Help 4 HD Live!

To view the original show page, please visit http://www.blogtalkradio.com/help4hd/2016/05/18/dr-nancy-wexler-on-help4hd-live "We are so honored and priviledged to have Dr. Nancy Wexler on Help4HD Live! The "Blond Angel" the "Gene Hunter" as she is so endeard by her subjects, has devoted her life and career as a Geneticist to finding a cure for Huntington's disease which took her mother and many ot...

HDYO has a new Genetic Testing program! Please visit their website for more information: www.hdyo.org Matt Ellison's bio: "Hi! My role at HDYO includes developing all the educational project work we do for our website, including video projects, overseeing the youth camps and events HDYO hosts globally, planning future global projects to expand our reach, keeping the website up-to-date, responding...

Daniel Claassen, MD Lead Investigator at HSG’s Vanderbilt University Medical Center site and Director of the Huntington’s Disease Center of ExcellenceMember of the HSG Research Advisory BoardAssociate Professor of Neurology at Vanderbilt UniversityServes as Editor for the Huntington Study Group’s bi-annual journal, HD Insights Jody Core-Bloom, MD, PhD Lead Investigator at HSG’s UC-San Diego Health...

Dr. Victor Sung, a native of Houston, TX, graduated from Vanderbilt University with a B.S. in Neuroscience and a minor in music in 2001. He received his medical degree from UT-Southwestern in Dallas in 2005. He completed residency training in neurology at the University of Alabama at Birmingham (UAB) in 2009, during which time he was elected to membership of the Alpha Omega Alpha Honor Society and...

Dr. Higgins is the Vice President of Clinical Development at uniQure. He is responsible for the early development of clinical gene therapy trials for neurological disorders. Prior to joining uniQure in 2018, Dr. Higgins was responsible for all neurological diagnostic testing at Quest Diagnostics and was the federal CLIA-license holder for a specialty laboratory. He was formerly a Professor at Weil...

Anne Rosser is Professor of Clinical Neuroscience at Cardiff University and Honorary Consultant Neurologist at the University Hospital of Wales. She trained in Medicine at Cambridge University where she also undertook her PhD in Neuroscience. She has worked in the area of neurodegeneration since 1994 and has a special interest in Huntington’s disease (HD), in particular the development of new ther...

Tune in to hear Dr. Nicolo Zarotti talk about some of his research.

Dr. Amy J. Rose is an Assistant Professor in the Department of Communication Sciences and Disorders at Western Carolina University. She received her doctorate from the University of North Carolina at Greensboro and has over 25 years of clinical experience serving children and adults with communication disorders. Dr. Rose currently teaches both undergraduate and graduate students with courses in Dy...

Our guest this week is Kinser Cancelmo. Kinser lost her husband to HD and her daughter to JHD. Meg was only 15 when she lost her battle with JHD. Kinser started the “Meg’s Fight for a Cure JHD Foundation” in memory of Meg to help raise research funds for a cure and to help other families affected by JHD. 

Join our host, as Ginnievive Patch discusses her recent article in The Huntington's Post about Survivor's Guilt. It is very common for family members that are HD negative to feel guilty about their results. 

Tune in to hear Vicki Owen, head of Help 4 HD International's LEEP program, talk about their recent experience exhibiting at Alabama Chief of Police Winter Conference.

Listen as Katie Jackson and our guest, Peter Deng discuss JHD and gene editing. Peter is a Doctoral Candidate in the Pharmacology and Toxicology program at UC Davis.  Currently, he is being mentored by Drs. Jan Nolta, Kyle Fink, and David Segal at the UC Davis Institute for Regenerative Cures and Genome Center.  His research is centered on the production and evaluation of a novel DNA-binding thera...

Terry has spent 18 years working at the University of California Davis HDSA Center of Excellence. During her time there, she worked with the HD team to build one of the largest HD programs in the country, noted for their expertise in HD/JHD. She has participated in 18 clinical trials targeting new treatments for HD. Although she retired from the health system in 2016, she did not retire from her p...

Tips for surviving the holidays

Join us as we discuss good gifts to give this holiday season

Dr. Bonnie L. Hennig-Trestman currently has a private tele-therapy practice and serves on the Board of Directors for the Huntington’s Disease Youth Organization (HDYO). Dr. Hennig-Trestman has over 30 years of expertise providing clinical service and supervision with patients and family members suffering from neurodegenerative, physical, and psychiatric illnesses. Her book, “Talking to Kids About...

Jordan Schultz, PharmD, graduated from the University of Iowa College of Pharmacy in 2013.  After completing a 2 year residency, he began providing clinical pharmacy services to patients with neurodegenerative diseases, including Huntington’s Disease.  In addition to his clinical work, Jordan conducts clinical research that is focused on (1) understanding the pathophysiology of Huntington’s Diseas...

Katie, Lauren and Katrina talk about being thankful this holiday season

Dr. Hefti is Assistant Professor of Pathology at the University of Iowa and directs the Iowa Brain Bank. He received his MD from the Mount Sinai School of Medicine in New York City and did his pathology training at Harvard Medical School in Boston before returning to Mount Sinai for his neuropathology fellowship. While at Mount Sinai, he worked in the laboratory of Dr. John Crary, an expert in the...

Please follow along on http://hddrugworks.org/dr-goodmans-blog Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice but serve as a “volunteer physician”, continuing to see homebound and long-term care HD patients -Previous president and board member of the Northwest Chapt...

Please follow along on http://hddrugworks.org/dr-goodmans-blog Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice but serve as a “volunteer physician”, continuing to see homebound and long-term care HD patients -Previous president and board member of the Northwest Chapt...

Dr. LaVonne Goodman's bio: -Family member, lost first husband to HD -Internal Medicine M.D. more than 40 years -Practice limited to HD last decade -Now retired from office practice but serve as a “volunteer physician”, continuing to see homebound and long-term care HD patients -Previous president and board member of the Northwest Chapter of HDSA (now WA State HDSA) -Member of HSG and the combined...

Ed a consultant neurologist at the National Hospital for Neurology and Neurosurgery and Associate Director of the UCL Huntington’s Disease Centre, where his research team is focused on accelerating drug development through discovering new biomarkers for Huntington’s disease. He leads an MRC-supported longitudinal biomarker study, HD-CSF, and is Global Chief Investigator of the HDClarity study of c...

While she may be petite in stature, Shelby Lentz has a voice that will fill any venue. Shelby's talent was recognized at an early age and by fourteen, she was singing the National Anthem at local sporting venues, performed for the first time at the Wild Bull Saloon and earned over 100,000 votes in Bob Kingsley's Future Star online competition. It would not take long before she was grabbing the att...

While she may be petite in stature, Shelby Lentz has a voice that will fill any venue. Shelby's talent was recognized at an early age and by fourteen, she was singing the National Anthem at local sporting venues, performed for the first time at the Wild Bull Saloon and earned over 100,000 votes in Bob Kingsley's Future Star online competition. It would not take long before she was grabbing the att...