Lichen Sclerosus Podcast

You are not doing the heavy lifting alone anymore. If you are living with symptoms that seem confusing, inconsistent, or flat-out exhausting, we have a vital surprise for you. For years, the Lichen Sclerosus Support Network (LSSN) has been a dedicated sanctuary for the LS community. But we know that many of our brothers and sisters are also navigating the painful, isolating world of Lichen Planus...

If you’ve disclosed your LS to someone and they brushed it off, that isn’t on you—it’s on them. Because when you share this, you are giving them a gift. In this crossover episode, Kathy joins Penny Petersson from the Pelvic Power Podcast for a conversation that goes far beyond medical facts. They dive into the "juicy" reality of living with LS: the sting of medical gaslighting, the fear of being v...

Episode Description: Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we’re excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you’ve listened before, you might recognize her from past episodes. This time, we’re diving into a new possible treatment for Lichen Sclerosus. What You’ll Learn i...

Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP). Why Provider Education Matters: LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients.   Many healthcare providers lac...

Join us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their mission to end the misdiagnosis and suffering caused by lichen sclerosus (LS). In this episode, you'll learn about: The challenges of living with LS and the impact of misdiagnosis.   The importance of patient education and support in managing LS. &nb...

If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complex...

Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs Join us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pe...

Topics: What is the LSSN Wholistic Healing Summit? Importance of addressing relationships affected by Lichen Sclerosus (LS) Summit focus: Partners, Caregivers, and Disclosure Sessions for patients, partners, and caregivers Wellbeing activities for stress management Opportunities to connect with other attendees Key Points LSSN is a non-profit patient organization providing education and support for...

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible...

Get ready for a heart-pounding year-end review of the Lichen Sclerosis Support Network's incredible work. From informative videos to virtual meetups, they're empowering LS warriors like me. But just when everything seems perfect, a shocking revelation threatens to unravel all their progress. Will they overcome this unexpected obstacle? Find out on the Lichen Sclerosus Podcast! In this episode, you...

Have you heard about the LSSN Mini Summit: Vulvovaginal Conditions? It’s our 3-day, 100% virtual event presented by medical experts on rarely discussed conditions, such as lichen sclerosus. You may be saying, I already have LS. Why do I need to know about other conditions? Or I don’t want to know about anything else. But the thing is, this is VERY important to your LS journey! In this episode, I w...

In this episode, you will be able to: Explore the impact of holistic methods on pelvic health and wellness. Harness the strength of your pelvic area to alleviate pain. Foster a nurturing environment for individuals coping with pelvic pain. Unlock a fulfilling life through empowerment for those with chronic conditions. My special guest is Penny Petersson Penny reaches her audience through her Insta...

In this podcast, Sophie Reese, an English researcher, discusses her work on the project Living with Vulva LS, a Mixed Method Study. She mentions the development of a checklist of diagnostic criteria to help health professionals diagnose LS accurately and quickly. Sophie highlights the challenges in recruiting participants for research studies, particularly ethical issues, and the responsibility of...

When I started the podcast, I never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, we strive to make a brighter tomorrow for those facing the same struggle I once did. But what does the future hold for this amazing network? Learn more and get your pass today at https://whhs.lssupportnetwork.org...

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosus, one must consider all variables involved for optimal application. In t...

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssu...

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lic...

Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I th...

In this podcast episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Adhesions and how her innovative stretching procedure has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. "We have so much work to do because no one taught your doctor how to examine a clitoris. No one. They never learned. They feel like it's...

Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode and let our community know". So here we are! If you experience a lot of stress from living with lichen sclerosus, you definitely want to listen to this amaz...

Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth. Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior. Find out more at holistichealingsummit.live We're excited to announce the Get Your Sexy Back pro...

Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. Here's what Angie Alt and I cover: 1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosis for 9 years. 2. What is the Autoimmune Pro...

Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information? Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist. To contact and work with Dr. Krapf, go to www.cvvd.org and fill out their contact form or cal...

It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals! We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals. And let me tell you, this process WORKS. We've had so many amazing transformations working through this process. In this epi...

Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you kept coming back. I appreciate you so much! If you’ve just found me, I want to thank you for listening, and I hope you get value out of it. At the very lea...