Help 4 HD Live!

Julie Stout is Professor in the School of Psychological Sciences at Monash University. She leads a team of post-docs, students, and IT specialists, employing techniques from neuropsychology and cognitive neuroscience to characterise the effects of neurodegeneration on cognition and brain function. Her research group is known for innovations in assessments using computerised and sensor-based approa...

Dr. Ellen van der Plas is an assistant professor at the University of Iowa Hospital & Clinics. Ellen received her Bachelor’s and Master’s degree in Developmental Psychology at the University of Leiden in the Netherlands. She moved to the US in 2007 for graduate school at the University of Iowa. In 2011, she obtained her PhD degree in neuroscience under the mentorship of Dr. Peg Nopoulos. She m...

Ed is a consultant neurologist at the National Hospital for Neurology and Neurosurgery and Associate Director of the UCL Huntington’s Disease Centre, where his research team is focused on accelerating drug development through discovering new biomarkers for Huntington’s disease. He leads an MRC-supported longitudinal biomarker study, HD-CSF, and is Global Chief Investigator of the HDClarity study o...

Katie Jackson and Katrina Hamel talk about guilt and grief

Some resources that are available:  https://www.ncoa.org/healthy-aging/falls-prevention/ http://stopfalls.org/ https://www.help4hd.org/resources

Alexus writes the column Always Looking Forward at Huntington's Disease News. She is 22 and was diagnosed as a Huntington's Gene carrier earlier this year. Additionally, she works in healthcare consulting, which she started after graduating undergrad from MIT To read her column, please visit: https://huntingtonsdiseasenews.com/category/always-looking-forward-a-column-by-alexus-jones/

Re-run of our show with Kate Miner

As a psychologist with experience that spans clinical, educational, and professional settings, Dr. Marshall has been engaged in local and national suicide prevention and postvention work for more than 15 years. Since joining AFSP in 2014, Dr. Marshall has expanded AFSP’s menu of programs and improved program delivery through AFSP’s nationwide network of chapters. Dr. Marshall oversees AFSP’s Preve...

Dr. Holmans is head of the Biostatistics and Bioinformatics Unit at the MRC Centre for Neuropsychiatric Genetics and Genomics at Cardiff University, and has over 25 years' experience in the statistical analysis of complex genetic traits, both in data analysis and developing novel genetic methodology. He has led the statistical analysis of large multicentre collaborations in genome-wide linkage of...

Norberta Robertson, aka “Birdie”, began her involvement with HNDC many years ago as an event volunteer. Her interest in Huntington’s disease quickly moved forward in 2012 when she joined the HD Clinic Medical Team as a volunteer Social Worker for the monthly HD clinic. In late 2014, she stepped into the research arena in a clinical trial as a Capacity Rater. Looking for a change out of mainstream...

National Suicide Prevention Week: https://afsp.org/campaigns/national-suicide-prevention-week-2019/ Resources: https://afsp.org/find-support/resources/ Suicide Prevention Awareness Month: https://www.nami.org/get-involved/awareness-events/suicide-prevention-awareness-month

Debbi Fox-Davis has enjoyed a 23-year career leading and developing resources for nonprofits in North Carolina. Her career accomplishments include being the first Executive Director for Dress for Success of the Triangle; raising funding and engaging community supporters to ensure all children have permanent, safe and loving families for the Children’s Home Society of NC; raising scholarship and re...

Law Enforcement Education 2

Law Enforcement Education

Gwen has worked at the Good Samaritan Society’s University Specialty Center for the past 39 years. She is the nurse manager of the Huntington’s Unit. Gwen has been an advocate of HD for 23 years, helping residents and their families to navigate through issues surrounding long term care placement, supporting and educating staff on HD specialty care. Attends the HDYO North American camp as volunteer...

Seth Rotberg talks about his new organization, Our Odyssey.

John Alam is President and CEO of EIP Pharma. Until May 2014, he was therapeutic area head for diseases of aging within Sanofi R&D. In that role he led global R&D activities at Sanofi directed at Alzheimer’s disease and Parkinson’s disease, as well as number of other age-related diseases. Previously, from 1997 until 2008 he held positions of increasingly responsibility at Vertex Pharmaceut...

Re-air of the UniQure show from February 2019

Update from Help 4 HD

Please join us as Ignacio talks about his organization Factor-H and how he is helping the HD community. https://factor-h.org/ To donate, please visit: https://help4hd.org/project-abrazos/ Also, for more information about "Dancing at the Vatican", please visit the following link

For more information about resources or contact information for Jennifer, please visit www.hdsa.org/epa

Join us as Brandon shares his story about HD and the military

Cheney Drew is a research fellow and senior trials manager working in the Centre for Trials research at Cardiff University. She has a PhD in the neurobiology underpinning Huntington’s disease and now works as a clinical trials researcher, primarily focussing on trials concerning neurodegenerative disease, particularly HD. This includes trials of physical activity in HD and other complex interventi...

Debbie Pausig, LMFT, CT, is a Licensed Marriage and Family Therapist, a Certified Thanatologist, Professional Support Group Leader for HDSA CT-Chapter. Hospice Bereavement Coordinator for VNA Community Healthcare & Hospice. She is a National Speaker and Author of “An Affai? Worth Remembering With Huntington’s Disease, Incurable Love & Intimacy During an Incurable Illness.” She is the HDSA-...

Listen to Rachel Reimers share her journey with IVF-PGD