Help 4 HD Live!

Happy Tuesday everyone!  This is the Ask Dr. Goodman Show and this is Melissa Biliardi, your host. Tonight our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show. Thank you 93,000 listeners for tuning in to Help4HD Radio. Tonight we are discussing the drug Pridopidine. Dr. Goodman writes in her recent article: Pridopidine and the Hope fo...

Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's  newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials toge...

TUESDAY JUNE 2, 2015 - 3:30 pm PST Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State.  As many of you know Huntington’s disease sufferers sometimes end up in homeless situations.  Well, tonight we are going to meet Rev. Jim Bridges who does amazing work to help the homeless and we also get to hear fr...

Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replac...

Tuesday, April 14 - 3:30 pm The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over ti...

What is Laqunimod?  Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS).  This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinica...

TUESDAY, MARCH 31 - 1:00 PM PST Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes. Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has e...

TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa.  We will be talking about the clinical study called Kids-HD/Kids-JHD.  This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children.  Tune in and...

Tuesday, March 10, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guest is Margaret Tollerton who is the Statewide Outreach Director for the Missouri Cures Education Foundation. She brings with her three decades of marketing, communications and nonprofit experience. A graduate of the University of Missouri, her personal and professional life has been dedicated to improving the lives o...

ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article... "PRIDE-HD: Why We Should Bother" Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this?  Some think "why bother", particularly when testing a drug they may perceive as a failure in ea...

Tonight, we have two very incredible special guests here with us to share their story and mission to raise research dollars to find the cure for Huntington’ disease. Trey Gray (touring drummer in Nashville) and Doug Michael (recording engineer), best friends since their teenage years; compadres in music, and now connected forever in the life battle that Trey must endure with Huntington’s disease....

TUESDAY, FEBRUARY 3, 2015 - 3:30 PM PST/6:30 PM EST Tonight Dr. Goodman will be talking about aggression in Huntington’s disease. A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of aggressive behaviors between 22% (for clinic patients) and 66% (for hospitalized patients) among individuals with HD. What do they mean by aggression, an...

TUESDAY, JANYARY 27, 2015 - 11:00 am PST/2:00 pm EST Tonight our incredible special guest is Attorney Esther Wang, a very special person to our Huntington's community in the Riverside County, California area and someone who has been providing quality legal services since 1991. Ms. Wang is an accredited attorney by the Department of Veterans Affairs to represent veterans and their family members. S...

Tuesday, January 12, 2015 - 1:30 pm PST/3:30 pm CST/4:30 pm EST Dr. Victor Sung is Assistant Professor, Department of Neurology, Division of Movement Disorders at the University of Alabama at Birmingham. This afternoon we will talk about his HD clinic at UAB and the work he is doing with clinical trials.  Tune in to a very interesting and educational show.

Tuesday, January 6, 2015 Happy New Year! Tonight Ask Dr. Goodman about deciphering clinical trial data. We just happen to have some very exciting positive topline results to talk about from Auspex Pharmaceuticals Phase 3 registration trial of SD-809 for chorea associated with Huntington's disease. Read the Auspex press release here: LINK Get your questions ready and tune into the show. Call 877-49...

Hello everyone and Happy Holidays to all. Tonight we are re-running Celebrating The Advocates. These four amazine women who are JHD/HD advocates and caregivers deserve gold medals in my book. We wish to honor them and encourage them in this lifes journey. We all need to help and support eachother, especially at this time of year. Enjoy the show! Super incredible JHD/HD advocates tonigh: Roberta Br...

Tuesday, December 16, we are celebrating all of our amazing JHD/HD advocates who give of their time and energy so willingly and freely to make a difference for their loved ones and for our community members who are suffering from Juvenile Huntington's disease and Huntington's disease. Tonight we will be speaking with four incredible special guests: Stacey Sargent, Roberta Brink, Sharon Thomason, a...

Tuesday, December 9, 2014 3:30 pm PST/6:30 pm EST With suprise guest HD researcher Dr. Leslie Thompson from the University of California at Irvine and Super HD Advocate Warrior, Frances Saldana, will be here to give us an update on HD research at UCI and the 10th annual WSCS (World Stem Cell Summit) that just happened in San Antonio, TX, December 3-5, 2014. Every year GPI (Genetics Policy Institut...

Tuesday, December 2, 2014 - 3:30 pm PST/6:30 pm EST Tonight we will be discussing Dr. Goodman's latest article "2014: A Yin-Yang year for HD". She writes: "Particularly during this past year, living with Huntington's disease (HD) has been full of its ups and downs. First there was the hope in ongoing clinical trials of both coenzyme-Q-10 and creatine. Then there was sadness and fear that came with...

This show was pre-recorded. We wish to play this show today as Help 4 HD Director of International Affairs, Daniel Medina is in Mexico City right now visiting Margaret and her center.  Margaret D’Aiuto Martarano de Gallardo was born in California she become a nurse, meet and married her husband Dr. Luis Gallardo Ayala, and moved to Mexico. She has seven children and at the age of 61, her husband i...

Tuesday, November 18, 2014 – 3:30 pm PST/6:30 pm EST Our incredible special guest is Dr. Andrew McGarry from Cooper University NJ, who is Co-PI for the PRIDE-HD study in the USA, which is sponsored by Teva Branded Pharmaceutical Products R&D and coordinated by HSG (Huntington Study Group). We will be talking about the ongoing global research study, which is a Phase II clinical research study o...

Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.   We will be discussing the following information: I.             HDSA Overall Implementation of Strategic Plan guides everything we do with clear goals and practices to su...

TUESDAY, NOVEMBER 4, 2014 Dr. Goodman writes, “Bummed" was what this author felt after the recent announcement of (HD).  We can put some positive spins on recent trial failures; we have learned how to run large clinical trials, we can learn from negative outcomes, and best of all hundreds of HD individuals are freed up to participate in other (potentially better) trials.  But the reality is that t...

PRE-RECORDED - TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a...

PRE-RECORDED TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing and incredible guests here to talk about Regenerative Medicine Foundations upcoming Conference and Gallery Opening event which will be held at...