Invisible Not Broken - Chronic Illness Podcast Network

“You have to learn to navigate jobs, education, health, insurance…all of which are not designed for young adults” – Sneha Dave Health Advocacy Summit ( www.healthadvocacysummit.org ) Crohn’s and Colitis Young Adults Network @snehadave98 - Instagram and Twitter Sneha’s LinkedIn (because you gotta check it out!) https://www.linkedin.com/in/snehadave/ Summary Part 1 Graduating during COVID – commence...

Website/Blog, Twitter, & Instagram Handle DZonePodcast , DZonePodcast Name  * Jason Herterich Disorder Info What is your disorder? * Fibromyalgia , postural orthostatic tachycardia syndrome (POTS) , and irritable bowel syndrome (IBS) At what age did your disorder become a daily issue? * 22 Who were you before your illness became debilitating? * An outgoing, energetic, adventurous, driven fourt...

“Even in the darkest room, even the slightest bit of light can show you a way out, and there is something other than that darkness. You can choose life” – Nicole Krinick Nicole is the co founder of WANA, a community app for people with chronic and invisible conditions that fosters hope, direction and healing. She co-created the idea for WANA (which stands for We Are Not Alone) with her partner Eva...

“I believe that when the work begins and the healing begins…if you can lean into it, there in begins real living” – Nicole Krinick  “You are your own best healer ” – Nicole Krinick Nicole is the co founder of WANA, a community app for people with chronic and invisible conditions that fosters hope, direction and healing. She co-created the idea for WANA (which stands for We Are Not Alone) with her...

“When it’s our time, what we need in life, those lessons come to visit us” - Nicole Krinick, cofounder of WANA Check out WANA! Joinwana.com Apple store or android by typing WANA Join wana on Instagram Today’s episode is Part 1 of my conversation with my colleague and friend, Nicole Krinick. Together we talk about how to Connect with Your Body in Order to Heal.   Nicole is the co founder of WANA ,...

How to Advocate When You Are Disabled, Medical Racism, and A Call to Action Tinu's Info & Links Tinu Abayomi-Paul-Author, creator of #EverywhereAccessible Founder of @EveryAcess, Activist, Survivor, cancer Chronic Pain, and black woman. Hashtags to look for people to follow #DisabledBlackTalk #disabledpeopleforblacklives Resources History of the police officers links How the U.S. Got Its Polic...

SARAH MARIE RAMEY Email address * sarahmarieramey@gmail.com Website/Blog, Twitter, & Instagram Handle www.sarahmarieramey.com @sarahmarieramey and @wolflarsenmusic for both Name  * Sarah Ramey What is your disorder? * Hoo boy. What isn't my disorder? We can limit it to ME/CFS, complex regional pain syndrome (CRPS), and postural orthostatic tachycardia syndrome (POTS). Vulvodynia, a neurogenic...

“Find that marriage between you and your practitioner – they need to hear you and if they're not hearing you, they're not the right person for you” – Jay Berger As a Physical Therapist with over 20 years expertise in most healthcare areas, Jay Berger has had extensive experience with most chronic diagnoses. She deals primarily with clients with chronic illnesses, and they have taught her a great d...

“Find that marriage between you and your practitioner – they need to hear you and if they're not hearing you, they're not the right person for you” – Jay Berger As a Physical Therapist with over 20 years expertise in most healthcare areas, Jay Berger has had extensive experience with most chronic diagnoses. She deals primarily with clients with chronic illnesses, and they have taught her a great d...

“It’s so easy to become a victim, to sit in the mentality of 'This is happening to me and I cant do anything about it'. So how can we turn that on its head and cultivate resiliency during this time?” - Dr. Bojana Jankovic Weatherly   Dr. Bojana is an award-winning physician, double board certified in internal and integrative medicine. She is also trained in functional medicine, nutrition and mindf...

“It’s so easy to become a victim, to sit in the mentality of 'This is happening to me and I cant do anything about it'. So how can we turn that on its head and cultivate resiliency during this time?” - Dr. Bojana Jankovic Weatherly   Dr. Bojana is an award-winning physician, double board certified in internal and integrative medicine. She is also trained in functional medicine, nutrition and mindf...

“It’s so easy to become a victim, to sit in the mentality of 'This is happening to me and I cant do anything about it'. So how can we turn that on its head and cultivate resiliency during this time?” - Dr. Bojana Jankovic Weatherly   Dr. Bojana is an award-winning physician, double board certified in internal and integrative medicine. She is also trained in functional medicine, nutrition and mindf...

