Help 4 HD Live!

If you are interested in learning more about what we are talking about, please send an email to Lauren at lauren@help4hd.org

You can purchase the book here. To learn more about Erin Paterson, please visit her website here.

Recap of HDYO Congress 2023 with Jenna Heilman

HD Uncut with Katrina Hamel - Gene-negative, caregiver for her mother and brother, and CFO of Help 4 HD International - comes on to talk to us uncut and uncensored about her HD journey.

Dr. Rachel Harding, Dr. Leora Fox, and Dr. Sarah Hernandez join me to discuss genetic modifiers of HD.

For more information about HD Reach and the upcoming education day and webinars, please visit www.hdreach.org  

Chris Brown joins me for our very first episode of the HD Uncut series. 

Nichole Goble (she/her) is the current Director of Community Initiatives at Caregiver Action Network. She has been with the organization since 2017. As part of her role as Director of Community Initiatives, she manages activities/programs with non-funding community partners and moderates caregiver roundtables and learning collaboratives. She also presents to various community groups on a variety o...

Love in HD

Abby shares her story of accepting HD in her life

You can find Savannah on Instagram. Her handle is @lifeandlosswith_sav

Erika Boulavsky and I talk about our recent experience at the NCACP Conference

Please visit the Honestly HD website by going to www.honestlyhd.com Nina DeLucia is the Director of Consumer Marketing for AUSTEDO at Teva Pharmaceuticals.  She has worked in the life sciences industry for over 20 years for Pharmaceutical companies as well as for healthcare platforms such as WebMD and ePocrates.  She has a passion for patients and care partners and her goal is to represent their v...

Diagnosis and Disability

Crystal Collinsworth joins me to discuss her nonprofit, The Wishing Tree for HD.

To read the original article written by Christine Miserandino, please visit the following link: The Spoon Theory

To see some of the suggested holiday gifts, you can visit the following websites: Amazon list created by Lauren Holder: https://www.amazon.com/hz/wishlist/ls/36F3QP2FN6NE6?ref_=wl_share Adaptive Clothing: https://www.buckandbuck.com https://www.alzstore.com/gift-ideas-for-seniors-with-alzheimers-s/2278.htm?msclkid=0438956749231ab589edf6fc3eeab60a https://shop.alzheimers.org.uk/collections/gifts-fo...

Katie and Katrina provide updates for 2022, and look forward to 2023.

Sarah Tabrizi is Director of the UCL Huntington’s Disease (HD) Centre, Joint Head of Department Neurodegenerative Disease at the UCL Queen Square Institute of Neurology, a Principal Investigator at the UK Dementia Research Institute, and Honorary Consultant Neurologist at the National Hospital for Neurology and Neurosurgery. She graduated in Biochemistry, then studied Medicine at the University of...

Dr. Leora Fox from HDBuzz joins me

Leora and Rachel join me to answer questions about research and science

www.hdreach.org eboulavsky@hdreach.org 919-327-1804 Erika Boulavsky, MSW, LCSWA, serves as the Community Outreach Specialist for HD Reach. Erika is responsible for helping to build relationships and education within the medical community as well as assisting HD families navigate supportive resources. Erika has a BA in Sociology from Costal Carolina University and a Masters of Social Work from the...

Symposium Recap with Maryann Emerick

For more information, please visit www.hdgenetics.com Wes is a Certified Genetic Counselor (CGC) through the American Board of Genetic Counseling. He earned a Master of Science in Genetic Counseling from Johns Hopkins University in 2021. As part of this program, Wes was an Intramural Research Trainee for the National Human Genome Research Institute (NHGRI) and National Cancer Institute (NCI) at th...

Katie Jackson shares info on upcoming Symposium