Help 4 HD Live!

Monday, February 20, 2012 - Our incredible special guest is Sean Thompson, Public Relations Coordinator for the University of Iowa Center of Excellence and the PREDICT-HD study. Sean leads multiple efforts aimed at informing our HD community of opportunities to participate in studies like PREDICT-HD and he keeps our HD community up to date on advances being made because of people’s willingness to...

SATURDAY, February 18, 2012 - (10AM PST) - (1PM EST) We are so proud and pleased to have special guests: Janice Stephens, Tina Wooldridge, and Sherry Dempsey Byram with us to discuss their experiences with JHD.  This is a very special "Help 4 HD - The JHD View" - We will be talking with our special guests about our JH'Dears and expressing our feelings, experiences, and hopes for the future!   It i...

Monday, February 13, 2012 - (3:30PM PST - 6:30PM EST - 11:30PM UK) Our incredible guest is Clare Gibbons a Genetic Counselor at North York General Hospital.  Clare Gibbons obtained a Master of Science degree in Genetic Counseling from Sarah Lawrence College in 1996. She is currently an American and Canadian Board certified genetic counselor and works at North York General Hospital in Toronto, Cana...

Monday, February 6, 2012 - (6:30PM - EST) It's time for The HD View ~ Ask Dr. Goodman Show! Tonight we will be talking about the forth component of Huntington's Disease which our incredible special guest suggests is stigma. Dr. Lavonne Goodman states Huntington's disease is commonly characterized as a trilogy of overlapping disorders that include cognitive, motor, and psychiatric components, but a...

  MONDAY, JANUARY 30, 2012 - Our incredible special guset is Dr. Mary Edmondson, a medical physician and a psychiatrist from Duke University, North Carolina who is also a founder of the North Carolina Center for the Care of Huntington's Disease NC-CCHD), a new and exciting organization that provides education, medical and social service care for Huntington's (HD) families in North Carolina.  And v...

Monday, January 23, 2012 - Tonight our incredible special guest is Judy Roberson from Sacramento, California. We want to thank her for the advocacy work she has done for many years for Huntington’s disease. Tonight we honor Judy Roberson, President of the Joseph P Roberson Foundation. She is an HD advocate extraordinaire with a flare and she is here to talk about her role as President of JPRF. Jud...

Tuesday, January 17, 2012 - Our incredible special guest is Carla Muller from A Place For Mom. The Nation's largest senior care information service, Carla with A Place For Mom is an amazing resource for assisted living and nursing home placement.    Carla Muller, has ten years of experience in the senior housing field. She has helped hundreds of seniors and their families find the kind of living t...

Monday, January 2, 2012 – Our incredible special guest is Dr. LaVonne Goodman who has graciously agreed to participate in our program series “Ask Dr. Goodman”. She is an expert in Internal Medicine and has treated Huntington’s patients for many years. Tonight’s topics will be IVF/PGD, termination and other options. These are very sensitive subjects for discussion, so we will take the utmost care a...

  Monday, December 26, 2011 - Back by popular demand, Dr. John La Puma a board-certified specialist in internal medicine and professionally trained chef will be talking about ways to help our H’Dear caregivers and community look, feel and live better through healthy eating and living. Recorded live on April 21, this episode is befitting to wrap up the year and start us out on the right path to a h...

Monday, December 19, 2011 - Our incredible special guest is Dr. Christopher Ross, PI for the HSG sponsored PREQUEL Coenzyme Q10 study. Dr. Ross is Professor of Psychiatry, Neurology and Neurosciences at Johns Hopkins. In their study of neuropsychiatric disorders, Dr. Ross and his research team focus on Huntington's disease and Parkinson's disease, and use insights from these disorders to approach...

Monday, November 28, 2011– Our incredible special guest tonight is Katie Jackson, author of Ferris Wheel and advocate extraordinaire for Huntington’s disease. Katie is an inspiring author in Sacramento, California and she began writing Ferris Wheel in 2006.    Although Ferris Wheel is a fiction novel, many of the events in the book are actual experiences of the author. In 2006, Katie Jackson’s hus...

November 21, 2011 - Happy Anniversary Help 4 HD on Blog Talk Radio! Tonight we will be honoring Melissa Biliardi for her outstanding dedication and advocacy for the JHD/HD community!  Melissa is a pioneer!  A year ago, she made the decision to pilot the first radio show specifically for Huntington's disease. Her efforts have brought us insight, education, and so many valuable resources over the ye...

