Help 4 HD Live!

Monday, August 8, 2011 – We have an incredible line-up tonight to kick-off the Help 4 JHD Premier with some amazing special guests. Jacey Mukka and Jane Mervar are here to give us an update on the JHD Iniative; Carla Krull from Southern California is here to talk about 2011 HDSA Convention and BJ Viau is here to give us an update on the incredible work he is doing with our HD youth. Tune in for a...

Monday, August 1, 2011 – Our incredible special guest tonight is Dr. Diana Rosas, MD, Director, Center for Neuro-Imaging of Aging and Neurodegenerative Disease. Dr. Rosas and her team have focused primarily on the development of biomarkers for use in the study of neurodegenerative diseases, to better characterize progression, to better understand genotype/phenotype correlations and to apply novel...

Monday, July 24, 2011 – Our incredible special guests tonight are Anne Leserman and Pat Ryan from the University of Iowa. Pat is the research coordinator for PREDICT-HD at the UI, and Anne is PREDICT-HD's recruitment coordinator. PREDICT-HD is an observational study of healthy persons who have been tested for the Huntington disease gene expansion but have not been diagnosed with any symptoms of th...

Monday, July 18, 2011 – Our incredible special guest is Dr. Merit Cudkowicz who is the Julieanne Dorn Professor of Neurology at Harvard Medical School. Dr. Cudkowicz's research and clinical activities are dedicated to the study and treatment of patients with Huntington's Disease and amyotrophic lateral sclerosis. Dr. Cudkowicz directs the Massachusetts General Hospital Neurology Clinical Trials Un...

Monday, July 11, 2011 - Doug Lowell is the president of  Find A Cure Panel.  A division of Sample Czar. Find A Cure Panel specializes in online patient research for serious diseases including HD. More specifically, finding people to participate in online patient research. FACP clients are university researchers and pharma. Essentially, FACP is a platform for people to share their opinions and expe...

Tuesday, July 5, 2011 – Our incredible special guest is Giovanni Schifitto, MD, MS, Associate Professor of Neurology and Imaging Sciences and Associated Co-Director of the Clinical Research Core of the Clinical Translational Science Institute at the University of Rochester. He is trained in Neurology and Experimental Therapeutics. Dr. Schifitto has been primarily investigating the neurological com...

Monday, June 27, 2011 - Our incredible special guest is Stacy Brookhyser (CAG 42), mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks. Planning an HD-free family with IVF/PGD Yes, you can stop Huntington's Disease in the future generations of your family!  With the help of skilled medical professionals, YOU...

Monday, June 20, 2011 –Our incredible special guest tonight is Dr. Martha A. Nance, director of the HD Center of Excellence at Hennepin County Medical Center since 1991. She received her BS from Yale University and her MD from Medical College of Virginia. She completed training in Neurology and in Genetics from the University of Minnesota, and now is an Adjunct Professor in the Department of Neuro...

Monday, June 13, 2011 – Our incredible special guests tonight are Will Huff from Grass Roots Research & Education in Goleta and Liani Johnson, founder of Cannabee Products Inc. in Palm Springs. Both are California medicinal cannabis specialists. We will be talking about the history of Cannabis and the different cultures that have utilized its medicinal properties. We will learn about the canna...

Monday, June 6, 2011 – Our incredible special guest is Steven Hersch, MD, PhD, Professor of Neurology at Massachusetts General Hospital and Harvard Medical School; Director, Laboratory of Neurodegeneration and Neurotherapeutics, MassGeneral Institute for Neurodegeneration; Director, New England HDSA Center of Excellence for Huntington’s Disease at MGH; Co-chair, Huntington Study Group; Principal I...

Sunday, May 29 - Our incredible special guests are James Valvano (WeHaveAFace.org) and his A Team comprised of an incredible team of individuals within the Huntington's disease community. These individuals have joined the project to promote the film documentary, and to continue to provide valuable support to others within the JHD/HD community. Advocacy for Huntington's disease is a key part of our...

