Help 4 HD Live!

Monday, April 23, 2012 at 3:30 pm PST/6:30 pm EST Dr. Peg Nopoulos is with the University of Iowa and her primary work has been working in Neuropsychiatry at the HD Center of Excellence at the UI Hospitals and Clinics. Her research focuses on understanding brain and behavior, using state of the art brain imaging techniques, specifically Magnetic Resonance Imaging (MRI). She is here to talk to us a...

Monday, April 16, 2012 at 3:30 pm PST/6:30 pm EST Dr. Paul Muchowsli is Associate Investigator at Gladstone Institute of Neurological Disease and Associate Professor of Neurology at UCSF in California. The major research goal of his lab is to understand the molecular mechanisims that underlie neurodegenerative disorders associated with protein musfolding and aggregation, focusing on Alzheimer's di...

Monday, April 9, 2012 at 3:30 pm PST/6:30 pm EST.   Our amazing guest tonight is Dr. Samuel Frank, Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University. Since completing his fellowship at the University of Rochester, he has been involved in many local and Huntington Study Group clinical trials and observational studies. He has served on multiple ste...

  Monday, April 2, 2012 at 3:30 pm PST/6:30 pm EST   Our very own brilliant and dedicated Dr. LaVonne Goodman will be with us again to talk about how to treat depression, insomnia and irritability in Huntington's disease. We'll also talk to her tonight about the healing power of sleep.    Find her treatment guidelines for HD on www.wehaveaface.org/hddw and www.help4hd-international.org/resources. ...

MONDAY, MARCH 26, 2012 Reach2HD is a Huntington's disease research trial sponsored by the Huntington's Study Group and Prana Biotechnology to study whether PBT2 (an investigational drug) is safe and effective and to determine if its effect on cognition and other symptoms including movement and overall function. Study requirements include 8 in-person visits over 6 months and examinations at no cost...

Saturday, March 24, 2012 ~ Our second show with the super moms of JHD. Let's talk!

Monday, March 19, 2012 at 3:30 pm  Back by popular demand and for those of you who couldn't tune in on Friday, this is a show you can not miss... Announcing James Valvano's The Huntington's Disease Project lottery winners... And lots more... HAPPY ANNIVERSARY TO YOU!

Friday, March 16, 2012...  marks the one year anniversary of James Valvano's WeHaveAFace.org. Let's honor this amazing person who has a very huge heart for juvenile Huntington's disease and Huntington's disease advocacy.  James was born and raised in New York to a loving couple Amelia and Joseph Valvano and now lives with them in Florida. Diagnosed with Huntington's disease in 2009, he vowed to us...

Monday, March 12, 2012 Our incredible special guest is Jan A. Nolta, Ph. D., the Director of the Stem Cell Program at UC Davis School of Medicine, and directs the new Institute for Regenerative Cures. The UC Davis stem cell program has over 150 faculty members collaborating to work toward stem cell-related cures for a spectrum of diseases and injuries. Dr. Nolta’s laboratory focuses on “bench to t...

MONDAY, MARCH 5, 2012 at 3:30 pm PST/6:30 pm EST It's time for The HD View ~ Ask Dr. Goodman Show!   Tonight we get to welcome back the esteemed Dr. LaVonne Goodman, Internist and owner of www. HDDrugworks.org, which she founded with her husband Nathan Goodman where at present their focus is providing information on present treatment options for Huntington's disease.    She says, “when I began tak...

Monday, February 27, 2012 -  Our incredible special guest tonight is Dr. Ellen G. Feigal, Senior Vice President, Research and Development at the CIRM, the California Institute for Regenerative Medicine.  Prior to joining CIRM in January, 2011, she was Executive Medical Director, Global Development, at Amgen,where her primary focus was in clinical development of therapeutics in hematology/oncology....

Monday, February 20, 2012 - Our incredible special guest is Sean Thompson, Public Relations Coordinator for the University of Iowa Center of Excellence and the PREDICT-HD study. Sean leads multiple efforts aimed at informing our HD community of opportunities to participate in studies like PREDICT-HD and he keeps our HD community up to date on advances being made because of people’s willingness to...

SATURDAY, February 18, 2012 - (10AM PST) - (1PM EST) We are so proud and pleased to have special guests: Janice Stephens, Tina Wooldridge, and Sherry Dempsey Byram with us to discuss their experiences with JHD.  This is a very special "Help 4 HD - The JHD View" - We will be talking with our special guests about our JH'Dears and expressing our feelings, experiences, and hopes for the future!   It i...

