Help 4 HD Live!

MONDAY, February 17, 2014 Dr. Mary Edmondson is back! We love her wisdom and care of our Huntington's families in North Carolina. She is working on a model Family Education Program and we will get to hear all about that today. Tune in for some amazing information from our incredible special guest. Find Dr. Edmondson at: http://hdreach.org/  

TUESDAY, February 11, 2014 Special incredible guests tonight are Dr. Vicki Wheelock and Teresa Tempkin RNC, MSN, ANP from UC Davis HD Clinic. Tonight's topic is PRE-CELL, an observational study and precurser to HD-CELL. For more information about PRE-CELL visit clinicaltrials.gov http://clinicaltrials.gov/ct2/show/NCT01937923?term=Pre-Cell&rank=1  

It's time for Ask Dr. Goodman! Get your questions ready... Tonight we will be talking about antipsychotic medications for individuals suffering from symptoms of Huntington's disease. Read her latest article: http://hddrugworks.org/index.php?option=com_content&task=view&id=332&Itemid=30

Today’s incredible special guests are Ron Bartek, Co-Founder and President and Jen Farmer Executive Director, coordinator, of FARA /, The Friedreich's Ataxia Research Alliance a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceut...

WEDNESDAY, January 29, 2014 - 1:30 pm PST/4:30 pm EST Gene Veritas aka Ken Serbin will be here to talk about the World Stem Cell Summit from December 2013.

SATURDAY, January 25, 2014 - 9:00 am PST/11:00 am Mexico City time Brenda Vega from Fundacion Huntington Mexico will be our incredible special guest. Co-Host Daniel Medina will be speaking to our Espanol compadres and translating en Ingles. Stay tuned...

TUESDAY, January 21, 2014 - 3:30 pm PST/6:30 pm EST Join us for a 3-part series on gene therapy for Huntington's disease. Our incredible special presenter is Benjamin E. Deverman, Ph. D. from California Institute of Technology who is going to give us some very interesting insight and education about what exactly is gene therapy. What are the goals of this therapy and what genes can be used for gen...

THURSDAY - January 16, 2014 - 3:30 pm PST/6:30 pm EST It's time for an update from the CREST-E clinical trial with Bonnie Hennig. THE MISSION: To provide patients and families with information about CREST-E. The discussion today will be focused on providing a brief overview of the study allowing for an informal discussion about study participation and providing information about how individuals wi...

TUESDAY January 14, 2014  -  3:30 pm PST/6:30 pm EST Jimmy Pollard is back with us to share with us his travels and lectures around the country speaking to our amzaing Huntington's families. He has been lecturing in California, South Dakota, and has plans of meeting our H'Dears in Fargo, ND and many other places. Tune in for a Jimmy Pollard update and lots of fun!

SATURDAY/SABADO, 11 DE ENERO 2014 Help 4 HD International está feliz y orgulloso de estrenar su primer programa de radio en vivo en Español / Inglés que sera transmitido este Sábado, 11 de Enero 2014 a las 9:00 am Tiempo Del Pacifico/11:00 am Tiempo de la Ciudad de México Why is this new program extremely important? Help 4 HD International believes this bilingual program will reach a population of...

January 7, 2014 - We welcome you to another amazing year of the Ask Dr. Goodman Show. Practical and compassionate advice from an incredible physician treating our loved ones suffering with Huntington's disease in Washington and now reaching patients, families and caregivers, through Help 4 HD Radio, on a global scale. You may find Dr. Goodman at www.hddrugworks.org and as one of Help 4 HD Internat...

This month of December 2013 we are celebrating our HD advocates and this Saturday is no exception. Dr. Scott Guess and his better half, Misdee L. Kornder-Guess, RN are my favorite pharmacists in the world and today you are going to find out why. They founded Pain Management Pharmacy, Inc. in Santa Maria and En Soleil Pharmacy, Inc in Atascadero California. We are going to be talking about what is...

