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Samuel Frank is a movement disorder neurologist at Beth Israel Deaconess Medical Center (BIDMC), a teaching hospital for Harvard Medical School. After completing his residency and fellowship at the University of Rochester, he joined the neurology faculty at Boston University from 2004 to 2015. Dr. Frank serves as the principal investigator for a Huntington Study Group study and on the HSG executiv...

Deena is a wife and mother of three beautiful children. Her husband was diagnosed with HD two years ago and is now in the mid stages of the disease. Most recently, her youngest child was diagnosed with childhood-onset JHD at age 4. Her other 2 kids remain at risk for the disease. Deena lives in Florida, where she enjoys spending time with her kids, cooking, reading, and advocating for the HD commu...

Therese Crutcher-Marin, who has a Masters in Health Care Administration, is retired from Sutter Auburn Faith Hospice, having worked in health care for twenty years. She is publishing her first non-fiction book, a heartfelt memoir, whose proceeds will be donated to the Huntington’s Disease Society of America. She lives in Auburn with her husband, John Marin, the surviving sibling of a family devast...

Tune in to hear Dr. Kyle Fink and Dr. Peg Nolpoulos give us a overview and answer questions about their presentations they recently gave at Help 4 HD International Symposium, Sacramento. https://vimeo.com/166162213 https://vimeo.com/166162226 https://vimeo.com/166162235 https://vimeo.com/166220289

Wednesday, May 18 at 1:00 pm PST/4:00 pm EST We are so honored and priviledged to have Dr. Nancy Wexler on Help4HD Live! The "Blond Angel" the "Gene Hunter" as she is so endeard by her subjects, has devoted her life and career as a Geneticist to finding a cure for Huntington's disease which took her mother and many other family members. Find her video interview on One on 1 Profile: Geneticist Dr....

The Huntington Study Group is a world leader in facilitating high-quality clinical research trials and studies in Huntington disease (HD). HSG has the first and largest HD clinical research network of over 400 active and compassionate investigators, coordinators, scientists and HD experts at over 100 HSG Credentialed Research Sites across the globe, dedicated to seeking treatments that make a diff...

Join us to hear Dr. Goodman speak about psychosis. Pyschosis is a symptom associated with Huntington's disease that can have a great impact on familes. Psychosis, like many psychiatric symptoms, may have been symtom that was not talked about. It was often kept as a "family secret." It is a new day that we want to talk about psychiatric symptoms because our loved ones need help. The way we are goin...

In 1986, Jimmy Pollard, a special education teacher by training, found himself managing a specialist unit in a nursing home. Unaware of Huntington’s disease, he rejected for admission a young woman living with it. Her mother gently persuaded him to reconsider and admit her daughter. So began his career working with folks and family touched by HD. Jimmy became interested in how HD’s cognitive chang...

Liten to Katrina Hamel talk about all that is going on at Caring 4 HD Affordabilty Shop and Resource Center. 

We are exciting to have Lisa Davenport on Help 4 HD Live to talk about her great jouney to find her birth mother. Hear about her going back in time to the 1500's tracking her biologic families hystory trying to find one answer, who was her biologic mother? Lisa is a extrodaniery woman who is very brave and open about telling her fasinating story. Help 4 HD International was honored that Lisa agree...

Hear Dr. Peg Nopoulos speak about an ongoing study run by her and her research team at the University of Iowa. The study looks at the brain structure and brain function in kids from Huntington's disease families to determine how the brain develops in those at-risk for Huntington's disease from childhood through the course of their lives. She will also speak to us about Kids-JHD and that study that...

We are excited to have Amanda Miller on the show!  Amanda has done wonderful things as far as supporting HD and JHD families. This is going to be a great show for JHD. Amanda has visited schools where a child with JHD is attending to talk to the school about JHD. This is just one of many examples of programs that Amanda has created to support our community. Amanda Miller has always had a bit of a...

Tune in to hear Vicki  Owen and Deborah Bunting discuss all that they are doing to educate law enforcement in the state of Florida.

Sharon Thomason, managing editor at Help 4 HD, talks about her over 30 years of advocacy an being a HD caregiver. She will also speak about what it was like heading up "Life Interrupted." Sharon's son just went through a new genetic test that offers hope for helping treat psychiatric symptoms. As we all know, the trial and error process we have to go through when trying to find effective ways to t...

