Help 4 HD Live!

SHAYP (Scottish Huntington's Association Youth Project) has existed for 15 years and provides support to young people aged 8-25 living in families impacted by Huntington's disease throughout Scotland. SHAYP provide one to one support, group work sessions, group activities, residential camps and summer camps throughout the year, along with providing telephone/email/text support and social media int...

Join us to hear Deena Cannastraci interview social worker Lisa Mooney from UC Davis about topics that will help families living with a child with Juvenile Huntington's disease.

Tune in to hear Dr. Goodman speak about Akathisia. Akathisia isa state of agitation, distress, and restlessness that is an occasional side-effect of antipsychotic drugs.  visit www.hddrugworks.com to read the whole article about "The Problem(s) with Drug Treatment for HD."  

2010 was the start for all involved with the foundation, Talks with MPS; Angela Constance, Fiona Hislop and then Scotland's First Minister; Alex Salmond to ask them to support our foundation so we could achieve our goals and let Scotland be HD / JHD AWARE.  The foundation was awarded charity status April 2011. 2016 Scotland first minister Nicola Sturgeon is well aware of the work the foundation ca...

Tune into to hear about all that went on at this years Florida's Police Chiefs Conference. Help 4 HD International had a booth there and was able to bring HD awareness to this very important event!

We are excited to have Roshni Bhatt on Help 4 hd Radio to dicuss her research and background in studying Huntington's disease.  Here is Roshni Bhatt'sresearch interest from her CV. Research Interest: I have designed an in-silico biochemical pathway for inflammation focusing glucocorticoids receptor signaling. This will help in easy target reorganization and lead generation. My research includes wo...

GRAPHICS: During the day I am a graphic designer. My wife, Kathy went from being a fine artist doing mixed media sculptural pieces to helping me in my design business. CAREGIVING: For over ten years, I was my late wife Kathy's full-time caregiver. She passed away in October from Huntington's Disease. "HD" is the genetic brain disease that took the life of songwriter Woody Guthrie. Kathy was an art...

Dr. Goodman has a open show today where she will answer questions from the community. 

Tune in to hear Dr. Goodman talk about the genetic testing criteria associated with Huntington’s disease. There has been a lot of confusion within the community about genetic testing criteria and what it means. If anyone has questions for Dr. Goodman on this topic or would like to share your story, please tune in and join the chat room, or you can email your questions directly to our host, Katie J...

Two moms, one at the beginning of her journey and one at the end of her journey, talk about raising a child with JHD. This will be a show full of advicefor families living with JHD from the people who know best, the JHD families.

Samuel Frank is a movement disorder neurologist at Beth Israel Deaconess Medical Center (BIDMC), a teaching hospital for Harvard Medical School. After completing his residency and fellowship at the University of Rochester, he joined the neurology faculty at Boston University from 2004 to 2015. Dr. Frank serves as the principal investigator for a Huntington Study Group study and on the HSG executiv...

Deena is a wife and mother of three beautiful children. Her husband was diagnosed with HD two years ago and is now in the mid stages of the disease. Most recently, her youngest child was diagnosed with childhood-onset JHD at age 4. Her other 2 kids remain at risk for the disease. Deena lives in Florida, where she enjoys spending time with her kids, cooking, reading, and advocating for the HD commu...

Therese Crutcher-Marin, who has a Masters in Health Care Administration, is retired from Sutter Auburn Faith Hospice, having worked in health care for twenty years. She is publishing her first non-fiction book, a heartfelt memoir, whose proceeds will be donated to the Huntington’s Disease Society of America. She lives in Auburn with her husband, John Marin, the surviving sibling of a family devast...

Tune in to hear Dr. Kyle Fink and Dr. Peg Nolpoulos give us a overview and answer questions about their presentations they recently gave at Help 4 HD International Symposium, Sacramento. https://vimeo.com/166162213 https://vimeo.com/166162226 https://vimeo.com/166162235 https://vimeo.com/166220289

Wednesday, May 18 at 1:00 pm PST/4:00 pm EST We are so honored and priviledged to have Dr. Nancy Wexler on Help4HD Live! The "Blond Angel" the "Gene Hunter" as she is so endeard by her subjects, has devoted her life and career as a Geneticist to finding a cure for Huntington's disease which took her mother and many other family members. Find her video interview on One on 1 Profile: Geneticist Dr....

The Huntington Study Group is a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). HSG has the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe, dedicated to seeking treatments that make a diff...

Join us to hear Dr. Goodman speak about psychosis. Pyschosis is a symptom associated with Huntington's disease that can have a great impact on familes. Psychosis, like many psychiatric symptoms, may have been symtom that was not talked about. It was often kept as a "family secret." It is a new day that we want to talk about psychiatric symptoms because our loved ones need help. The way we are goin...

In 1986, Jimmy Pollard, a special education teacher by training, found himself managing a specialist unit in a nursing home. Unaware of Huntington’s disease, he rejected for admission a young woman living with it. Her mother gently persuaded him to reconsider and admit her daughter. So began his career working with folks and family touched by HD. Jimmy became interested in how HD’s cognitive chang...

Liten to Katrina Hamel talk about all that is going on at Caring 4 HD Affordabilty Shop and Resource Center. 

We are exciting to have Lisa Davenport on Help 4 HD Live to talk about her great jouney to find her birth mother. Hear about her going back in time to the 1500's tracking her biologic families hystory trying to find one answer, who was her biologic mother? Lisa is a extrodaniery woman who is very brave and open about telling her fasinating story. Help 4 HD International was honored that Lisa agree...

Hear Dr. Peg Nopoulos speak about an ongoing study run by her and her research team at the University of Iowa. The study looks at the brain structure and brain function in kids from Huntington's disease families to determine how the brain develops in those at-risk for Huntington's disease from childhood through the course of their lives. She will also speak to us about Kids-JHD and that study that...

We are excited to have Amanda Miller on the show!  Amanda has done wonderful things as far as supporting HD and JHD families. This is going to be a great show for JHD. Amanda has visited schools where a child with JHD is attending to talk to the school about JHD. This is just one of many examples of programs that Amanda has created to support our community. Amanda Miller has always had a bit of a...

Tune in to hear Vicki  Owen and Deborah Bunting discuss all that they are doing to educate law enforcement in the state of Florida.

Sharon Thomason, managing editor at Help 4 HD, talks about her over 30 years of advocacy an being a HD caregiver. She will also speak about what it was like heading up "Life Interrupted." Sharon's son just went through a new genetic test that offers hope for helping treat psychiatric symptoms. As we all know, the trial and error process we have to go through when trying to find effective ways to t...

Tune in to hear Dr. LaVonne Goodman speak about the psychiatric symptoms often associated with Huntington's disease. This is the first show to kick off a series of shows, "Breaking the Stigma, Let's Talk Psychiatric Symptoms."  One thing that was loud and clear at the FDA Patient-Focus Drug Development meeting this last year is HD families want the FDA to understand the challenges they face with t...