Conversations About Advance Care Planning

In this episode it is my pleasure to talk with Professor Julian Abel. Julian became a consultant in palliative care in 2001 and was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care.  We talk about his new work in the National End of Life Care Coalition and explore a community...

Get Ahead of Being Dead is Evie King's new book. In this discussion Evie shares why the book has been written and takes us on a journey through the chapters in classic Evie King style. Listen, learn…and laugh too. For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to prov...

The ReSPECT process has been widely implemented. It stands for the Recommended Summary Plan for Emergency Care and Treatment and, when used well, it provides a guide for clinicians to ensure people's wishes and values are respected in an emergency situation.  Communication is at the heart of ReSPECT.  In my conversation with Sharan Harris-Christensen we explore what good communication means and ho...

In this episode I talk with Dr Barny Hole, a  kidney doctor and researcher, about patient preferences for kidney failure treatments. We discuss a review paper and focus specifically on the biomedical versus person-centred paradigms of nephrology practice. Our discussion has relevance to all long-term condition decision making. For information about Advance Care Planning, see the  Advance Care Plan...

Talking with Jorden helped me to understand how not to compartmentalise EDI. Advance Care Planning is about what matters most to a person,  with identity and inclusivity at the very heart of care. Find out more about EDI and planning ahead through the lens of patients, staff and systems in this fascinating conversation.   Resource mentioned in this episode National Inclusion Week® | Inclusive Empl...

Could we start planning ahead earlier? This question is asked by Dr Sonya Bushell as part of a research study and the results have implications for us all. Listen in to find out about Sonya's research, what inspired the work and how we can shift planning ahead from a medical to a societal model.   Resource mentioned in this episode Read Sonya's research:  Attitudes to earlier advance care planning...

Communication underpins Advance Care Planning. But what is effective communication and how can it be taught? In my conversation with Sharan Harris-Christensen you will hear challenges, opportunities and the power of being vulnerable as we explore RealTalk. Resource mentioned in this episode RealTalk:  Engaging people in end of life talk - Real Talk - Real Talk Education with Treetops Hospice:  Edu...

Dr Emma Clare is a Chartered Psychologist, End of Life Doula, and founder of Death Wired Differently, a platform providing resources, information, and training on neuro-affirming approaches to death, dying, caregiving, and grief support. In our conversation, Emma shares why so many Advance Care Planning conversations just don't work for neurodivergent people. Want to know what does work? Listen in...

In this episode it is my pleasure to learn about the first ever national Power of Attorney Day from Alison Harvie, Power of Attorney Day campaign lead. It is a super discussion - listen in to hear about the brilliant resource available and how you can be involved. Key messages Alison shares her personal story of supporting her father with advanced Alzheimer's and the impact of Power of Attorney fo...

What is realistic choice and how  is this supported by shared decision making? I was privileged to ask  Dr Jude Partridge, a consultant geriatrician with the POPS Team at Guys and St Thomas' hospital these questions. Listen in to hear what the evidence tells us, how this can be operationalised and what a tremendous difference it makes.   Resource mentioned in this episode Making shared decision-ma...

I am delighted to open the new season with Professor Jugdeep Dhesi, geriatrician and President of the British Geriatrics Society. Listen in as we explore the changing demographics of dying and the vital role geriatricians play in joining the dots in Advance Care Planning. This episode is a personal one. I  have recently experienced how easily care can become fragmented - and focus on isolated prob...

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources. In our final episode of this season we talk about words used when someone...

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Ayre, we focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources. In our penultimate episode, episode nine we talk about the word "pathway"...

In episode eight we talk about what CPR is, and when it might be considered an inappropriate treatment. Listen in and share the conversations. For information about Advance Care Planning, see the  Advance Care Planning Explained resource on my website   Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete educatio...

In episode seven we talk about medication and syringe pumps in the last days of life. Listen in and share the conversations. Resource mentioned in this episode Listen to   Anticipatory Prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers Read: The Gosport Report   Watch: 'Dying is not as bad as you think' | BBC Ideas  By Dr Kathryn Mannix   For information a...

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resources.. In episode six we talk about nutrition and hydration in the l...

In episode five we talk about choice and autonomy. Listen in and share the conversation.. Resource mentioned in this episode Blog:  Assisted Dying – an open letter to Esther Rantzen   Read  Hope for the Best Plan for the Rest Access the  Waiting Room Revolution  podcast  For information about Advance Care Planning , see the  Advance Care Planning Explained resource on my website   Find out more ab...

In episode four we talk about  what we mean by treatment, withdrawal and care.  Listen in and share the conversations. Resource mentioned in this episode GMC Guide: Treatment and care towards the end of life: good practice in decision making Podcast: When doing nothing is doing everything with Dr Erica Borgstrom   Podcast: Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of...

In episode three we talk about Care in the last days of life, we explore terminology, recognise the challenges of identifying this phase of life and share resource and information about Ordinary Dying. Listen in and share the conversations. Resource mentioned in this episode NICE  Care of dying adults in the last days of life  Quality standard Reference number: QS144 Published: 02 March 2017 One C...

Exploring words and busting myths associated with palliative and end of life care. Over the course of 10 podcasts I am delighted to talk with Dani Aye season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words and we'll share valuable resource. In episode two we talk about Palliative Care, what it is, socie...

Welcome to a new season of podcasts. I am delighted to welcome back Dani Ayre, explore words and bust myths associated with palliative and end of life care. Over the course of this season, we will focus on a word a week and challenge commonly held beliefs. Why? Because words matter - you will hear the impact of myths around words. In episode one we talk about End-of-Life Care, what it is, societal...

Hi, Clare here on the other side of the mic for once! I was honoured recently to be asked to talk with Ruth Germain for her brilliant podcast - so who cares anyway. Listen in to hear our discussion…. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I c...

In this episode, released during National Grief Awareness Week, I catch up with James Norris about Communication Technology & Bereavement. Listen in to learn about valuable new resource and the different ways this can support people who are bereaved. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.spe...

Have you ever wondered about the complexity of Advance Care Planning in a critical situation? This episode expands the theme of "decision to treat at home", with paramedic Tom Pullen. It's a case study in which Tom shares the nuance of decision making. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.s...

"Decision to treat at home", five small words but a huge impact. Listen in to hear how a shift in language can shape person centred care with paramedic Tom Pullen.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find in...