Monday, May16, 2011– Our incredible special guests today are Jacey Mukka, Jane Mervar and Jonathan Monkemeyer. Jacey Mukka – will discuss the JHD Initiative, LLC. (Juvenile Huntington's Disease Initiative). Jacey is our very first JH'Dear on Help 4 HD. We are thrilled to have her premiere on the program. Every JHD is a Super Hero. Visit http://jhdkids.com to see how you can help. Jane Mervar - is...

Monday, May 9, 2011 - Our incredible special guest is Ira Shoulson, MD Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University – new full-time academic positions effective January 1, 2011.  Previously, Dr Shoulson was the Louis C. Lasagna Professor of Experimental Therapeutics and Professor of Neurology,...

Monday, May 2, 2011 - Our incredible special guest is Jane Kogan, HDSA Advocacy Manager. She is going to give us the complete explanation of the Huntington's Disease Parity Act: S. 648/HR 718 and we will talk about many facets of HDSA's National Advocacy Program. May is Huntington's Disease Awareness Month. We are going to kick it off right by talking about a new HDSA campaign "Let's Talk About Hu...

Thursday, April 21, 2011– Our incredible special guest is Dr. La Puma, a board-certified specialist in internal medicine and professionally trained chef. The leading practicing physician voice for the importance of food in health care, and a New York Times best-selling author twice, he has pioneered food-as-medicine that's tasty and life-changing. Also an award-winning TV host, he has starred in o...

Monday, our incredible special guest is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington’s Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the worl...

Happy 10th Anniversary to everyone at the HDSA Center of Excellence at the UC Davis Medical Center in Sacramento! Terry Tempkin, Co-Director and Nurse Practitioner extraordinaire will be our incredible special guest this week. She is going to share some of their Center’s accomplishments in the last decade and what’s planned for the next 10 years. Thank you for 10 awesome years of service for our H...

MAR28__This is the last of four shows in the March 4 HDSA series. Every Monday we have been showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guests tonight are Jane Kogan, MSW, and Manager of Programs & Services and Jules Greenwald, Director of Development at HDSA National in New York. We will be focusing on HD...

MAR 21__This is the third show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest tonight is Fred Taubman, Director of Marketing Development & Communications and at HDSA National in New York. We will be exploring more of HDSA's remarkable website and talkin...

MAR 14__This is the second show in the March 4 HDSA series. We will be showcasing the largest non-profit volunteer organization of its kind for the HD community. Our incredible special guest this tonight is Debra Lovecky, Director of Programs and Services at HDSA National in New York. We will be talking about some new features on the website: www.hdsa.org and other programs for education, events a...

MAR 7__This is the first show in the March 4 HDSA series. Each Monday we will be showcasing another segment of the largest non-profit volunteer organization of its kind for our HD community. Our incredible special guests are Louise Vetter, CEO and Nancy Rhodes, Director of Field Development & Operations at HDSA National in New York. The idea is to explore every aspect of HDSA’s programs and se...

Special guest Mike Ratel is Producer/Director of "On Your Mark, Get Set Mow", a movie about mower racing and raising mow money for Huntington's Disease awareness and research in MI. This is going to be a great show... so mark, and set your calendars for this one.

James Valvano has postponed his trip to Egypt for now. The exciting news is that his new film "The Faceless Faces of Huntington's Disease" is currently taking first place in the Neuro Film Festival contest. Go to this link http://www.youtube.com/watch?v=fMCYQ3IG9Ek, watch and vote. Everyone needs to see on this new, edgy, poignant film about HD. It's a black and white, visually and emotionally sti...

In loving memory of Peter Dickinson AKA “Pops” who has passed on to the Himalayas in Heaven. Join us for a fantastic show with Jonathan Dickinson who is wrapping up this courageous documentary/feature film Called “Father Spirit” about he and his dad (Pops) who has Huntington's Disease. They are traveling by motorcycle through India and the Himalayas to capture their last father-son adventure toget...

This is going to be a very exciting show with Audrey Watson. She is a marathon ultra-runner for Huntington's Disease awareness and fundraising. Whether she is running the Himalayan 100 Stage Race in October 2010, the Avalon 50 Mile Run at Catalina, the Bulldog 50K Ultra Run at Malibu Creek or the PCT 50 Mile Trail Run, Audrey is always anticipating her next step. She is an unstoppable HD advocate...