Help 4 HD Live!

Shelby Lentz talks about her new book.

Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for the HD community, advocate for better access to c...

Christian Neri is a Research Director with a demonstrated history of working in the research industry. Skilled in genome science, computational biology, machine learning, translational research, R&D, target discovery, drug discovery, molecular diagnosis, clinical research, predictive analytics, business development, international business, and strategic sourcing. Skilled in Expert-Evaluation o...

Seth, BJ and I talk about making changes in the HD community If you are interested in participating, please email Lauren Holder at lauren@help4hd.org

Mike is a Neurology Registrar at the National Hospital for Neurology and Neurosurgery in London, and works on clinical trials in genetic diseases. He graduated from Cambridge in 2009 and completed a PhD in neurogenetics at UCL in 2018. His research with Prof Sarah Tabrizi uses stem cells and cutting edge genetics to understand neurological diseases and create new treatments. His focus is on repeat...

Katie Jackson and others from Help 4 HD recently went to the National Sheriff's Association conference to educate law enforcement about HD and JHD. 

Daniel O’Reilly Ph. D. is currently a Post-Doctoral Associate at Khvorova Lab, RNA Therapeutics Institute,University of Massachusetts Medical School, Worcester, MA.  Previously a Ph. D. student in Prof. Masad Damha’s lab at McGill University in Montreal, Canada. Dan earned his MSc in Chemistry from the University of Southampton, UK.  It was there that he was first introduced to Nucleic Acid Chemis...

Planning a Memorial Service for during a pandemic

Francis O. Walker, MD, Professor of Neurology and Director of the Movement Disorder Clinic at Wake Forest University, has had significant involvement in clinical care and research in Huntington’s Disease for over 30 years. Following residency training in Neurology at the University of Iowa and fellowship training in Movement Disorders at the University of Michigan, he joined the faculty of Wake Fo...

Samantha Griffin is a member of the HD community. She was a caregiver for her mom since the age of 15.

Dr. Hugh Rickards and I delve into the topic of diagnosing HD and what it means.  "People with HD may consult with a psychiatrist, a neurologist and a psychologist for their diverse symptoms, but what they really need, says Hugh Rickards, FRCPsych, MD, is a “Huntingtonologist”: A doctor who has been trained in all the diverse manifestations of the disease, from motor control to emotional issues to...

For more information on how you can get involved, please visit www.hdsa.org/takeaction

Next Generation of HD Warriors

Professor Hugh Rickards is a self-avowed "HD-nerd".  He loves all things HD and has been running a service for people with HD in Birmingham, UK since 1997.  He's particularly interested in how people with HD view the world.  He founded the HEATED project (Huntington's Equal Access to Effective Drugs) in 2020 to identify any barriers to effective treatment for people with HD and to find ways to ove...

Ashley Clarke's bio: I am 28 years old and Huntington's first entered my life when i was around 14 years old, with the positive diagnosis of my dad. From the age of 17, i cared for my dad alongside my brother, attended school/ university, worked part-time and got involved with my local HD community. I was a volunteer, service user and board member over the years here in Northern Ireland. In 2016 i...

HD Awareness Month 2021 Kickoff

We talk with Dr. Natalia Rocha about research she's been working on, specifically "Sex Differences in Huntington's Disease: Evaluating the Enroll‐HD Database" Dr. Rocha joined The University of Texas Health Science Center at Houston as a Postdoctoral Research Fellow in the Department of Psychiatry and Behavioral Science in January 2016. Since then, she has been focused on the study of immune/infla...

For more information about the Pathway Program, please visit: https://www.hdreach.org/

Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as President and Chief Executive Officer (2015-2020) and Chief Operating Officer (2013-2015). Prior to relocating to Maryland in 2013, he served as Chief Admini...

If you are interested in the ChANGE HD study, you can find out more at our website: www.changehd.org or come see us on Facebook: @ChangeHDresearch You can also call our toll-free number: 1-866-514-0858 or send us an e-mail at: change-hd@uiowa.edu  

Tune in to hear Katie Jackson, Katrina Hamel, and Lauren Holder talk about the news that came out of Genentech/Roche.

For more information about Adira Foundation, please visit https://adirafoundation.org/about/letter-from-ceo/

TODAY (3/10) is the LAST DAY to register for HIPE. You can register at this link: https://www.help4hd.org/events-1/help-4-hd-hipe-virtual-myth-busters/form HDYO's virtual event for young adults is March 13th and 14th. You can register for this event at this link: https://hdyocongress2021.vfairs.com/

Show Your Stripes for Rare Disease Day and all year long! Visit https://www.rarediseaseday.org for more information on Rare Disease Day Great resource for rare diseases: https://rarediseases.info.nih.gov/  

Tracing your HD Ancestry