs. She encourages listeners to pursu...

Dr. Aviva Gaskill is another example of something which I didn't know existed until a short while ago. Dr. Gaskill is a Clinical Psychologist who specializes in treating MS patients. Not only that, she is a designated Partner in MS Care for the National Multiple Sclerosis Society. Dr. Gaskill's interest lies in the convergence of medical issues and psychology. So in this interview we tal...

Lyndsay Watterson has designed walking sticks used by Selma Blair and Christina Applegate. And if that's not impressive enough, she also performed death-defying circus moves at the closing ceremony of the 2012 Paralympic Games in London. While Coldplay performed! After having arthritis since her teens, Lyndsay had knee replacement surgery at age 39. But an infection left her in more pain, so...

This is an Encore presentation of Episode 63 and one of my favorites from earlier in 2022.  My guest was  Shari Short, a comedian, writer, and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS. In this episode, we talk about how Shari got started in comedy, her d...

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us?  My guests are some of my fav...

Many people I've spoken to on the podcast have struggled to get an MS diagnosis, but Roxy Murray's story is especially frustrating. A UK-based podcaster, MS advocate, and fashionista, she first presented with MS at 18, waking up one day with double vision and intense headaches. They were rushed to hospital, undergoing an MRI and a Lumbar Puncture - standard tests for MS. However, Roxy wa...

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you.  How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us?  My guests are some of my fa...

For the 100th episode of the Move It Or Lose It podcast, I'm delighted to welcome back a guest who assisted me in one of my first webinars. Dr. Laura Hancock, PhD is a Board Certified Neuropsychologist, specializing in the treatment of people with Multiple Sclerosis.  In this episode, we talk about what a clinical Neuropsychologist does, the work that Dr, Laura does at the Cleveland Clinic, a...

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of misinformation out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists. One of my recently discovered favorites...

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of bad information out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists. One of my recently discovered favorites...

Sam Greenberg is the Founder and CEO of MS4MS (Mission Stadiums for Multiple Sclerosis), an entertainment-focused non-profit organization.  Its mission is to raise awareness of MS, while raising funds for affected families and to aid research at the Johns Hopkins Project Restore MS Research Center in hopes of finding a cure.  Founded in 2011, MS4MS is now a nationally recognized non-profit making...

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok. There are a lot of MSers on TikTok but in this episode, I'm continuing to talk to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her cha...

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok. There are a lot of MSers on TikTok but over the next two episodes, I'm talking to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her cha...

Although our primary focus on the podcast is Multiple Sclerosis, we're well aware that the diagnosis journey for different conditions can be very similar. For one thing, people often have no prior knowledge of their condition before they're diagnosed. In this episode, I talk to my friend Victoria Garner about her experience of being diagnosed with Chikungunya Virus. This is a viral disea...