Help 4 HD Live!

To read the original article written by Christine Miserandino, please visit the following link: The Spoon Theory

To see some of the suggested holiday gifts, you can visit the following websites: Amazon list created by Lauren Holder: https://www.amazon.com/hz/wishlist/ls/36F3QP2FN6NE6?ref_=wl_share Adaptive Clothing: https://www.buckandbuck.com https://www.alzstore.com/gift-ideas-for-seniors-with-alzheimers-s/2278.htm?msclkid=0438956749231ab589edf6fc3eeab60a https://shop.alzheimers.org.uk/collections/gifts-fo...

Katie and Katrina provide updates for 2022, and look forward to 2023.

Sarah Tabrizi is Director of the UCL Huntington’s Disease (HD) Centre, Joint Head of Department Neurodegenerative Disease at the UCL Queen Square Institute of Neurology, a Principal Investigator at the UK Dementia Research Institute, and Honorary Consultant Neurologist at the National Hospital for Neurology and Neurosurgery. She graduated in Biochemistry, then studied Medicine at the University of...

Dr. Leora Fox from HDBuzz joins me

Leora and Rachel join me to answer questions about research and science

www.hdreach.org eboulavsky@hdreach.org 919-327-1804 Erika Boulavsky, MSW, LCSWA, serves as the Community Outreach Specialist for HD Reach. Erika is responsible for helping to build relationships and education within the medical community as well as assisting HD families navigate supportive resources. Erika has a BA in Sociology from Costal Carolina University and a Masters of Social Work from the...

Symposium Recap with Maryann Emerick

For more information, please visit www.hdgenetics.com Wes is a Certified Genetic Counselor (CGC) through the American Board of Genetic Counseling. He earned a Master of Science in Genetic Counseling from Johns Hopkins University in 2021. As part of this program, Wes was an Intramural Research Trainee for the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at th...

Katie Jackson shares info on upcoming Symposium

For more great information on research, please visit hdbuzz.net.

For more information, please visit join-hd.org

Please visit www.championsforhd.org/donate or http://www.ringwarscarolina.net/

Louanne's bio:  I stood at the foot of my husband's hospital bed... "Where is the book?" I asked the doctor. "What book?" he asked... "The book that tells me how to do this..." I was 33 years old and my 35 year old husband lay in the bed, just pronounced brain dead. It was the most devastating loss I had experienced in my life. Through this unexpected blow in life, I learned many lessons that I di...

Katie Jackson and I talk about the recent research announcements.

https://www.youtube.com/watch?v=1ytFB8TrkTo

FDA Listening Session Breakdown with Danielle

We talk about Roe vs Wade being overturned and how that can affect the HD community

For more information about HDBuzz, please visit their website or twitter.

Ashley Ferreira has worked in the non-profit sector for over 10 years, 4 of those years in the rare disease space. She currently serves as one of PicnicHealth's Community Partnership Managers where she works with different advocacy and patient organizations to share about the power of real-world data research and the importance of owning and having access to one's medical records. She currently re...

Law Enforcement Education with Vicki Owen. If you'd like to contact Vicki to get materials to hand out to your local law enforcement, you can email her at vicki@help4hd.org. 

Alzheimer's & Brain Awareness Month with Karen Owens. Link to Monthly Programs https://www.alzconnected.org/ https://www.alzheimersnavigator.org/ Link to Live Well Modules

This is HD with Teresa Snider

Seth and BJ join me to talk about the upcoming FDA listening session

Dr. Anne Kloos received her physical therapy degree from the University of Wisconsin-Madison and her doctoral degree in biology/neuroscience from Cleveland State University. She is currently a Professor Clinical in the Physical Therapy Division at the Ohio State University (OSU) where she teaches adult neurorehabilitation and neuroscience courses. Her research is focused on balance and gait interv...