Help 4 HD Live!

Join us to hear Zoe Cruz talk about the Puerto Rico Huntington's Foundation

Check out the group IVF with PGD for Huntington's disease on Facebook. Also check out the following links: http://babyquestfoundation.org/ https://www.univfy.com/fertilitychronicles/grant-programs

Join us to hear from Stacey and Vicki about their advocacy efforts at the Chief of Police Conference

You can find Leah's bio on capturingthecorners.com

Join us to hear Matt Ellison give an update on what’s happening with HDYO.

Chris Delaney's bio:  "Everything changes when you make all of your decisions based on a dream" Chris Delaney has trained and spoken in front of thousands across the United Staes in various leadership roles within the Corporate America, small business, and entrepreneurship spaces. As a coach and consultant, Chris has helped countless individuals and business owners bring their vision to fruition t...

Leah Barker is a young woman who has tested positive for Huntington's Disease. She is an advocate for HD and mental health, and is also the owner of the blog "Capturing the Corners", which delves into the difficult topic of mental illness. You can find her complete bio on her website: http://capturingthecorners.org/  

Dr. Amy J. Rose is an Assistant Professor in the Department of Communication Sciences and Disorders at Western Carolina University. She received her doctorate from the University of North Carolina at Greensboro and has over 25 years of clinical experience serving children and adults with communication disorders. Dr. Rose currently teaches both undergraduate and graduate students with courses in Dy...

I’m Staci Cushenbery, formally Nicholas and am 34 years old. My husband and I live in Harper, KS with our 4 kiddos and several dogs. Together we own a trucking business in the oil field and I also am a LuLaRoe retailer. On top of my super busy life I try to advocate for HD as often as anyone will let me. My first experience with HD was when my mom tested positive. From there on I’ve wanted to be a...

"My name is Anna Lunsford, I am 22 years old and live in Columbus, Ohio. I graduated from Ohio State University with a Bachelor's in Psychology and Women's Studies and will return this fall to begin my Masters in Social Work. My dad and four of his siblings inherited Huntington's Disease from my grandfather. In June 2016, I was the first of a very large family to receive a positive result pre-symp...

Lauren Holder’s grandfather was diagnosed with Huntington’s disease (HD) when she was just a teen. After a few years, at the age of 20, Lauren decided to be tested for HD, ultimately testing positive. Despite this, Lauren remained dedicated to caring for her father, who is now symptomatic, and the larger HD community. In 2017, at the age of 32, Lauren found out she was pregnant unexpectedly. Becau...

HOPES is a student-run project at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to patients and the public. Their goal is to survey the rapidly growing scientific and clinical literature on Huntington’s disease, and to present this information in a coherent, reliable web resource.  We are excited to have Stanford student Cole...

  Angie Rowe joins the Global Genes team as Chief Operating Officer. She has over 17 years experience in executive management of LLCs and non-profits. She most recently spent the past 8 years managing and directing various aspects of the U.S. Bank OC Marathon and related events. In this role, she also developed and implemented the OC Marathon Foundation’s very successful Kids Run the OC program. P...

Tune in to hear Katrina Hamel talk about placing our loved ones with HD. We hear over and over about the challenges our families face when it comes to placing their loved ones with HD. Katrina has worked in hospice care for over 15 years. Her experience has brought a lot of insight to Help 4 HD. This show will shed a lot of light on the behind-the-scenes things that go on within care homes.

We are excited to have Gia Mannone on the show with us to talk about her advocacy projects she is working on to spread awareness about HD. Gia has done some very creative and successful awareness campaigns on social media to spread awareness and tell her story. We look forward to this interview and to hearing more about what Gia is doing to spread awareness about HD.

Tune in to hear Katie Jackson and Katrina Hamel discuss all that Help 4 HD International did for Huntington's Awareness Month

About HSG The Huntington Study Group (HSG), which was formed in 1993, is the world’s first HD cooperative therapeutic research organization. Today, HSG is a world leader in facilitating high quality clinical research trials and studies that bring us closer to finding more effective treatments for HD and reducing the burden of HD for families affected by the disease. HSG is an organization of compa...

Lauren Steffan will be on with us to talk about all that she is doing to advocate for our HD community when it comes to research and care. 

Seth found out as a 15-year-old that his mom had a rare, neurological, genetic disease known as Huntington’s Disease (HD). HD is like having symptoms of ALS, Alzheimer’s, and Parkinson’s all at once, and there currently is no cure. Five years later, Seth tested positive for HD and used the results as motivation to give back to the community through fundraising, advocacy, and volunteer efforts. His...

Join us as founder and creator, Casey Herrington discusses the Huntington's Disease Global Ecosystem Map (HD GEM) Project. HD GEM Project's mission is to further engage with the "silent" 70% of the HD community by helping those impacted by Huntington's disease (HD) find the resources they need to better assist them on their HD journey. This not for profit project was started and created by Casey H...

Join our host, as Ginnievive Patch discusses her recent article in The Huntington's Post about Survivor's Guilt. It is very common for family members that are HD negative to feel guilty about their results. 

Tune in to hear Cossetta Stroud talk about her organization Cozie Care and an event they are hosting in Southern California.

Join us as Andrew Feigin, SIGNAL Principal Investigator and Maurice Zauderer, PhD, President of Vaccinex discuss the SIGNAL trial.  

James Valvano, CEO and founder of WeHaveAFace will be joining our host to discuss their upcoming convention in Orlando, Florida. Please tune in to get all of the details. 

Tune in to hear Vicki Owen, head of Help 4 HD International's LEEP program, talk about their recent experience exhibiting at Alabama Cheif of Police Winter Conference.