Help 4 HD Live!

Please visit the 3 Squeezes website by going to www.3squeezes.com Laura Vazac has a special, limited edition bracelet right now where 20% of the proceeds go to Help 4 HD International.

In this episode, Katrina Hamel and Katie Jackson talk about the public impact our families have to endure living in a family impacted by HD. 

Melissa (Dilley) Ryant is 34 years old and originally from Ohio. Her mom was the first in her family to be formally diagnosed with HD, and these symptoms began when Melissa was a child. Her mom passed away on 2/14/2008. When Melissa was 24, she tested gene negative for HD. Struggling with all of the complexities of survivors guilt, she connected with the NE Ohio Chapter, and attended her first con...

Sandra Kostyk received her MD, PhD degrees from the Pritzker School of Medicine at the University of Chicago and completed her residency in neurology at the Massachusetts General Hospital, Harvard Medical School. Following her residency, she was awarded an NIH physician scientist K award. Dr. Kostyk has been medical director of the HDSA Center of Excellence at The Ohio State University since 2000....

Dr. Alby Richard is a movement disorders neurologist and assistant professor in the department of Neuroscience at the University of Montreal, in addition to being an adjunct professor in the Department of Neurology and Neurosurgery of McGill University. Dr. Richard completed a Ph. D. in Neuroscience at the Montreal Neurological Institute (McGill University), followed by medical school at the Unive...

HIPE Orlando Recap

If you would like to join us on Discord, here is the link: https://discord.gg/VeUzU2TA

Genetic discrimination is still happening every day. Know your rights. Learn about the GINA Act, and follow GINAhelp.org - Your GINA Resource Great article: Genetic Discrimination in the Workplace: What You Need to Know - ToughNickel

Katie and Katrina do a wrap up for 2021!

For more information about HD-CAB, please visit Introducing HD-CAB, OneVoice4HD – European Huntington Association (eurohuntington.org)

Accelerate HD 

Grief and Depression During The Holidays

Recording of an interview with the coordinators of PREVENT-HD when I traveled to Madison, WI.

Nicola is the co-founder and editor-in-chief of RARE Revolution Magazine, a not-for-profit magazine and movement dedicated to amplifying the voice of rare disease stakeholders globally. RARE Revolution is also the home of the dedicated youth platform, RARE Youth Revolution which Nicola oversees. Nicola is co-founder and trustee of the charity Teddington Trust, volunteering her time to drive forwar...

Brenda started at the UWMC in 1995 after graduating as a registered nurse. She has devoted her career to working exclusively with patients with neurological disease in Urology. She began working half-time with patients and families in the Huntington’s disease clinic 10 years ago while continuing to work in Urology. Brenda has a passion for her patients and their families and has found her work in...

Jackie Harrison is a member of the HD community who created a very fun way to bring awareness to HD. Visit @sybilontour on Twitter to see all the amazing places Sybil has been. :)

Ask Autumn

Dr. Wild is a Professor of Neurology at University College London, a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery in London’s Queen Square, and Associate Director of UCL Huntington’s Disease Centre. He runs clinics in general neurology, neurogenetic movement disorders and Huntington’s disease. He leads a team of researchers aiming to accelerate the development of...

Toronto author and public speaker, Erin Paterson, tested gene positive for Huntington’s Disease (HD) in 2006. Shortly after she started suffering from depression, then received more crushing news, she was infertile.  Despite those diagnoses she was determined to have a family and live a joyful life. Her stories have appeared on over a dozen sites including KevinMD, TheMighty and HuntingtonsDisease...

Lisa Mymo is responsible for the strategy and execution of AllianceRx Walgreens Prime’s specialized programs, services and offerings.  Lisa and her teams are focused on best in class performance in the areas manufacturer and HUB services, patient access, patient services, financial services, implementation, pharma solutions and pharmacovigilance and REMS compliance.  Lisa has 25 years working and...

Signs from above

Sophie St-Cyr, PhD of Children's Hospital of Philadelphia joins us to talk about the heart. Heart disease is the second cause of mortality from Huntington'sand patients present an increased incidence of heart failure and a smaller heart. This heart pathology will need solving to improve the longevity and quality of life of HD patients. Dr. St-Cyr will explore the contribution of two RNA-binding pr...

Let's Be Candles

Londen Tabor Joins Help 4 HD

Bridging The Gap with Seth and BJ