SARAH MARIE RAMEY Email address * sarahmarieramey@gmail.com Website/Blog, Twitter, & Instagram Handle www.sarahmarieramey.com @sarahmarieramey and @wolflarsenmusic for both Name  * Sarah Ramey What is your disorder? * Hoo boy. What isn't my disorder? We can limit it to ME/CFS, complex regional pain syndrome (CRPS), and postural orthostatic tachycardia syndrome (POTS). Vulvodynia, a neurogenic...

JESSIE ACE - PART 3! In today’s part 3 roundtable discussion, Monica and Eva chat with  Jessie Ace,  a fellow podcaster, MS warrior, advocate and multi-passionate entrepreneur. On her podcast,  Disabled to Enabled , Jessie interviews inspiring people also affected by chronic illness who have turned their diagnosis into something incredibly unexpected.  In this episode of  Invisible Not Broken , Mo...

JESSIE ACE - PART 2! In today’s part 2 roundtable discussion, Monica and Eva chat with Jessie Ace, a fellow podcaster, MS warrior, advocate and multi-passionate entrepreneur. On her podcast, Disabled to Enabled , Jessie interviews inspiring people also affected by chronic illness who have turned their diagnosis into something incredibly unexpected.  In this episode of Invisible Not Broken , Monica...

In today’s roundtable discussion, Monica and Eva chat with Jessie Ace , a fellow podcaster, MS warrior, advocate and multi-passionate entrepreneur. On her podcast, Disabled to Enabled , Jessie interviews inspiring people also affected by chronic illness who have turned their diagnosis into something incredibly unexpected.  In this episode of Invisible Not Broken , Monica and I have a talk with jes...

Sex Positive for Chronic Illness and Disability Recommendations AASECT Psychology Today Gaps in the Research: Identity and Sexual Communication and Gender Minorities with Physical Disabilities People with disabilities (PWD) have become the largest minority group in the world, with the number of PWD increasing to approximately 10% of the world’s population. 16 million people in the US experience ph...

Website/Blog, Twitter, & Instagram Handle www.aealexander.com, @allisonexander Name  * Allison Alexander Disorder Info What is your disorder? * Irritable Bowel Syndrome (severe), chronic nausea, Cytolytic vaginosis At what age did your disorder become a daily issue? * 8 Who were you before your illness became debilitating? * I went through various stages with my chronic illnesses. My IBS start...

Website/Blog, Twitter, & Instagram Handle Twitter @ashlee_hope98, instagram @ashlee_hope Name  * Disorder Info What is your disorder? * Prior sudden cardiac arrest (cause unknown), scleroderma , hypothyroidism , migraines/cluster headaches, plus depression , anxiety , PTSD , and in diagnostic for ADHD At what age did your disorder become a daily issue? * 18 Who were you before your illness bec...

“Give yourself permission to cope however you want to cope…no judgment necessary” – Jodi Taub   Jodi Taub is a psychotherapist with a private practice in NYC. She is a specialist in chronic illness and is a chronic illness warrior herself. Her first episode on Invisible Not Broken was called “ The Emotional side of chronic illness ” (Jan, 2019). In today’s episode we dive into Jodi’s personal and...

Seriously the hot take here is ask the person. What they say goes. When You Are Not Treated Like An Adult Because of Disabilities. A discussion with Monica Michelle (Ehlers Danlos wheelchair user for Invisible Not Broken a chronic illness podcast) and Amy Gaeta about how people with disabilities both mental and physical are treated like children from society to travel to the medical establishment....

Hey everyone – Spoonies, Wellness Seekers, practitioners – all ya'll – Eva here. It’s a beautiful blue day up here in Rochester NY. I’ve been inside for 5 days straight and miraculously I'm not going crazy just yet. Ok…so 3 quick things: #1. For the next few weeks, Monica and I plan to publish episodes that focus on the “How to’s” when it comes to COVID19. Why? Well, it’s kind of tough to ignore r...

You are subject to change and that’s ok. You’re allowed to make a decision and then change your mind. Its about constant evolution. Be open to that within ourselves and in other people. In order to have good relationships you have to be able to grow with people. - Lauren Freedman ➡️ visit https://uninvisiblepod.com/ @uninvisiblepod What is @uninvisiblepod ??? An award-winning podcast about invisib...

Food shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue. Hosted on Acast. See acast.com/pri...

Website/Blog, Twitter, & Instagram Handle www.thechanceofchoice.com Twitter @chanceofchoice Instagram @chanceofchoice Name * Phoebe Howlett Disorder Info What is your disorder? * Low blood pressure, POTS , EDS (previously ME) At what age did your disorder become a daily issue? * 20 Who were you before your illness became debilitating? * The sporty, outgoing, quick-witted, ambitious type. What...