Legs Like Mine: The Podcast

There are all kinds of online resources for providers showing them what to look for physically when diagnosing lipedema. But not a ton of information on what it feels like from the perspective of a patient - the pain, tenderness, nodules, fatigue - what that is all like. This is from me, a 52 year old woman with stage 3 lipedema. What it was like to have surgery and regrowth and what it's like...

I'm pretty excited today! In this update, we share a major national development that could reshape the future of care, research, and awareness for lipedema and other lymphatic diseases: the work of the National Commission on Lymphatic Diseases. Established through federal legislation in 2022 after years of advocacy led by organizations like LE&RN and patient groups, this Commission has bro...

In this episode, I talk about my experience as a patient who shares online and just some of the crazy things people have tried to sell me. But then I also share several valuable and FREE resources providing everything you need to practice solid conservative care (the cornerstone of lipedema management) on your own, without buying anything! I'm linking to a few resources for you, below: The Lip...

In this episode, we talk about the top ten reasons why we have a lipedema awareness month every June, and outcomes I expect to see. We'll talk about why I don't want to "preach to the choir" with my outreach this year, but my intention is to reach medical providers who are the boots on the ground, who may not know how to recognize lipedema, or what to do once they have a patient who meets the clin...

Could the most overlooked conservative treatment for lipedema be... muscle? For years, lipedema conversations have focused on diagnosis, compression, surgery, pain management, lymphatics, and symptom control. All important. But what if we’ve been missing one of the most important pieces for preserving mobility? A brand-new study found that **sarcopenia, loss of muscle mass and strength, is prevale...

In this episode I discuss a new research study from Spain that just came out, where researchers surveyed more than 1000 lipedema patients and compared the results to the national health survey. The findings confirm the overwhelming data supporting several key comorbidities with lipedema, and a couple I hadn't heard before. Why's this important? Take a listen to hear what the significance i...

There's been a lot of hype, and different people trying to sell patients information, about a possible blood test for lipedema. Guess what? Research IS happening on it, and yes, they have found some biomarkers that will lead to a test...someday. I'll talk today about a paper released within the last month that might lead to that test we need for an objective diagnosis. Bottom line: DO NOT...

Today I am discussing the newly-dropped Global Lipedema Consensus Document that was published by members of the Lipedema World Alliance. ( link ) In this comeback of Legs Like Mine , I break down a major new international medical consensus document on lipedema and why it matters so much for our community. This paper calls out what many of us have known for years: lipedema is a chronic disease , it...

Take action: Email the CDC at ⁠nchsicd10CM@cdc.gov⁠ before October 9, 2025 to support the initiative — and ask ten friends or supporters to do the same. Together, our voices can make a lasting impact. Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstoo...

Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition. In this episode, we’re diving into something that doesn’t get talked about enough: kinesiophobia, the fear of movement, and how it affects people living with lipedema. A new study reveals...

This one is a little bit heavy on the science but what the big takeaway is, is that researchers are looking into our genetics, our bloodwork, and our fat cells, and are learning how to identify lipedema from blood tests, and understanding how our lipedema fat works. The results will surprise you. No, don't run off and get a blood test or a genetics test just yet, this is early research that will t...

As the month progresses, I'm enjoying all of the challenge bits more and more, especially the drinking of water and moisturizing. These are things I needed to be doing. In this episode I also talk about the OKC Thunder, and some progress the American Lipedema Association is making. Check out the blog on www. LegsLikeMine.comIf you like our content, please consider donating a few dollars to say...

Come sit with me for a while while I tell a tall tale of making call to action videos for national news media and a long lipedema ladies meet up in OKC this weekend. It was good and busy and I'm happy it all happened! #lipedema #lipoedema #advocacy #community #challenge #lipedemaawarenessmonth

Welcome to Legs Like Mine, the podcast, where we talk about all things lipedema from a patient's perspective. I watch for new research and news about lipedema every day and come to share it with you. And today, we have a major announcement. Aetna is settling outside of a trial on a 6 year old class action case for denying women with lipedema the treatment they need to save mobility, function,...

Follow along with me to see what I've learned, what challenges I've experienced, and glories gained by going through my own Lipedema Awareness Month challenge. This week is all about reaching out to BIG media and today I've emailed Mel Robins and Oprah, both my favorites, to ask them to do a show about lipedema, since it does affect 11% of women. It's kind of a big deal.

Hi friends! Wondering how my challenge is going and if I've given up yet? LOL. Join me this Monday morning for an update.

In this episode, I am personally inviting you to join me in the Lipedema Awareness Month Challenge — a 30-day journey designed to raise awareness outside the lipedema community. Why? Because 1 in 9 women may have lipedema, and most will never be correctly diagnosed. You’ll learn: ✔️ What lipedema really is ✔️ Why it’s not just about weight ✔️ The daily habits in this awareness challenge ✔️ Simple...

In this episode I'm talking about my success yesterday, sharing lipedema stuff on an influencer's page (Jeremiah Daniel Johnson on FB), using AI to write songs using Suno AI, and how I used DALL-E image generation to illustrate my children's book and one of my coffee table books featuring women with lipedema. Here's a link to my author page on Amazon where I use my real name (I hav...

Today's video goes over my personal Lipedema Awareness Month Challenge consisting of seven things I want to do this month. And on day 4, I missed the mark by 1 out of seven. Which one will it be? Check out the blog on www. LegsLikeMine.comIf you like our content, please consider donating a few dollars to say Hey Thanks for Making this: paypal.com/donate/?hosted_button_id=MQNCDP9HAK5WQPS: Becau...

🎧 Welcome to Legs Like Mine: The Podcast — where we explore lipedema from a patient’s perspective, break down the latest research, and share real-life experiences of living with this often misunderstood condition. In today’s episode, host Susan O’Hara shares what she’s discovered while scanning PubMed every single day for new lipedema research — and why so many recent studies seem to repeat the s...

🔍 Lipedema Isn’t Just Physical — It’s Personal. In this episode of Legs Like Mine: The Podcast, we break down an important new study that explores how women with lipedema experience daily life — physically, emotionally, and socially. This research goes beyond symptoms and shines a light on the invisible struggles: shame, stigma, and the constant fight for acceptance.🎓 Study Title: More than meet...

Join me as I provide my day 3 update, including a crazy day, how I met protein, remembering to moisturize at lunchtime, changes I'm seeing in my legs from water running, and more! #lipedema #lipoedema #lipedemaawareness

June is lipedema awareness month! Follow along with me as I complete a 30 day lipedema awareness challenge with seven goals each day. Today is a report out from Day 2 and plans for travel and completing the goal each day. #lipedema #lipoedema #lipedemaawarenessmonth

🎧 The Hidden Burden: How Lipedema Impacts Intimacy and Sexual HealthIn this powerful episode of Legs Like Mine: The Podcast, we break the silence around an often-ignored topic: how lipedema affects sexual health, body image, and intimate relationships. We dive into a 2025 study published in the Journal of Advanced Nursing, titled “Experiences of Sexual Health and Intimate Relationships in Women W...

ay 1 – June Lipedema Awareness Challenge ✅Welcome to Day 1 of the Lipedema Awareness Month Challenge! Today, I’m kicking things off strong by meeting all 8 daily goals designed to support our bodies and raise awareness for lipedema. Here’s what I did today:💧 Drank 90 oz of water🏊‍♀️ Swam in the pool💪 Did gentle arm exercises🥩 Ate high-protein meals📚 Took time to read and reflect📹 Shared my...