Invisible Not Broken - Chronic Illness Podcast Network

Monica Michelle is joined by activist Lisa Weiner. Lisa lives with Charcot Marie Tooth Disease and Scoliosis . In this episode, Monica and Lisa discuss:  Growing up with CMT and Scoliosis Dealing with braces Living and moving around San Francisco with a chronic illness Finding community resources Discovering simple tools that can help with daily activities TIMESTAMPS 0:37 - What is Charcot Marie T...

Monica Michelle is joined by award-winning author Alyssa Graybeal. Alyssa lives with Ehlers-Danlos Syndrome . In this episode, Monica and Alyssa discuss:  Alyssa’s new book Monica and Alyssa discuss being a sick kid with creativity Pacing your work in a hustle-driven culture Emergency rooms & technology The benefits of talking about your story TIMESTAMPS 1:10 - Floppy – Tales of a Genetic Frea...

Monica Michelle is joined by Dale Critchley. They discuss his revolutionary Kickstarter campaign in making disabled D&D NPC Cards and Miniatures. Dale is hard of hearing and has ADHD. Limitless Champions Kickstarter Campaign TIMESTAMPS 1:35 - Dale’s Story Behind the Project 11:40 - Developing the Various Types of Miniatures 14:15- Representing Your Own Experience 15:55 - The Importance of Repr...

Monica Michelle is joined by Kathryn Trueblood. Kathryn lives with Crohn’s disease and Graves disease . In this episode, Monica and Kathryn discuss: John Abraham’s when we decide how someone else should die we are playing god Compassion and Choices Covid end of life and choices TIMESTAMPS 1:11 - Kathryn and Caretaking 4:55 - Neurological Disease and Vsed 6:22- Dealing with Differing Viewpoints 9:3...

Monica Michelle is joined by artist and activist, Sunshine Ammerman. Sunny lives with Septo-optic dysplasia , panhypopituitarism , Optic Nerve Hypoplasia , and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss:  National Organization for Rare Disorders (Un)Well Netflix Docuseries Working a Physical Job with a Chronic Illness Applying for D...

Monica Michelle is joined by fitness coach, Marnie Bothmer. Marnie lives with multiple sclerosis (MS). Marnie's links Marie’s Website Marnie’s Instagram In this episode, Monica and Marnie discuss: Being a Fitness Coach with a Chronic Illness Marnie’s Diagnosis Story Medical Bills Trusting your own Judgement ADHD Growing Up Religious TIMESTAMPS 2:10 - Marnie’s Story  6:15 - Being a Fitness Coach wi...

Monica Michelle is joined by health coach and nutritionist, Allison Samon. Allison lives with unexplained chronic knee, back, and butt pain. Allison's links Instagram Facebook Allison’s Website In this episode, Monica and Allison discuss: Pregnancy and Motherhood Ethical Eating + Sustainability Suburban Farming Universal Design TIMESTAMPS 1:02 - Allison’s Story 4:13 - Pregnancy + Motherhood 15:10-...

*This episode was recorded back in 2020 Monica Michelle is joined by artist and author, Sarah Bigham, who began writing about her experiences and painting, using dissolved medications and supplements as watercolors. Her creative endeavors are a distraction from the pain of several recent diagnoses and have been the silver lining of her medical journey. Sarah lives with: Mast Cell Activation Syndro...

*This episode was recorded back in 2020 Monica Michelle is joined by Carrie-Ann, who runs an accessible travel blog sharing accessibility reviews, disability travel guides and wheelchair travel tips​. Carrie-Ann lives with: Cerebral Palsy Carrie-Ann's links Carrie-Ann’s Website Twitter In this episode, Monica and Carrie-Ann discuss: Traveling in and around Europe and the preservation of the histor...

Monica Michelle is joined by Michelle Irving , a mentor for women around the world teaching them how to create a life filled with love, meaningful work and deep personal power. Michelle lives with: Autoimmune Hepatitis (AIH) Migraine Associated Vertigo (MAV) In this episode, Michelle and Monica discuss: how to ask for help and support becoming and living your authentic self and how to respond to o...

Monica Michelle is joined by disability activist and founder of Everywhere Accessible, Tinu Abayomi-Paul , creator of the popular hashtag #EverywhereAccessible. She is a survivor of Cancer and Chronic Pain, and she is a black woman. *This episode was recorded back in 2020 but is still very topical today. In this episode, Monica and Tinu discuss: Affirmative Action: The Guidelines address what appe...

Monica Michelle is joined by author of The Lady’s Handbook For Her Mysterious Illness , Sarah Ramey. Sarah Ramey lives with: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Complex regional pain syndrome (CRPS) Postural orthostatic tachycardia syndrome (POTS) Vulvodynia Mast cell activation syndrome (MCAS) *This episode was recorded back in 2020 but is very much still topical today. In...

