Cerebral Palsy Alliance Research Foundation
Changing What's Possible: The Disability Innovation Podcast
This podcast introduces you to cutting-edge science, technology, and innovation that make real-life impacts on people with disabilities. Companies and individuals around the world are creating new products and improving the accessibility and affordability of technology to facilitate mobility, communication, and participation in everyday life. As part of its focus on technology and innovation, Cerebral Palsy Alliance Research Foundation (CPARF) runs the Remarkable US program — part of the global Remarkable program founded and run by Australia's Cerebral Palsy Alliance. Through its work, CPARF s...
Be sure to visit the podcast's website and support the creator: cparf.org
Where to listen?
Podcasts in the app Replaio Radio Coming soonPodcasts are coming to the app soon. Install now and be the first to see a whole new take on podcasts
Episodes
S3, 23 - Research Roundup: Shining A Light on Vision Problems in People With Cerebral Palsy 06.12.2024 12:45
It's estimated that anywhere from 75-90% of people with cerebral palsy (CP) have vision problems, and research aimed at better understanding vision in people with CP could help improve care and quality of life for these individuals. To wrap up our third season, Dr. Marie McNeely hosts this Research Roundup episode featuring three recent studies examining aspects of vision in people with CP. These...
S3, 22 - Research Roundup: Expanding Our Understanding of Physical Activity in Individuals With CP 22.11.2024 9:24
Substantial and growing evidence supports the wide-ranging benefits of physical activity, but cerebral palsy (CP) and other disabilities can affect how a person engages in physical activity and what activities they should do to maximize their benefits. In this Research Roundup episode, Dr. Marie McNeely talks about three new studies that focused on physical activity in people with CP. The results...
S3, 21 - Feel the Rush of Action-Packed Parasports with the Game Phenoms from Big Karma 15.11.2024 55:37
Adaptive sports are filled with thrilling moments and jaw-dropping athletic feats from amazing athletes. But these sports and the phenomenal athletes who are at the top of their game remain a relatively untapped source for game developers. Pascal Clarysse kicks off this episode by sharing more about Big Karma, one of the startup companies in the 2024 Remarkable US Accelerator Program. As a founder...
S3, 20 - Research Roundup: Postural Differences May Impact Pain and Other Aspects of CP 08.11.2024 9:10
The separate parts of our body are connected, and problems in one area can affect other aspects of our physical and mental health. Researchers are working to better understand the relationships between different symptoms of cerebral palsy (CP) and the impacts these symptoms can have on the everyday lives of people with CP. In this Research Roundup, Dr. Marie McNeely discusses three new research pa...
S3, 19 - Understanding the Healthcare Needs and Research Priorities of Adults with CP with Cristina Sarmiento, MD 01.11.2024 44:56
The majority of people living with cerebral palsy (CP) today are adults, and more research is finally being done to better understand the unique healthcare risks and needs of adults with CP. However, many gaps remain in both research and healthcare for adults with CP. Dr. Cristina Sarmiento is a clinician and researcher who focuses on the transition from pediatric to adult healthcare for adults wi...
S3, 18 - Research Roundup: New Studies to Support Lifelong Management of CP 25.10.2024 10:55
About 18 million people worldwide have cerebral palsy (CP). CP's impacts span a person's whole lifetime and will likely change with age. Thankfully, more recent research has been aimed at better understanding important issues related to managing CP throughout adulthood. This Research Roundup with Dr. Marie McNeely features three new research papers in this area. They examine important factors for...
S3, 17 - Opening Doors for Greater Accessibility with We Hear You 18.10.2024 47:32
Technology can make it easier for people with disabilities to access and engage with their communities, and We Hear You is dedicated to building a world with diversity and inclusion as the foundation of innovation. In this episode, you'll hear from Pierre Paul and Ashley Schreck. Pierre is Founder and CEO of We Hear You, a startup company in our 2024 Remarkable US Accelerator Program. Pierre sh...
