Conversations About Advance Care Planning

In the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and End of Life Care, focusing particularly on langua...

In this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny's research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care. Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and academic role. Emma is currently leading the QUAL...

In this episode it is my pleasure to talk with Dr Maggie Keeble, a retired GP with a special interest in End of Life Care. Maggie spent the later part of her career working in care homes and during that time became involved in many Lasting Power of Attorney discussions. We have a great conversation and Maggie really breaks down the Mental Capacity Act in relation to making a Lasting Power of Attor...

In this episode it is my pleasure to talk with Dr Liz O'Riordan. We talk about Advance Care Planning through three very different lenses, from Liz's experience as a surgeon, a daughter and as a patient. Liz shares what she has learned through these experiences and why we should all have the conversation and start planning early. If you are a team looking to provide better end of life care, or set...

In this episode it is my pleasure to talk with Professor Mark Taubert, palliative care consultant, founder of Talk TalkCPR.com and chair of a national strategy group for Advance and Future Care Planning. We cover the famous Thank you to David Bowie Letter, Advance Care Planning in Wales and acknowledge both the complexity and simplicity of Advance Care Planning. If you are a team looking to provid...

In this episode it is my pleasure to talk with Wendy Mitchell, author of the best-selling books Somebody I Used to Know, What I wish people knew about dementia and the recently published One Last Thing; How to live with the end in mind. We connected back in 2022 to explore Wendy's Advance Care Planning and spoke about the work we did together in an earlier podcast. Wendy writes about her Advance C...

In this episode it is my absolute pleasure to talk with Dr Julian Abel who became a consultant in palliative care 2001, working initially at a district general hospital and a hospice. For more than a decade he has become increasingly involved in finding ways of building compassionate communities around people at end of life. He has run projects at local, regional and national levels. He was Vice P...

Stephanie Craig is a Registered Nurse and a PhD Student at Queen's University Belfast. Since qualifying Steph has worked on a number of projects including the implementation of an Advance Care Planning educational tool for undergraduate nursing students. I connected with Steph on Twitter and was keen to learn what was covered in Steph's education about Advance Care Planning as a student nurse and...

In this episode it is my pleasure and honour to talk with Dr. Naheed Dosani. Naheed is a palliative care physician and health justice activist dedicated to advancing equitable access to healthcare for people experiencing structural vulnerabilities like poverty and homelessness. Naheed's achievements include founding the Palliative Education and Care for the Homeless (PEACH) Program at the Inner Ci...

In this episode it is my pleasure to talk with Victoria Butler-Cole KC , a barrister at 39 Essex Chambers. TorShe specialises in health and social care law, in particular the Court of Protection.  She is a member of the Nuffield Council on Bioethics and an advisor to the Open Justice project. This episode is the third in a series exploring a family's experience at the Court of Protection and what...

In this episode it is my pleasure to talk with Mary about how it felt as a daughter to experience the Court of Protection, and what she learned about being an attorney for her Mum. I talk with Mary about what it felt like to experience the Court of Protection, the challenges, the positives and what impact the Open Justice Court of Protection Project had.  This is the second in a series of three po...

In this episode it is my pleasure to talk with Anna about her experience at the Court of Protection. I hear how Anna and her family were unprepared for the experience and we explore the tension between deprivation of liberty and appropriate compassionate care and supervision of a person. This is the first in a series of three podcasts; in the next episode I talk with Anna's sister Mary about how i...

In this episode it is my pleasure to talk with Dr Ben Bowers. We talk about Ben's research focusing on Anticipatory prescribing, the practice he found and what we can learn from this to deliver more personalised care. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide...

In this episode I talk with Roslyn Wood. Ros is a specialist metalworker and artisan jeweller. For over a decade she has been helping families capture precious moments in life through the art of jewellery-making. I talk with Ros about how her passion for memorial jewellery began, the variety of work she creates for people and how memorial jewellery can help with grief. You can see Ros's work and s...

In this episode of Conversations About Advance Care Planning it is my pleasure to talk with Dr Anna Steel. Anna is a Consultant Geriatrician at Barnet Hospital and co-founded the "Elephant in the Room" Advance Care Planning simulation course. We talk about what led Anna to create the course, how it is delivered and the impact it has made.. If you are a team looking to provide better end of life ca...

I first met Jo in 2023 to record how Fast Track Continuing Health care supports Advance Care Planning. We spoke about the importance of adapting to rapidly changing needs, and the care required to support her husband Barry to die at home after he was diagnosed with an aggressive glioblastoma. In this special episode, released during Dying Matters 2023, we talk about the challenges in knowing how t...

Well that was fun! Way back in June 2021 I reflected with Martin, the editor of Conversations About Advance Care Planning , on the podcasts produced and how they had impacted him. If you haven't listed yet – do! It really is a super episode and sums up perfectly how we can normalise these important conversations. During our 2021 discussion, Martin mentioned a number of things he was planning and w...

It is with great pleasure that I am re -releasing episode 25 this week. This was a hugely popular episode in which Martin sets out the steps he will take for his Advance Care Planning and challenges me to produce episodes on Ordinary Dying, financial planning and alternative funerals. In next week's episode, you can follow up the pledges Martin makes and hear how subsequent podcasts have met the c...

In this episode it is my pleasure to talk with Dr Lucy Selman. Lucy is Associate Professor in Palliative and End of Life Care and a social scientist who has published extensively on experiences of serious illness; decision-making and communication; family care-giving and bereavement; and widening access to services. Lucy is currently conducting the OSCAR study focussed on improving how renal clini...

In this episode it is my pleasure to talk with Sara Sheppard, an Estate Planning Consultant. We talk about wills, probate and some common myths that surround this area. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find...

https://magnificentmidlife.com/podcast/132-later-life-planning-clare-fuller/   I was delighted recently to be a guest on the Magnificent Midlife podcast. I talk all things Advance Care Planning with Rachel Lancaster, including triggers for Advance Care Planning and how to have Important Conversations. To listen in full head to https://magnificentmidlife.com podcasts. If you are a team looking to p...

In this episode it is my pleasure and honour to talk with Jo Armstrong. Jo is a physiotherapist with an interest in rehabilitation and spinal injury. Jo cared for her husband Barry following the  sudden diagnosis of a rapidly deteriorating brain tumour supporting him in his wish to die at home.    We talk about the care needed to look after Barry, specifically Fast Track Continuing Health Care. Is...

I first heard Dr Tommy Perkins talk about Medics Money on The Business of Healthcare Podcast with Tara Humphry in 2020. I have followed the growth of Medics Money with interest ever since and was delighted to guest on their podcast to talk about what a Lasting Power of Attorney is and why we ALL need one. Listen to the episode:  https://www.medicsmoney.co.uk/ep-139-why-you-need-a-lasting-power-of-...

Clair Fisher advocated for the benefits of early intervention palliative care, more open conversations around death and dying and normalising Advance Care Planning. Clair made these aims part of her retirement project after she was diagnosed with stage 4 bowel cancer.  I had worked with Clair and was aware of how thoroughly she had addressed her Advance Care Planning, to hear her shout out on Twit...

In this episode I talk with Dr Annabel Howell, Medical Director of Children's' hospice across Scotland, Trustee/Vice Chair at the My Name'5 Doddie Foundation and keen sportswoman. We talk about how sport has influenced Annabel's practice as a Dr, what Advance Care Planning with children looks like, and the differences and similarities with adult Advance Care Planning. We talk about Advance Care Pl...