Conversations About Advance Care Planning

In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast.  If you are a team looking...

In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions  to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself.   If you are...

In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don't want and how this can be documented in an Advance Decision to Refuse Treatment. If you are a team looking to provide better end of lif...

In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented.  If you are a team looking to provide better end of life care, or set up a one off or complete educ...

In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa...

In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years' experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy.  For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals.  Wendy is currently the Director of Nursing and Care Services for Pilgrims Hospices. I...

In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of "The Safari Concept: An African Framework on End-of-Life Care" and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact communication and care. It is a powerful episode wit...

In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes and how to access the Last Days Matter resource. If...

In this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast  Gary created as part of the We Need to Talk About Death series with Dame Joan Bakewell and we...

In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer's. Previously the owner of a thriving timber business, Peter's life changed upon the diagnosis.  He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia.  A keen cyclist, Peter has used his cycling to raise money f...

In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience. Jim also explains why he is fundraising for the  Intensive Care Society and how you can follow and support his iconic high alpine challenge.  If you are a team looking to provide better end of life ca...

I'd heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions.  We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved.   If you are a team looking to provide better end of life care, or set up...

In this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project and how it is helping to make precious memories....

In this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It's an important episode and based on Alison's family experience. We talk the impact of receiving a form in the post to initiate Advance Care Planning, w...

Peter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode.  Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller. This is an important episode of Conversations About Advance Care Planning. It's a very reflective episode with learning for us all. I met with Caroline England, founder an...

In this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Companion Voices and how this could fit with a person's A...

In this episode it is my pleasure to catch up with Martin and look back at episodes 51 to 74 of Conversations About Advance Care Planning. We talk about the episodes that have had the greatest impact on Martin and address barriers to creating Martin's Lasting Power of Attorney. As ever, I am surprised and blown away by Martin's creative approach to Advance Care Planning, and even the fun he is hav...

This is the last in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about changing plans, anticipatory grief an...

This is the sixth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what to do after a person has died a...

This is the fifth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what changes to be aware of as someo...

This is the fourth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might...

This is the third in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about what equipment might be needed to he...

Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. This is the second in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many...

This is the first of a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode we talk about how to recognise when someone might...

In this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's death and how different conversations at the time c...