Help 4 HD Live!

Monday, February 29 at 3:30 pm PST/6:30 pm EST Join us for a really fantastic show with sisters Dr. Mary Edmondson and Ann Lassiter of HD Reach in North Carolina. Mary the founder of HD Reach and her group has been problem solving about what prevents the HD community from accessing care for their families in North Carolina. Tune in to hear about this very interesting and amazing work that they do...

Tonight our incredible special guest is Kevin McCormack, the communications director at CIRM, California’s stem cell institute. Kevin is also a dear friend of Help4HD and was a featured keynote speaker at our first symposium in 2014. He considers himself to be the official translator for the agency, working to turn complex language about equally complex science into everyday English that anyone, i...

Tuesday, January 12, 2016 - 3:30 pm PST/6:30 pm EST Huntington's Disease Care Posted January 10, 2016 by LaVonne Veatch Goodman, M.D. There have been a number of studies about the impact and burden of Huntington's disease (HD) on both those affected and their family carers. Though there are many other factors, the major recurring theme boils down to "lack of care".  This includes lack of access to...

TUESDAY, DECEMBER 15, 2015: 3:30 PM PST The Huntington Study Group (HSG) hosted more than 400 attendees from around the world that included expert clinicians, researchers, and coordinators of clinical studies at their annual meeting in late October. Rounding out this group were representatives from several drug companies, and most importantly individuals and families affected by HD.  The highlight...

TUESDAY, OCTOBER 27, 2015 - 3:30PM PST/6:30 PM EST Death with Dignity Law is the topic of our show today. This is not an easy topic to talk about, unless, you are facing an ultimately fatal condition with debilitating pain and suffering which has no hope of improvement or cure. Some say this is a choice that we as humans should have, others say it’s playing God. Today’s discussion is going to take...

TUESDAY, OCTOBER 6, 2015 - 3:30 pm PST/6:30 pm EST We will be talking about Dr. Goodman's recent article: Antipsychotics and Tetrabenezine: More Rapid Pregression of HD? Dr. Goodman writes... In a recent publication in the Journal for Huntington's Disease, Tedroff and collaborators report that antidopaminergic (antipsychotic and tetrabenazine) drugs were associated with more rapid progression of H...

TUESDAY, SEPT 22, 2015 ~ 2:00 PM PST/5:00 PM EST Tonight we have two of our most favorite incredible special guests, Dr. Karen Elta Anderson, Director at Georgetown/MedStar HD Clinic and Dr. Andrew Feigin, Director at the HD Center North Shore-LIJ Health System. Both are such esteemed medical professionals and well loved by the families whose lives they touch. They are super stars of Huntington’s...

TUESDAY, SEPTEMBER 15 - 3:30 pm PST/6:30 pm EST Happy Tuesday everyone!  This is Melissa Biliardi, your host. Our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show.  Thank you 95 thousand listeners for tuning in to Help4HD Radio. Five years ago I never dreamed that we would be closing in on 100 thousand listeners and 220 episodes. I am...

FRIDAY, AUGUST 14, 2015: 2:00 PM EST Tonight we have a very special show with Dr. Andrew Feigin, Professor of Neurology and Director of the Huntington’s Disease Center at North Shore University Hospital and the Director of the Laboratory of Experimental Therapeutics for Movement Disorders at The Feinstein Institute for Medical Research of the North Shore – LIJ Health System in Manhasset, NY.  Dr....

THURSDAY, AUGUST 13, 2015: 6:30 PM EST Tonight we have a very special show with Dr. Ottavio V. Vitolo a neuropsychiatrist and Medical Director at Pfizer Inc. He is the Research Project Lead and Global Clinical Lead for the PDE10 in Huntington’s disease program at Pfizer. We will be discussing the new clinical study for Huntington's disease called Amaryllis. Tune in and meet a incredible brillian m...

Happy Tuesday everyone!  This is the Ask Dr. Goodman Show and this is Melissa Biliardi, your host. Tonight our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show. Thank you 93,000 listeners for tuning in to Help4HD Radio. Tonight we are discussing the drug Pridopidine. Dr. Goodman writes in her recent article: Pridopidine and the Hope fo...

Tuesday, June 30, 2015 3:30 pm PST/6:30 pm EST HDSA's Senior Director, Mission and Scientific Affairs, Dr. George Yohrling will be with us to share information about HDSA's  newly launched HDTrialFinder.org site. Together with HD Drug Works, HD Buzz, HSG, Huntington Society of Canada, and CHDI, Help 4 HD International is proud to partner in this effort to bring education about clinical trials toge...

