PSC Partners Seeking a Cure
Living With PSC
Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofit organization dedicated to providing education and support to PSC patients and caregivers, and raising...
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PSC Partners Seeking a Cure
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Latest episode
Jul 3, 2026
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Episodes
Ricky and Audra Speak about the Exciting New Treatments for PSC 03.07.2026 45:01
In this episode, Niall speaks with Ricky Safer and Audra Flemming from PSC Partners about a remarkable moment for the PSC community: Ricky's recognition by AASLD, growing research momentum, and the power of patient-led advocacy. They discuss new developments in PSC and cholangiocarcinoma blood tests, the work of the PSC Partners International Collaborative Research Network, and why patient voices...
Harriet Medeley talks about Outpatient her new play about PSC 26.05.2025 27:08
Niall McKay talks to Harriet Medeley about her diagnosis of Primary Sclerosing Cholangitis (PSC) and how it inspired her to write Outpatient, an award-winning comedy play which opened in London this month. They discuss how her diagnosis, her life as an artist and mother and turning a life changing disease into art and comedy.
The link between mental wellbeing and physical recovery after liver transplant. 28.04.2025 31:58
Host Niall McKay speaks with Dr. Sharon Millen, a health psychologist at Queen's University Hospital, Belfast in Northern Ireland. Dr. Millen, a two-time liver transplant recipient, completed her PhD on psychological well-being in liver transplant patients. Her research found a significant link between physical recovery and mental well-being. Niall and Dr. Millen also share their personal experien...
2024 PSC Partners Annual Conference, Cutting-Edge PSC Research, and the Search for a Cause: A Conversation with Dr. Tom Karlsen 14.08.2024 41:33
In episode 45 of the Living with PSC Podcast, Host Niall McKay talks with Tom Karlsen, MD, PhD, Co-Chair of the 2024 PSC Partners 20th Anniversary Annual Conference, and Clinical Specialist in Internal Medicine and Gastroenterology, Oslo University Hospital, Norway. "I've worked on PSC for more than 20 years, and that aligns nicely with the 20-year anniversary of the Conference, because I've seen...
Early Detection of Cholangiocarcinoma: A Conversation with Dr. Jesse Kirkpatrick 16.05.2024 33:00
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
In-Depth Look Inside the 2023 PSC Partners Conference: A Conversation with Medical Science Liaison Joanne Hatchett 17.03.2024 20:53
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Rejection and PSC Recurrence After Liver Transplant: A Conversation with Dr. David Goldberg 22.02.2024 31:55
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Meet Dr. Stephen Rossi: A Conversation with the PSC Partners Chief Scientific Officer 16.01.2024 37:38
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Going Through a Liver Transplant: A Conversation Between a Husband & Wife 20.09.2023 41:34
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Post-Liver Transplant Recurrence of PSC: A Conversation with Dr. Palak Trivedi 16.08.2023 40:54
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
When Your Husband is Your Living Liver Donor: A Conversation with Jessica and Ian Travis 23.05.2023 33:41
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Improving PSC Diagnosis, Expediting Research, Facilitating Clinical Trials, & more: A Conversation with Dr. Laura Cristoferi 19.04.2023 25:03
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Benefits of Drug Repurposing for Rare Diseases: A Conversation with Ania Korsunska, Castleman Disease Collaborative Network 18.01.2023 33:00
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Identifying and Mitigating Health Inequalities in PSC: A Discussion with Dr. Kidist Yimam 08.11.2022 26:09
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
PSC Symptoms, Living Donor Transplant, and More: A Discussion with Nicola Tessier 15.09.2022 37:49
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
NIH Team Recruiting Patients for PSC Study: A Discussion with Dr. Theo Heller and Dr. Gracia Viana, NIH Clinical Center 17.06.2022 28:02
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
New Scientific Findings Point to Role of Contaminated Bile in the Onset of PSC: A Discussion with Dr. Espen Melum, MD, PhD, Norwegian PSC Research Center 18.05.2022 17:20
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
What to Expect at the PSC Partners 2022 Annual Conference Part 2: An Interview with Conference Co-Hosts Dr. Korzenik and Dr. Pratt 14.04.2022 16:16
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
What to Expect at the PSC Partners 2022 Annual Conference Part 1: An Interview with PSC Partners Medical Science Liaison Joanne Hatchett 14.04.2022 18:29
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
The Future of PSC Research and PSC Partners Research Priorities: An Interview with PSC Partners Former Director of Research Strategy Dr. Ruth-Anne Pai 17.01.2022 33:34
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
The Relationship Between PSC & IBD, the "Leaky Gut" Hypothesis, Microbiota, and more: A Discussion with Dr. Steven O'Hara, Mayo Clinic 18.11.2021 31:45
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
The PSC Partners ROADMAP Initiative, Value of the Patient Voice, and more : A Discussion with PSC Partners Medical Science Liaison Joanne Hatchett 19.10.2021 30:30
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Fecal Microbiota Transplantation and Link Between Gut & Liver: A Discussion with Dr. Cyriel Ponsioen 15.09.2021 36:33
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
Use of Antibiotics for Clinical Treatment of Cholangitis in PSC: A Discussion with Dr. Gideon Hirschfield 15.07.2021 27:28
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
PSC Recurrence After Transplant and the Importance of Support 15.06.2021 33:03
PSC Partners Seeking a Cure is pleased to present Living With PSC, a podcast moderated by Niall McKay. Each month, this podcast explores the latest research and knowledge about primary sclerosing cholangitis (PSC), a rare liver disease. From patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has...
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