PRE-RECORDED: Our incredible special guest today is Stacy Brookhyser, mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks.   The Procedure: IVF/PGD Yes, you can stop Huntington's Disease in the future generations of your family! With the help of skilled medical professionals, YOU have the ability to prevent...

Monday, October 31, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time – Tonight we will be highlighting an incredible book by author John Lerma, MD titled “Into The Light”. Maybe you’ve heard about this poignant book. It’s an accounting of real life stories about angelic visits and other pre-death experiences. If you haven’t already read it, this book comes highly recommended. It will leave you feeli...

Monday, October 24, 2011 - Our incredible special guest is Dr. LaVonne Goodman from HD Drug Works. Though the HDSA has provided the "A Physicians Guide to the Management of Huntington's Disease" for more than a decade (3rd edition recently available), there have been no published guides that have been peer-reviewed by physician leaders from the EHDN or HSG.  Fortunately over the last 3 years both...

Monday, October 17, 2011 – Our incredible special guest is Frances Saldaña Advocacy Chairman for the HDSA OC Chapter; Patient Advocacy Committee Member with the Sue and Bill Gross Stem Cell Research Center at UC Irvine; and she was Keynote Speaker at the World Symposium of the Huntington Study Group is October this year. Frances’ journey as an advocate for Huntington’s disease patients started thi...

  Tuesday, October 11, 2011 at 6:30 pm ET/11:30 pm UK time - Our incredible special guest tonight is Matt Ellison, founder of HDYO (Huntington’s Disease Youth Organization). Launching in January 2012, HDYO is an organization that will focus specifically on supporting young people (kids, teens and young adults), all around the world, that are impacted by Huntington’s disease. The HDYO goal is to cr...

Monday, October 10, 2011 - Our incredible special guests tonight are Jane Paulsen and Stacie Vik from the University of Iowa. UI is currently recruiting individuals who have shown features of JHD before the age of 20 to be a part of a Natural History Study to research the effectiveness of clinical measurements relating to Juvenile Hun tington’s Disease. This study will compare the current adult ve...

Tuesday, October 4, 2011 – Tonight is the special premier of The HD View a new HELP 4 HD pilot program where we will be discussing current topics and concerns of the JHD and HD community. The goal is to get you talking about what matters to you. Let’s start talking about the unspoken issues that affect our H'Dears. It's time to step out of our comfort zone and talk about the real issues. Our incre...

Tuesday, September 27, 2011 - Our incredible special guest is Joe Giuliano, Director of Clinical Operations at CHDI Foundation, Inc. He received his degrees in Chemistry and Nursing at the Catholic University of America in Washington, DC and trained in the Six Sigma and Lean Six Sigma methodologies. He applies these skills to develop more efficient clinical trial management processes. He joined CH...

Tuesday, September 12, 2011 – Our incredible special guest tonight is Lauren Holder, woman on a mission to bring JHD/HD awareness and advocacy to the World. She is Chapter President of the HDSA North Carolina Chapter in Mebane, NC. She is also participating in the PREDICT-HD Study because she wants to contribute to finding treatments and a cure for HD. “Do it and help the HD community,” she says,...

Tuesday, September 6, 2011 - Our incredible special guests tonight are Chris and Lorraine Stiehl who are the Patient Advocate Coordinators for CIRM - the California Institute for Regenerative Medicine - the state stem cell agency. This agency was created by Proposition 71 in 2004, when California voters overwhelmingly authorized a ten year bond issue of $3 billion for stem cell research. www.cirm....

Monday, August 29, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time– Our incredible special guest tonight is Diana Dunkelberger from the Paul Muchowski Lab at the Gladstone Institute, UC San Francisco in California. She recently received the HDSA Donald A. King Student Fellowship which gave her the financial resources to dedicate her summer to HD research. Diana aspires to become a Neurologist and c...

Our incredible special guest is Elisabeth (Lisa) de Blieck, MPA CCRC is a Program Manager at the Clinical Trials Coordination Center (CTCC), which is part of the Center for Human Experimental Therapeutics at the University of Rochester. Ms. de Blieck has over 20 years of experience in administrative project management and clinical trials coordination. She has been the senior project manager for se...

Monday, August 15, 2011 – Our incredible special guest tonight is James Valvano and it’s time for an update about his international film project “The Faceless Faces of Huntington’s Disease: I am No Longer A Faceless Face”. He has recently returned from New York where he filmed two of his A-Team members. This is the first of many segments that need to be filmed. What started out as a short film tha...