Beth Jones

FTD - Navigating The Cr*p

Health EN ↓ 16 episodes

As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65. For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone. This isn’t meant to be a shiny podcast that gives you all the answers. For a lot of us, the answers don’t exist - we...

Author

Beth Jones

Category

Health

Podcast website

feeds.acast.com

Latest episode

Dec 16, 2025

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Episodes

FTD Navigating the Cr*p X Dementia Dialogues 16.12.2025

In this special bonus episode of FTD: Navigating the Crap, Beth is joined by Natalie Carter, host of the Dementia Dialogues podcast. Earlier this year, Beth shared her own family’s experience of Frontotemporal Dementia on Natalie’s podcast, and now the roles are reversed as she joins Beth to share her story and reflect on what she’s learned through years of honest conversations with carers and fam...

What This Year Taught Me About FTD: Season Two Reflections 18.11.2025

In this final episode of Season Two, Beth takes a moment to pause, look back, and share where life - and her mum’s dementia journey - are now. She talks openly about the hardest moments of the past year: the sudden overnight decline that changed everything, learning to adapt to new routines with her dad and facing the reality that dementia is a progressive, life-limiting disease. Beth also reflect...

Living Grief and Unspoken Thoughts with Eleanor Connelly from Tide 11.11.2025

In this episode, Beth is joined by Eleanor Connelly from Tide (Together In Dementia Everyday) - a charity dedicated to supporting carers and former carers of people living with dementia. Eleanor opens up about her experience caring for her dad with vascular dementia, and how her own grief led her to the work she now does. Together, we explore one of the hardest and most hidden parts of dementia: l...

When Nana’s Dementia Touched Us All: Lauren’s Story 04.11.2025

In this episode, Beth is joined by her friend Lauren, who shares the story of her Nana’s dementia diagnosis at 87, after years of slowly declining health. Lauren explains how her Nana’s diabetes complicated symptoms, delayed a diagnosis and masked what was really going on - and how dementia still hit her family like a shockwave, even at an older age. This episode is a reminder that dementia always...

Facing The Future with Familial FTD: Helen’s Story 28.10.2025

In this episode, Beth is joined by Helen, whose family has been profoundly affected by familial FTD. Helen first experienced the disease through her aunt, and later through her mum. When her mum was diagnosed, Helen was confronted with the reality that FTD could be genetic and that it might also shape her own future. With honesty and courage, Helen shares what it was like growing up in a close, lo...

To Test Or Not To Test? My Journey with Familial FTD 24.10.2025

In this special bonus episode, Beth shares a very personal update about her family’s experience with genetic testing for FTD. After finally receiving a long-awaited appointment with a geneticist, Beth reflects on the difficult questions this raises - whether to test or not, the emotional toll of waiting and what it means to live with the uncertainty of a possible genetic link to dementia. With raw...

Two Parents. One Diagnosis. Endless Love - Kirsty’s Story. 21.10.2025

In this deeply emotional episode, Beth sits down with close friend Kirsty Roebuck, who has faced the unimaginable - both of her parents were diagnosed with vascular dementia within 18 months of each other. Kirsty opens up about the first signs that something wasn’t right with her dad and the grief of slowly losing both parents in different ways to the same disease. She talks with heartbreaking hon...

Supporting Children and Young People affected by Dementia with Admiral Nurse, Hannah Gardner 14.10.2025

This week, Beth is joined by Hannah Gardner, a Consultant Admiral Nurse for Children and Young People at Dementia UK. Hannah works directly with families affected by dementia, helping children and young carers understand the condition and find the support they need. Drawing from her own lived experience of having a mum with young-onset dementia, Hannah shares how her personal journey shaped her pa...

Navigating Dementia Care: Stacey’s story 07.10.2025

This week, Beth is joined by Stacey Markle, who shares her powerful and deeply personal story of navigating dementia as an only child after the sudden loss of her father. When her mum began showing signs of cognitive decline, Stacey became her primary caregiver, managing everything from diagnosis to daily care, and later navigating the complexities of long-term care in the US system. Over the past...

Practical advice from Dr Sarah Straughan - The Dementia Psychologist 30.09.2025

This week, Beth is joined by Dr Sarah Straughan, a Consultant Clinical Psychologist and dementia specialist. Sarah works closely with families and carers, helping them to navigate the often overwhelming challenges that come with dementia.  If you’d like to connect with Sarah, you can follow her on Instagram @the_dementia_psychologist, where she shares practical advice, resources, and works to...

Dementia isn’t reserved for the elderly: Lukas’s story 23.09.2025

Beth is back for Series 2 of the podcast and this time she’s been sitting down to talk to other people who’ve found their lives being affected by dementia, in whatever way, to chat about their experiences and to try to learn as much as possible about this illness…  This week she is joined by Lukas Olszewski whose ex-partner was diagnosed with Frontotemporal Dementia at just 36. Head over to&n...

A Diagnosis 01.04.2025

In this episode Beth discusses finally receiving an FTD diagnosis for her mum and all the emotions that came with it... If you're struggling with anything discussed in this podcast, there are a number of helplines available. Visit alzheimers.org.uk for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

Self-care Matters 25.03.2025

One of the hardest things to acknowledge when you're looking after someone with FTD is that you need to look after yourself too - something that Beth has learnt over time. If you need support with anything discussed in this podcast, visit  alzheimers.org.uk  for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

How do you get a diagnosis? 18.03.2025

When Beth first realised that something wasn’t right with her mum, she had no idea the long journey they were about to embark on for a diagnosis…  If you need support with anything discussed in this podcast, visit  alzheimers.org.uk  for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

What is FTD? 11.03.2025

What is FTD (Frontotemporal Dementia)? There are several different types of dementia and when you or someone you love is first faced with a diagnosis, the information can feel overwhelming. Beth explains a little more about what FTD is and introduces her and her mum's story. Hosted on Acast. See acast.com/privacy for more information.

Introducing FTD - Navigating The Cr*p 07.03.2025

Coming Soon! Hosted on Acast. See acast.com/privacy for more information.

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