Monday, February 13, 2012 - (3:30PM PST - 6:30PM EST - 11:30PM UK) Our incredible guest is Clare Gibbons a Genetic Counselor at North York General Hospital.  Clare Gibbons obtained a Master of Science degree in Genetic Counseling from Sarah Lawrence College in 1996. She is currently an American and Canadian Board certified genetic counselor and works at North York General Hospital in Toronto, Cana...

Monday, February 6, 2012 - (6:30PM - EST) It's time for The HD View ~ Ask Dr. Goodman Show! Tonight we will be talking about the forth component of Huntington's Disease which our incredible special guest suggests is stigma. Dr. Lavonne Goodman states Huntington's disease is commonly characterized as a trilogy of overlapping disorders that include cognitive, motor, and psychiatric components, but a...

  MONDAY, JANUARY 30, 2012 - Our incredible special guset is Dr. Mary Edmondson, a medical physician and a psychiatrist from Duke University, North Carolina who is also a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD), a new and exciting organization that provides education, medical and social service care for Huntington's (HD) families in North Carolina.  And v...

Monday, January 23, 2012 - Tonight our incredible special guest is Judy Roberson from Sacramento, California. We want to thank her for the advocacy work she has done for many years for Huntington’s disease. Tonight we honor Judy Roberson, President of the Joseph P Roberson Foundation. She is an HD advocate extraordinaire with a flare and she is here to talk about her role as President of JPRF. Jud...

Tuesday, January 17, 2012 - Our incredible special guest is Carla Muller from A Place For Mom. The Nation's largest senior care information service, Carla with A Place For Mom is an amazing resource for assisted living and nursing home placement.    Carla Muller, has ten years of experience in the senior housing field. She has helped hundreds of seniors and their families find the kind of living t...

Monday, January 2, 2012 – Our incredible special guest is Dr. LaVonne Goodman who has graciously agreed to participate in our program series “Ask Dr. Goodman”. She is an expert in Internal Medicine and has treated Huntington’s patients for many years. Tonight’s topics will be IVF/PGD, termination and other options. These are very sensitive subjects for discussion, so we will take the utmost care a...

  Monday, December 26, 2011 - Back by popular demand, Dr. John La Puma a board-certified specialist in internal medicine and professionally trained chef will be talking about ways to help our H’Dear caregivers and community look, feel and live better through healthy eating and living. Recorded live on April 21, this episode is befitting to wrap up the year and start us out on the right path to a h...

Monday, December 19, 2011 - Our incredible special guest is Dr. Christopher Ross, PI for the HSG sponsored PREQUEL Coenzyme Q10 study. Dr. Ross is Professor of Psychiatry, Neurology and Neurosciences at Johns Hopkins. In their study of neuropsychiatric disorders, Dr. Ross and his research team focus on Huntington's disease and Parkinson's disease, and use insights from these disorders to approach...

Monday, November 28, 2011– Our incredible special guest tonight is Katie Jackson, author of Ferris Wheel and advocate extraordinaire for Huntington’s disease. Katie is an inspiring author in Sacramento, California and she began writing Ferris Wheel in 2006.    Although Ferris Wheel is a fiction novel, many of the events in the book are actual experiences of the author. In 2006, Katie Jackson’s hus...

November 21, 2011 - Happy Anniversary Help 4 HD on Blog Talk Radio! Tonight we will be honoring Melissa Biliardi for her outstanding dedication and advocacy for the JHD/HD community!  Melissa is a pioneer!  A year ago, she made the decision to pilot the first radio show specifically for Huntington's disease. Her efforts have brought us insight, education, and so many valuable resources over the ye...

PRE-RECORDED: Our incredible special guest today is Stacy Brookhyser, mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks.   The Procedure: IVF/PGD Yes, you can stop Huntington's Disease in the future generations of your family! With the help of skilled medical professionals, YOU have the ability to prevent...

Monday, October 31, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time – Tonight we will be highlighting an incredible book by author John Lerma, MD titled “Into The Light”. Maybe you’ve heard about this poignant book. It’s an accounting of real life stories about angelic visits and other pre-death experiences. If you haven’t already read it, this book comes highly recommended. It will leave you feeli...