TUESDAY JUNE 2, 2015 - 3:30 pm PST Tonight we have a special show with two of Dr. Goodman’s incredible friends who are working directly with the homeless community in Washington State.  As many of you know Huntington’s disease sufferers sometimes end up in homeless situations.  Well, tonight we are going to meet Rev. Jim Bridges who does amazing work to help the homeless and we also get to hear fr...

Let's talk about caregiving!  Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones.  Many of us are dealing with so much loss before the loss and after the loss of our loved ones.  If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replac...

Tuesday, April 14 - 3:30 pm The amazing, incredible, fantastic Jimmy Pollard is going to be with us tonight.  Jimmy has quite a speaking schedule these days and is on a mission to educate about clinical trials, namely Enroll HD (http://www.enroll-hd.org/), which is a worldwide observational study for Huntington’s disease families. This study will monitor how the disease appears and changes over ti...

What is Laqunimod?  Laquinimod is an experimental drug from TEVA Pharmaceuticals that has already been tested in previous clinical trials in several diseases including Multiple Sclerosis (MS).  This drug is thought to affect (or modulate) immune activity by shifting an injurious inflammatory situation to one that is more protective and anti-inflammatory. There is also evidence from various clinica...

TUESDAY, MARCH 31 - 1:00 PM PST Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes. Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has e...

TUESDAY, MARCH 17, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guests are Dr. Peg Nopoulos, Sonia Slevinski and Jane Kerr from the University of Iowa.  We will be talking about the clinical study called Kids-HD/Kids-JHD.  This study is sponsored by CHDI and is an ongoing study to help determine what is the best care protocol for the care and assessment of JHD children.  Tune in and...

Tuesday, March 10, 2015 3:30 pm PST/5:30 pm CST Tonight our incredible special guest is Margaret Tollerton who is the Statewide Outreach Director for the Missouri Cures Education Foundation. She brings with her three decades of marketing, communications and nonprofit experience. A graduate of the University of Missouri, her personal and professional life has been dedicated to improving the lives o...

ON HELP4HD RADIO Tuesday, March 3, 3:30 pm PST/6:30 pm EST Dr. Goodman writes about the Pride-HD (Pridopidine) study in her recent article... "PRIDE-HD: Why We Should Bother" Recruitment is not going well for PRIDE-HD, an important clinical trial now enrolling for Huntington's disease (HD). Why is this?  Some think "why bother", particularly when testing a drug they may perceive as a failure in ea...

Tonight, we have two very incredible special guests here with us to share their story and mission to raise research dollars to find the cure for Huntington’ disease. Trey Gray (touring drummer in Nashville) and Doug Michael (recording engineer), best friends since their teenage years; compadres in music, and now connected forever in the life battle that Trey must endure with Huntington’s disease....

TUESDAY, FEBRUARY 3, 2015 - 3:30 PM PST/6:30 PM EST Tonight Dr. Goodman will be talking about aggression in Huntington’s disease. A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of aggressive behaviors between 22% (for clinic patients) and 66% (for hospitalized patients) among individuals with HD. What do they mean by aggression, an...

TUESDAY, JANYARY 27, 2015 - 11:00 am PST/2:00 pm EST Tonight our incredible special guest is Attorney Esther Wang, a very special person to our Huntington's community in the Riverside County, California area and someone who has been providing quality legal services since 1991. Ms. Wang is an accredited attorney by the Department of Veterans Affairs to represent veterans and their family members. S...

Tuesday, January 12, 2015 - 1:30 pm PST/3:30 pm CST/4:30 pm EST Dr. Victor Sung is Assistant Professor, Department of Neurology, Division of Movement Disorders at the University of Alabama at Birmingham. This afternoon we will talk about his HD clinic at UAB and the work he is doing with clinical trials.  Tune in to a very interesting and educational show.

Tuesday, January 6, 2015 Happy New Year! Tonight Ask Dr. Goodman about deciphering clinical trial data. We just happen to have some very exciting positive topline results to talk about from Auspex Pharmaceuticals Phase 3 registration trial of SD-809 for chorea associated with Huntington's disease. Read the Auspex press release here: LINK Get your questions ready and tune into the show. Call 877-49...