Lichen Sclerosus Podcast

Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatmen...

Hey, welcome. In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are. I want to thank our sponsor,  Lichen Sclerosus Support Network  (LSSN) for making this podcast possible....

Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? Perhaps you felt overwhelmed by the massive selection of lube options online and had no clue what to buy? Have you ever wondered what you should look for and avoid in a lube? If yes, this is the episode for you! Today I am here with my amazing friend and follow LS warrior, Jaclyn, from The Lost Labia Chronicles , and we a...

Today, I am here with Dr. Cynthia Wesley (aka Dr. Cyn), a board-certified OBGYN with over 16 years of experience and a vulvar skin expert. Dr. Cyn is passionate about vulvar care, hygiene, and grooming. She will share her tips on how to take care of your vulva when you have Lichen Sclerosus. We discussed everything from using the bathroom, bathing, moisturizing, hair removal, and more. So many gre...

Hey welcome! This week I'm so excited to finally publish this episode with Ashley Stump. She's a pelvic floor physical therapist who knows all about Lichen Sclerosus. I learned so much during this episode, we talked about what pelvic floor physical therapy is, why women with Lichen Sclerosus need it, what to expect on your first visit, and we talked about lubes. We talked about so much, so much go...

If you're seeing two of these or getting this episode really late, apologies. I realized half of my listeners didn't get the episode because I released it in video format versus audio. 🤦🏽‍♀️ Either way everyone should have at least one version of the episode. Thanks for understanding. Heeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that...

Heeeyyy! Longtime no see. lol Life has been busy and a bit hectic and I'm ready to let you in on everything that's been going on. And the most exciting news. You'll be getting new episodes starting Nov 5! First off we have incorporated Lichen Sclerosus Support Network and we are an official not-for-profit! Find out what we've been doing and what our future plans are. Want to volunteer? lssupport.n...

Hey!!! Welcome! I'm so happy you're here. I've got some AMAZING news. We have released the searchable provider directory! It's ready for you to explore. It's brand new so we have to work out all the kinks as we grow it but it's better than nothing. https://lichensclerosuspodcast.com/searchable-lichen-sclerosus-provider-database/ We have some equally exciting news. We are turning Lichen Sclerosus S...

Hey! Welcome! I’m so glad you are here with us today! We are going to shake this up a bit and have a live round table discussion about the concepts of acceptance and resilience with some members of the LS Warriors membership. The concepts of acceptance and resilience are critical to living with a disease such as Lichen Sclerosus. In this round table discussion, I will ask our participants a series...

I’m so glad you are here with us today. In today’s episode, we are joined by Jen, one of the LS Warriors! She is here to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she n...

Uncover the potential connection between your diet and long-term health with this groundbreaking research on Diet and LS.   Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others.   After Erica Eberl was diagnosed with LS, she did extensive research on diet an...

Unearth the root cause of your Lichen Sclerosus and transform your life with Heather Cooan's real talk about nutrition and lifestyle changes. "But she didn't let that hold her down, and she advocated for herself and was able to heal her cancer and her Lichen Sclerosus support Network through the use of naturopathic therapy." Heather Cooan is a certified nutrition therapy practitioner and functiona...

Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into vulvar cancer. This was a gross failure of the medical system. In today’s episode, we learn how Heather advocated for herself and fought fo...

Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible.  Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began to manifest, how they impacted her life, and how s...

Hey! Welcome. I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go from suffering so bad she had to stop having sex with her new husband to having multi-orgasm sex multiple times a week. I hope this story inspires you because you can do this too! I truly believe you can. It won't be easy but you absolutely can. Please...

Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. This is the story of how Jacly...

This week we talk about an awful drive I recently had to the doctor's office. I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those negative thoughts and emotions so I could do what I needed to do. I want to share with you my technique for staying in the present and changing my focus. This podcast is brought to you by Lichen Scle...

Does Lichen Sclerosus make penetrative sex painful for you? Has LS been a factor in a relationship breakup? Are you single and wonder if you'll ever be in a healthy relationship again? These are all questions this week's guest had to confront. After the demise of her 10-year marriage, she was determined to find out what was happening to her body. It took many more years for her to get a diagnosis,...

Welcome to season 2 of Lichen Sclerosus Podcast. For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often misdiagnosed or turned away being told ridiculous things. If you're between 18 and 50 and want to be part of the research head over to lichensclerosuspodcast.com/survey and fill out the questionnaire...

I woke up this Thanksgiving with a message of gratitude on my heart. Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the pockets of gratitude and positivity. Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect And don't forget to follow me: IG - https://www.instagram.com/lichen...

Fresh off the first Lichen Sclerosus Podcast Virtual Meetup I'm excited to bring fresh insights. As I'm sure you know because you live it Lichen Sclerosus does terrible things to our sex life. Sometimes stopping it completely. This week we look at how our libido is impacted by LS and how we can get it back. There's tons of information to look at. All links will be on the website show notes page at...

I'm so excited to bring back one of my favorite guests. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reac...

This week four Lichen Sclerosus Warriors share their diagnosis stories with us. Although each of their stories is individualized they all have similarities to our own. LS can be such a lonely disease but by sharing our stories we realize there are thousands of women feeling and going through what we are going through. I hope you feel a little less alone today after listening to this episode. Don't...

Have you ever thought about how LS will or has affected your relationship? How it has or will affect your partner? This week I was inspired by a DM I received on Instagram from a young man looking to support his companion. The love and care he expressed sent me looking for actionable tips for how we can maintain healthy happy relationships despite LS. Listen to find out how we can support each oth...

Do you have the itch? You know the one I'm talking about. The one that makes your vulva feel like ants are crawling all over it. That unforgiving desire to scratch. Yeah, that one. This week we discuss why we itch when we do and I give you seven ways ladies combat the itch. As always don't forget to subscribe and share. Follow me on Instagram @lichensclerosuspodcast and on FB @lichensclerosussuppo...