Help 4 HD Live!

Our special guest tonight is Daniel Brennan who joined Lundbeck in July 2009, after Xenazine had been developed and launched in the USA. He is Vice President and General Manager of Neurology Franchise at Lundbeck and now leads the group of people that distribute, provide information, and support Xenazine as well as other nervous system therapies for rare diseases. He enjoys meeting people in the H...

Our special guest tonight is Dr. LaVonne Goodman, a “mostly retired” internist and patient advocate who decided to help a Seattle clinic recruit patients with Huntington’s Disease (HD) and was wildly successfully at it. Her secret, she says, is having a personal relationship with many, many patients. Her husband died of HD at age 36. Since then she has seen HD patients and led support groups, buil...

Our special guests tonight are Kimberly Gibson (repeat performance) and James Valvano. We will be talking about the Faith & Hope Society again, a new addition blog to their website called “James Talk” written by James Valvano and what they are adding to their website repertoire to make it more interesting and interactive. It was such a pleasure having Kimberly on the show December 27 that we j...

Our special guest tonight is the amazing Lisa Kjer. She is a Master of Social Work for the UC Davis HDSA Center of Excellence in Sacramento, CA and works with 200+ families who come to see the center's dedicated neurologist. Lisa was hooked on social work at a very young age and has devoted her life to the helping professions. In 2001, HDSA named UC Davis a center of excellence, recognizing its ex...

Our incredible special guest tonight is Gina McGahen Becker who is doing great work to bring awareness to her community about HD. When I asked her to tell me something about herself, she immediately started telling me about how much she loves her friend and what an honor it is to be advocating for her. Here is a letter she sent to me explaining why she is doing what she is for her friend...“My nam...

Monday night our special guest is KIMBERLY GIBSON. She is gene positive for Huntington's Disease and grew up surrounded by HD. Like so many HD families, she has helplessly watched as the people she loved died in front of her. As the caregiver to her grandfather at age four and her mother's caregiver by the time she was 22, she had almost no support and nowhere to turn.... That's why Kimberly found...

This show is going to blow you away!.... Our special guest is the esteemed JAN A. NOLTA Ph. D., Director Professor, UC Davis Stem Cell Program and Institute for Regenerative Cures…. She and other amazing scientists have been working day and night to bring us the first HD Stem Cell Clinical Trial…. This is History in the making for the potential CURE of Huntington's Disease!!... DR. NOLTA joined UC...

Our special guest this show is the amazing and dynamic CHRIS FURBEE. Chris was born April 30, 1966 and tested positive (43 repeats) for the Huntington's Gene in 1996. He recently came to terms that he is in the early stages of Huntington's Disease. He has been working on a documentary about his mom and life with Huntington's Disease. The story follows him from his decision to go back home to West...

Dr. Robert Pacifici, Chief Scientific Officer from CHDI Foundation will be our special guest on the show. Dr. Pacifici will talk to us about who is CHDI, what their goals are as a foundation, the future outlook in HD research and how HD families can help them achieve their goals.

SPECIAL GUEST: Mike Brown.... Mike and Allie are very special friends of ours. Mike started the first Huntington's Disease support group on the California Central Coast in 2007. He will talk to us about the clinical trial his wife Allie has participated in. The Horizon clinical trial of Dimebon is a global collaborative multi-center, randomized, double-blind, placebo-controlled study in individual...

SPECIAL GUEST: Matty Ellison from the UK….SUBJECT: Matty is working hard on a new project called the Huntington’s Disease Youth Organization (HDYO). HDYO will support young people from the HD community all over the world….Launching in late 2011, HDYO will be the first organization to specifically support young people from the HD community. The HDYO website will provide support, educational informa...

SPECIAL GUEST: Lauren Holder.... SUBJECT 1: H.R. 678 (The HD Parity Act).... LAUREN is our incredible special guest on HELP 4 HD. She is an HD activist with the "PASSION FACTOR" and she is on a mission to educate our government about how critically important H.R. 678 is to all of our HD families.... * H.R. 678 is a Bill before Congress to require the Commissioner of Social Security to revise the m...