Welcome to this December 17 show. Help 4 HD Radio has designated the month of December for celebrating our amazing HD advocates. Tonight we are happy to introduce Papa Mike, Raima and The Wilderness Kids as our incredible special guests. Best known as the Wilderness Kids Firewood and Maple Syrup of Saco Maine, the Wilderness Kids are Mike and Raima's grandchildren, Brandon Irving, age 13, and his...

Help4HD - The HD View - Celebrating the Advocates: Matt Ward! Join us as we continue to celebrate our amazing international advocates for Huntington's disease.  We are excited to have the amazing "HD Warrior" Matt Ward from Nottingham, United Kingdom joins us tonight!  Matt Ward has decided to share his experiences living with HD via a video diary on YouTube.  His bravery and willingness to share...

Tuesday, December 3, 2013 I am so excited about the month of December shows. This is the time of year for giving. We give to our family; to our friends and to others without expecting much in return. Tonight we are going to talk about the spirit of giving with a woman who puts this to practice all year-round. We begin with a story about an extraordinary woman and a remarkable homeless man. Elizabe...

Our incredible special gues this afternoon is Kenneth P. Serbin, Ph. D., professor and chair in the USD College of Arts and Sciences,Department of History, served as vice president, president, and immediate past president of the Brazilian Studies Association (2004-2010).  He also was the co-chair of the Brazil Section of the Latin American Studies Association from 2003-2006. Kenneth Serbin’s mothe...

Tonight our incredible special guest is Karen E. Anderson, MD. She is an Associate Professor of Psychiatry & Neurology and the newly appointed Director of the Huntington Disease Care, Education and Research Center (HDCERC), a joint endeavor of Georgetown University Medical Center (GUMC) and MedStar Georgetown University Hospital.  As Director, she leads a multidisciplinary team devoted to HD c...

Tuesday, November 12, 2013 Join us for an update on the HSG First-HD clinical trial with incredible special guests Jody Goldstein from Rochester and Greg Suter from the HNDC.   First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will look at how safe, tolerable and effect...

Pre-Recorded 9-17-13 Our incredible special guest is Dr. Mary Edmondson, Psychiatry from Duke University HD Clinic and HD Reach. Hear about the HSG Symposium set for November 7-8-9 in North Carolina.  

"Help4HD - The HD View: Celebrating the Advocates" Tuesday, October 22, 2013 is the premier of our new component of Help4HD Programming - "Help4HD - The HD View: Celebrating the Advocates."  It is so important that we take the time to acknowledge and celebrate individuals within our community who advocate for Huntington's disease! We are proud to have Kris Coasthunter King from Sheffield, England...

Tuesday, September 15, 2013 It's time for The HD View Ask Dr. Goodman Show!  Tonight we are going to be talking about substance abuse in Huntington's disease. Dr Goodman writes articles each month for Help 4 HD - The HD View to discuss on the Ask Dr. Goodman Show. Find Dr. Goomans new article: http://bit.ly/1hR4zTp

PRE-RECORDED   - First-HD is a Phase III clinical research trial of an investigational drug called SD-809 Extended Release (ER) in persons who have a diagnosis of Huntington disease (HD). First-HD will be enrolling participants across North America (United States and Canada) who have been diagnosed with HD and who have never taken tetrabenazine (Xenazine ®, Nitoman ®). Participants will be involve...

Tuesday, October 1, 2013 Dr. Peg Nopoulos, professor in Psychiatry, Pediatrics and Neurology at the University of Iowa Hospitals and Clinics will be our incredible special guest tonight.  She will be talking about Kids HD and Kids JHD and why the two studies are different. She will have returned from World Congress for HD with some very interesting information for us. Tune in for a very special up...

Pre-recorded Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University.

Dr. Mary Edmondson, MD, Psychiatry from Duke University HD Clinic and HD Reach is back with us tonight.  HD Reach is a non-profit organization dedicated to providing access to care, education, and social assistance to patients and families affected by Huntington’s disease in North Carolina.  She will be hosting a symposium in November titled: “Neurodegenerative Disorders: The example of Huntington...