Annenberg Center for Health Sciences
From Clues to Care: Improving Recognition and Treatment of Alpha-Mannosidosis
Alpha mannosidosis (AM) is a rare, progressive lysosomal disorder with a broad and heterogeneous clinical phenotype that can evolve across the lifespan. Drawing on the 2024 Global Delphi Consensus Recommendations and other recent evidence, this activity focuses on practical, clinician oriented strategies for baseline and longitudinal assessment, use of enzyme replacement therapy and hematopoietic stem cell transplantation, monitoring treatment response and disease progression, and the coordination of interprofessional, multidisciplinary care essential for patient management.
Author
Annenberg Center for Health Sciences
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Podcast website
Latest episode
Mar 11, 2026
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Episodes
Patient-Centered Holistic Care 11.03.2026 9:50
Integrated Care Coordination Consensus Recommendations for Routine Follow-UpCare in AM Detailed Assessment Recommendations by BodySystem
Standard of Care Treatment and Monitoring for AM 11.03.2026 17:24
Enzyme Replacement Therapy (Velmanase Alfa) Pivotal Trials of Velmanase Alfa in AM Hematopoietic Stem Cell Transplant Consensus Recommendations for Monitoring Treatment
Identification and Diagnosis of AM 11.03.2026 11:20
Phenotypic Subtypes of AMGuidelines for Genetic Testing Diagnostic Algorithms for AM Consensus Recommendations for Testing andBaseline Assessment
Introduction to Alpha-Mannosidosis (AM) 11.03.2026 4:28
Description Epidemiology Case Vignette
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