Help 4 HD Live!

National Suicide Prevention Week: https://afsp.org/campaigns/national-suicide-prevention-week-2019/ Resources: https://afsp.org/find-support/resources/ Suicide Prevention Awareness Month: https://www.nami.org/get-involved/awareness-events/suicide-prevention-awareness-month

Debbi Fox-Davis has enjoyed a 23-year career leading and developing resources for nonprofits in North Carolina. Her career accomplishments include being the first Executive Director for Dress for Success of the Triangle; raising funding and engaging community supporters to ensure all children have permanent, safe and loving families for the Children’s Home Society of NC; raising scholarship and re...

Law Enforcement Education 2

Law Enforcement Education

Gwen has worked at the Good Samaritan Society’s University Specialty Center for the past 39 years. She is the nurse manager of the Huntington’s Unit. Gwen has been an advocate of HD for 23 years, helping residents and their families to navigate through issues surrounding long term care placement, supporting and educating staff on HD specialty care. Attends the HDYO North American camp as volunteer...

Seth Rotberg talks about his new organization, Our Odyssey.

John Alam is President and CEO of EIP Pharma. Until May 2014, he was therapeutic area head for diseases of aging within Sanofi R&D. In that role he led global R&D activities at Sanofi directed at Alzheimer’s disease and Parkinson’s disease, as well as number of other age-related diseases. Previously, from 1997 until 2008 he held positions of increasingly responsibility at Vertex Pharmaceut...

Re-air of the UniQure show from February 2019

Update from Help 4 HD

Please join us as Ignacio talks about his organization Factor-H and how he is helping the HD community. https://factor-h.org/ To donate, please visit: https://help4hd.org/project-abrazos/ Also, for more information about "Dancing at the Vatican", please visit the following link

For more information about resources or contact information for Jennifer, please visit www.hdsa.org/epa

Join us as Brandon shares his story about HD and the military

Cheney Drew is a research fellow and senior trials manager working in the Centre for Trials research at Cardiff University. She has a PhD in the neurobiology underpinning Huntington’s disease and now works as a clinical trials researcher, primarily focussing on trials concerning neurodegenerative disease, particularly HD. This includes trials of physical activity in HD and other complex interventi...

Debbie Pausig, LMFT, CT, is a Licensed Marriage and Family Therapist, a Certified Thanatologist, Professional Support Group Leader for HDSA CT-Chapter. Hospice Bereavement Coordinator for VNA Community Healthcare & Hospice. She is a National Speaker and Author of “An Affai? Worth Remembering With Huntington’s Disease, Incurable Love & Intimacy During an Incurable Illness.” She is the HDSA-...

Listen to Rachel Reimers share her journey with IVF-PGD

Dr. Bird is a clinical neurogeneticist with interests in a wide range of hereditary disorders of the nervous system. In 1974, Dr. Thomas Bird founded the first clinic for adults with neurogenetic diseases in the United States. For more than 40 years, he directed this clinic at the University of Washington where he saw thousands of patients and conducted pioneering research on conditions such as ce...

Join us as we talk to Kate Miner for HD Awareness Month.

Shana (Martin) Verstegen has many things to be proud of, but her work with the Huntington’s disease Society of America in honor of her mother will always top that list. Shana’s mother passed away from Huntington’s Disease in March of 2013. After growing up watching Debby Martin lose her ability to move independently, Shana strived to live every day to the fullest with a focus on movement – from be...

Join us as Sharon Thomason talks about her new book

Gene Veritas – whose real name is Kenneth P. Serbin – has been active in the Huntington’s disease community since his mother’s diagnosis with the disease in 1995. She died of HD in 2006 after a 20-year fight. Serbin tested positive for the HD gene in 1999. His daughter Bianca tested negative in the womb and is today a healthy 18-year-old college student. Since 1998, Serbin has served as a voluntee...

Phil’s Kids was set up in memory of Dr Phil, who sadly passed away from Huntington’s Disease (HD) in 2014. Whenever Dr Phil lost a patient he would immediately go and look at the new-born babies. He did this, he said, because it reminded him of the circle of life, of life continuing, of new hope and who knew what amazing feats these new humans might achieve. It was because of his belief in future...

Dr. Leslie Thompson talks about her research

Peg Nopoulos, M.D. is Professor of Psychiatry, Pediatrics and Neurology. She is the DEO and Chair of the Department of Psychiatry at the University of Iowa Hospitals in Iowa City, Iowa. Dr Nopoulos is a physician-scientist. Her clinical care consists of taking care of patients with Huntington’s Disease in Iowa’s HD Center of Excellence where she has worked for the past 15 years. Dr. Nopoulos’ rese...

John Paul Jr.’s driving career began in 1979 driving Formula Fords. The following year he joined his father’s racing team as co-driver in the IMSA series. After only two years of competing, John Paul Jr. started the 1982 season with back-to-back wins at Daytona and Sebring, and by the end of the season, he had clinched the championship at the age of 22, becoming IMSA’s youngest champion. He won th...

Tuhin Virmani received a combined M.D./Ph. D. at UT Southwestern Medical School in Dallas, Texas. His doctoral thesis explored the physiologic mechanisms of synaptic chemical neurotransmission. After neurology residency at Washington University in St. Louis, Missouri, he completed a clinical-research fellowship in movement disorders at Columbia University in New York. At Columbia he became interes...