Tune in to hear Dr. LaVonne Goodman speak about the psychiatric symptoms often associated with Huntington's disease. This is the first show to kick off a series of shows, "Breaking the Stigma, Let's Talk Psychiatric Symptoms."  One thing that was loud and clear at the FDA Patient-Focus Drug Development meeting this last year is HD families want the FDA to understand the challenges they face with t...

Monday, February 29 at 3:30 pm PST/6:30 pm EST Join us for a really fantastic show with sisters Dr. Mary Edmondson and Ann Lassiter of HD Reach in North Carolina. Mary the founder of HD Reach and her group has been problem solving about what prevents the HD community from accessing care for their families in North Carolina. Tune in to hear about this very interesting and amazing work that they do...

Tonight our incredible special guest is Kevin McCormack, the communications director at CIRM, California’s stem cell institute. Kevin is also a dear friend of Help4HD and was a featured keynote speaker at our first symposium in 2014. He considers himself to be the official translator for the agency, working to turn complex language about equally complex science into everyday English that anyone, i...

Tuesday, January 12, 2016 - 3:30 pm PST/6:30 pm EST Huntington's Disease Care Posted January 10, 2016 by LaVonne Veatch Goodman, M.D. There have been a number of studies about the impact and burden of Huntington's disease (HD) on both those affected and their family carers. Though there are many other factors, the major recurring theme boils down to "lack of care".  This includes lack of access to...

TUESDAY, DECEMBER 15, 2015: 3:30 PM PST The Huntington Study Group (HSG) hosted more than 400 attendees from around the world that included expert clinicians, researchers, and coordinators of clinical studies at their annual meeting in late October. Rounding out this group were representatives from several drug companies, and most importantly individuals and families affected by HD.  The highlight...

TUESDAY, OCTOBER 27, 2015 - 3:30PM PST/6:30 PM EST Death with Dignity Law is the topic of our show today. This is not an easy topic to talk about, unless, you are facing an ultimately fatal condition with debilitating pain and suffering which has no hope of improvement or cure. Some say this is a choice that we as humans should have, others say it’s playing God. Today’s discussion is going to take...

TUESDAY, OCTOBER 6, 2015 - 3:30 pm PST/6:30 pm EST We will be talking about Dr. Goodman's recent article: Antipsychotics and Tetrabenezine: More Rapid Pregression of HD? Dr. Goodman writes... In a recent publication in the Journal for Huntington's Disease, Tedroff and collaborators report that antidopaminergic (antipsychotic and tetrabenazine) drugs were associated with more rapid progression of H...

TUESDAY, SEPT 22, 2015 ~ 2:00 PM PST/5:00 PM EST Tonight we have two of our most favorite incredible special guests, Dr. Karen Elta Anderson, Director at Georgetown/MedStar HD Clinic and Dr. Andrew Feigin, Director at the HD Center North Shore-LIJ Health System. Both are such esteemed medical professionals and well loved by the families whose lives they touch. They are super stars of Huntington’s...

TUESDAY, SEPTEMBER 15 - 3:30 pm PST/6:30 pm EST Happy Tuesday everyone!  This is Melissa Biliardi, your host. Our call in numbers are 310-982-4227 or 877-497-4103.  When you call in press “1” and we will cue you into the show.  Thank you 95 thousand listeners for tuning in to Help4HD Radio. Five years ago I never dreamed that we would be closing in on 100 thousand listeners and 220 episodes. I am...

FRIDAY, AUGUST 14, 2015: 2:00 PM EST Tonight we have a very special show with Dr. Andrew Feigin, Professor of Neurology and Director of the Huntington’s Disease Center at North Shore University Hospital and the Director of the Laboratory of Experimental Therapeutics for Movement Disorders at The Feinstein Institute for Medical Research of the North Shore – LIJ Health System in Manhasset, NY.  Dr....

THURSDAY, AUGUST 13, 2015: 6:30 PM EST Tonight we have a very special show with Dr. Ottavio V. Vitolo a neuropsychiatrist and Medical Director at Pfizer Inc. He is the Research Project Lead and Global Clinical Lead for the PDE10 in Huntington’s disease program at Pfizer. We will be discussing the new clinical study for Huntington's disease called Amaryllis. Tune in and meet a incredible brillian m...