Help 4 HD Live!

  TUESDAY, OCTOBER 14, 2014 We are very pleased to have Dr.’s Daniel Van Kammen and Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She will be interviewing Dr. Daniel Van Kammen, a researcher in the area of Huntingdon’s Disease research. We heard from Lorna a few weeks ago when she discusse...

  Tonight our topic for discussion is “Gastrointestinal Problems in Huntington's disease” Also read Dr. Goodman’s article http://hddrugworks.org/index.php?option=com_content&task=view&id=341&Itemid=30 Dr. Goodman writes, “Human study shows that inflammation in the esophagus (swallowing tube) and stomach is common and occurs more frequently in Huntington's disease (HD) as it progresses....

Tonight our incredible special guest is none other than the famous and super powerful Kristen Powers, creator of “Twitch” the documentary about her journey with Huntington’s disease, the possibility that she has inherited the same fate as her mother and the struggle about whether or not to test. Kristen is junior at Stanford University, created her first documentary, Twitch, following her genetic...

Tonight we welcome back to the show, Dr. Lorna Speid who works in the pharmaceutical industry as a regulatory affairs and drug development consultant. We will be talking about the role of the PI (Principal Investigator) in clinical trials. After working in the pharmaceutical industry for many years, Dr. Speid saw a need to provide information to patients about clinical trials that would allow them...

Pre-Recorded I am extremely honored and excited to introduce our incredible special guest/s tonight Dr. Vicki Wheelock/and Teresa Tempkin RNC, MSN, ANP… Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and Co-director, Northern California Kaiser Pallidotomy...

PRE RECORDED ON 3-5-12 Ask Dr. Goodman is back... tonight we ar going to talk about why a healthy life style is important in HD.  A big part of the answer include factors that promote the process of neuroplasticity. The "plasticity" part of neuroplasticity refers to capacity to change, similar to how plastic is malleable and can be made into many shapes.  Similarly, neuroplasticity describes the a...

Today, our incredible special guest is Carla Muller, Eldercare Advisor at A Place For Mom, connecting families to senior care and dementia care. A Place For Mom is the Nation's largest senior care information service. Learn about assisted living facilities, nursing homes, residential care homes and facilities that care for folks who suffer with dementia. With resources about home care, Alzheimer's...

TUESDAY, AUG 19, 3:30 PM PST/6:30 PM EST - Call in: 310-982-4227 or toll free: 877-497-4103 Tonight our incredible special guest is the intelligent and beautiful Mona Gable, a freelance writer in Los Angeles and the author of “Blood Brother: The Gene That Rocked My Family.” The book is available on SheBooks.net. It’s a short read, but it’s very power packed with accounts of her personal journey wi...

TUESDAY, AUG 5, 2014 - 3:30 PM PST/6:30 PM EST Swallowing difficulty and Huntington's disease Posted August 3, 2014, by LaVonne Goodman, M.D. Dysphagia, or difficulty swallowing, is a big problem in Huntington's disease (HD), but surprisingly little is known about it.  It is not known how early it begins, or how symptoms and swallowing dysfunction progress over the stages of HD.  Further, even les...

We are very pleased to have Dr. Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She has a practice in the development of new treatments for rare diseases. After working for Sanofi Winthrop in the United Kingdom, Ciba Geigy at headquarters in Switzerland, and Novartis in Switzerland, she move...

Tonight we will talk about preimplantation genetic diagnosis or (PGD) for Huntington’s disease with Dr. Goodman. Read her article on www. HDDrugworks.org titled: PGD for the Prevention of HD. http://hddrugworks.org/index.php?option=com_content&task=view&id=336&Itemid=30         She writes… “For more than a decade, couples at risk for Huntington's disease have had the option to conceive...

TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a difference in m...

Happy Tuesday everyone! Tonight we are going to get an update on the HSG Clinical Trial for Huntington's disease called First-HD and ARC-HD. Our incredible special guests are: Samuel Frank, MD – First-HD and ARC-HD PI Claudia Testa, MD, PhD – First-HD and ARC-HD co-PI David Stamler, MD – CMO Auspex Pharmaceuticals Sarah Janicki, MD, MPH – Site Investigator, Columbia for First-HD We will be discuss...

PreRecorded 2-11-2014 Our incredible special guest: Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and Co-director, Northern California Kaiser Pallidotomy Program. Vicki Wheelock is a neurologist with special interests in pallidotomy (neurosurgical proced...

Tonight our incredible special guest is: Suzanne Pontow, PhD, is a cell biologist focusing her research on neonatal stem cells at the Institute for Regenerative Cures within the UC Davis Health System in Sacramento.  Dr. Pontow received her BS in General Sciences from University of Iowa in 1985, and her PhD in Cell and Molecular Biology from Washington University School of Medicine in 1995. After...

Tonight Dr. Goodman is back with us… we will be talking with her about the role we take as caregivers… the hazards and the rewards. Read her newest article “Caregiving: A Risky Profession?” posted on May 4th on www.hddrugworks.org. Direct Link to The Article: http://hddrugworks.org/index.php?option=com_content&task=view&id=335&Itemid=30 In this article she talks about “Caregiving for a...

TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing and incredible guests here to talk about Regenerative Medicine Foundations upcoming Conference and Gallery Opening event which will be held at the Claremont...

PRE-RECORDED TUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree in science specializing in Medical Genetics at the University of British Columbia. Emily's thesis project focused on the epidemiology of HD. This is ve...

Chris Furbee and Matt Austin are here with us to talk about their recently finished independent films about their lives and perspectives living with Huntington's disease. Robert Rippberger produced and finished Matt Austin's film "Breaking the Cycle" and is now promoting both films as a double feature. Chris Furbee's film is titled "Huntington's Dance".

Tonight our incredible special guest is Margaret D’Aiuto Martarano de Gallardo. Born in California she becomes a nurse, meets and marries her husband Dr. Luis Gallardo Ayala, and moves to Mexico. She has seven children and at the age of 61, her husband is given the news that he might have HD and he passes in 1992. We are priviledged to interview this amazing woman of 90 years young about her trial...

Tuesday, April 1, 2014 - It's time for the Ask Dr. Goodman Show! Tonight we will be discussing these articles with Dr. Goodman: What is Cysteine? And what does it have to do with Huntington's Disease? Posted March 27, 2014 by LaVonne Goodman, M.D. Raptor's Clinical Trial for Cysteamine in Huntington's: Cause for Optimism? Posted March 1, 2014 by LaVonne Goodman, M.D. Call into the show, ask Dr. Go...

Wednesday, March 25, 2014 Tonight's incredible special guest is Dr. Albert Yu from Omeros here to talk about their Phase II clinical trial with OMS824 a PDE10 inhibitor for Huntington's disease. Phase II is for tolerability, safety and pharmacokinetics. Omeros is looking for 120 patients with Huntington's disease who will be randomized to receive placebo or one of three doses of OMS824 for the tre...

Tuesday, March 11, 2014 Our incredible special guest today is Dr. Ellen Feigal from CIRM. Tune in for an update from California Institute for Regenerative Medicine.

Pre-recorded We are talking about body discomfort in Huntington's disease. Like my sweet Jimbo, many of our HD and JHD individuals suffer from body pain. We must study this in order to find treatments and therapies. Listen to Dr. Goodman speak about new studies concerning this horrific conditon in HD.

Pre-recorded Dr. Deverman from Cal Tech is offering our listeners a series of educational shows outlining gene therapy and what science is happening right now for Huntington's disease. Tune in for Part 1 of Gene Therapy 101...