Monica Michelle is joined by Dr. Phillips, award-winning psychotherapist and sex therapist. Dr. Phillips offers a safe, empathetic, and warm environment to help clients achieve their goals. Dr. Phillips has experience in treating LGBTQIA populations, depression, sexual challenges, anxiety disorders, trauma, bipolar disorder, substance use disorders, chronic pain, chronic illness, disabilities, and...

Note: This is my opinion only. I have Ehlers-Danlos, POTS, MCAD, and Fibromyalgia. If you just want a quick answer: Subaru Outback 2023 Hi everyone! Welcome to the new series: Disabled Tech Reviews The list of “special” and “luxury” items are not so for those of us in chronic pain. I have a budget that for my personal sit-in gets laughed out of existence. The general list used to be: Safety MPG En...

Interview With Social Security Disability Why It Is So Hard to Access Benefits with Author, Spencer Bishins Hosted on Acast. See acast.com/privacy for more information.

Noah: Spina Bifida*Scifi Fantasy & Escape* Reading & Empathy* New House ADA* Airlines & Wheelchairs  Noah and I chat about some of my favorite topics from airlines and wheelchairs* Dr Who and other sci fi shows and how they handle disability* Universal Design * School and disabled Access * Reading Fiction and Building Empathy Invisible Not Broken is a chronic illness and disability pod...

A FEW THINGS WE TALK ABOUT IN THE EPISODE CONTENT WARNING: WE DISCUSS RIGHT TO DIE ON THIS EPISODE. IF YOU ARE ANYONE YOU KNOW NEED HELP PLEASE REACH OUT TO THE CALL THE NATIONAL SUICIDE PREVENTION LIFELINE 1-800-273-8255 OR TEXT GO TO 741741 TO REACH A TRAINED CRISIS COUNSELOR THROUGH CRISIS TEXT LINE, A GLOBAL NOT-FOR-PROFIT ORGANIZATION. FREE, 24/7, CONFIDENTIAL. NEURODIVERGENCE AUTISM AND ADD...

Invisible Not Broken is back with singer songwriter Laura Mustard! We talk art, writing, and music with chronic illness and disability Cute Dogs Artists Supporting Artists Disability in the media Why starving artist is a privilege issue Rereading old journals the trauma and the content mining www.lauramustard.com https://www.youtube.com/user/lauramustardmusic https://open.spotify.com/artist/0yoEf2...

Monica ( Explicitly Sick ), Jason ( Discomfort Zone ) Jason from Discomfort Zone and Monica Michelle from Explicitly Sick have an open chat about what it is like to have a setback on your chronic illness protocol. Monica Michelle who has Ehlers Danlos had a setback this week while using the Ehlers Danlos Protocol, The Muldowney Method. Jason had a set back with a knee injury. They discuss frustrat...

Ableism comes in all shapes and sizes AND we experience it both internally and externally. Monica ( Explicitly Sick ), Eva ( Humancare ), and Jason ( Discomfort Zone ) talk about how they have experienced and dealt with ableism personally as well as give advice on what could work for others…plus other stuff around chronic illness and crap :p TRANSCRIPT HERE (it's not fab, but hopefully it does the...

Chronic illness is a marathon and not a sprint! Monica ( Explicitly Sick ) and Jason ( Discomfort Zone ) talk about how they cope with chronic illness and other life bullshit: Finding the people that won't tell you you're crazy Pets that both comfort and injure Monica Meditating when you can't sit still Denial! YES, denial is a perfectly legitimate coping response, and never let anyone tell you ot...

Hello Humancare community. I have a very special announcement. I am finally launching a new collaborative segment of the podcast, a project I've been dreaming of putting out there for years now, and it requires your participation to come to life:   Humancare Stories.   An awareness and conflict resolution project.   The Humancare Stories segment will be a collection of anonymously contributed stor...

2020 IN REVIEW (WTF) Eva ( HUMANCARE ), Monica ( EXPLICITLY SICK ), Jason ( DISCOMFORT ZONE ) and Dr. Lee ( SEX & CHRONIC ILLNESS ) digest the good, the bad and the super f*ing ugly, upsetting "wtf" moments of 2020...but not without some positive flair! We also talk about silver linings, learnings and what's to come in 2021! ____ JOIN OUR FACEBOOK GROUP, YA’LL! WE’RE A HOOT :P _____ PLEASE SHA...

THROWBACK TO OUR 100TH EPISODE: Managing from Mattress with Eva Minkoff and Monica Michelle. In this episode, we talk about our individual experiences & tips for managing our flares on our "bed bound" days. Since the two of us have varying degrees of illness severity and mattress-bound frequency, this episode covers much of the spectrum of experiences when one has a chronic illness. Links/sugg...

Another sort of Holiday Special roundtable on gifting for people with chronic illness & disability! JOIN INB NETWORK HOSTS MONICA ( EXPLICITLY SICK ), EVA ( HUMANCARE ) & JASON ( DISCOMFORT ZONE ) FOR A FUN DISCUSSION ON OUR PERSONAL GIFTING IDEAS. “A little effort goes a really long way” – Jason Herterich Gift ideas mentioned throughout the episode: *No sponsorships, personal recommendati...