S3, 16 - Paralympian Jeff Butler Shares Innovations in Accessibility Solutions From the 2024 Games 11.10.2024 14:50
Tremendous progress has been made in the development of technology and other innovations to support people with disabilities and make the world more accessible, but we still have a long way to go. The Paralympic Games have been a key driver of innovation and are changing the way that people perceive disabilities and assistive technologies. In this episode, you'll hear from Paralympic athlete Jeff...
S3, 15 - Changing Clinical Care to Better Treat Pain for People with CP — With Dr. Amy Bailes and Dr. Mary Gannotti 04.10.2024 46:43
The vast majority of people with cerebral palsy (CP) experience chronic pain throughout their life. Even though this pain is incredibly common, it's often not adequately treated or managed in regular clinical care. Pain treatment delays can lead to more severe pain or other health problems later on. To improve how clinicians treat pain, it's essential for them to regularly screen patients for pain...
S3, 14 - Research Roundup: New Insights on Surgical Interventions and Medications for CP 27.09.2024 10:19
For years, surgeries and medications have been used to manage different symptoms that people with cerebral palsy (CP) experience. As new surgical approaches are developed, new medications become available, and new data are collected on the effects of these treatments, clinical care continues to evolve. Hosted by Dr. Marie McNeely, this Research Roundup covers three recently published papers that s...
S3, 13 - Make Your Home More Accessible with a Modular Addition from WheelPad 20.09.2024 42:20
Finding accessible housing or making your current home more accessible can be difficult, and navigating the process of getting permits and renovating to improve accessibility can be complicated and expensive. Sudden needs for accessible housing are a particular problem for many people with spinal cord injury, progressive diseases like multiple sclerosis (MS), or other conditions that impact mobili...
S3, 12 - Innovation in 5: Empower Yourself to Live an Active and Engaged Life 13.09.2024 10:31
Living an active lifestyle has wide-ranging benefits, including better mental and physical health. However, people with physical disabilities experience unique obstacles, and it can be difficult to decide which adaptive activities are right for you. The Kelly Brush Foundation is dedicated to inspiring and empowering people with spinal cord injuries to lead active and engaged lives. Through the Act...
S3, 11 - Achieve Your Goals with Leantime's Project Management Software for People Who Think Differently 06.09.2024 50:03
If you feel daunted by your never-ending task lists and have struggled trying to use a range of different solutions at work — from notebooks and spreadsheets to sophisticated project management tools — you're not alone. Most work environments and project management tools aren't designed to meet the needs of people with attention-deficit/hyperactivity disorder (ADHD), dyslexia, autism, and other co...
S3, 10 - Research Roundup: Telehealth and Virtual Reality Could Make Treatments More Accessible and Engaging 23.08.2024 9:00
Telehealth and virtual reality (VR) approaches have the potential to transform healthcare for people with disabilities who often face barriers in receiving the care they need. In our latest Research Roundup episode, we highlight three recent papers that examine these two approaches. One study focused on the development and evaluation of a new exercise program for children with cerebral palsy (CP)...
S3, 9 - Starting Up: Accessible Accommodations, Inclusive Marketing, and More with Martyn Sibley 16.08.2024 49:12
Martyn Sibley is on a mission to create a more inclusive world, and his work as an entrepreneur has involved building communities, making it easier to find accessible accommodations, curating and sharing relevant disability-related information and stories, and increasing disabled representation in the content and media we see every day. With co-founder Srin Madipalli, Martyn launched a disability...
S3, 8 - Innovation in 5: Get Adaptive Apparel that Suits Your Style from Cadense, Equability, and Springrose 09.08.2024 8:24
Getting dressed is an everyday task that many people with disabilities dread because finding clothes and shoes that look good and meet your needs can be a major challenge. No one should have to sacrifice independence, comfort, or style to find fashion that works for you. This episode features three startup companies that are making waves to make apparel more fun and functional to meet the needs of...
S3, 7 - Bringing Biomotum's Wearable Robotic Walking System to the Home with Dr. Collin Bowersock 02.08.2024 42:52
Imagine what you could accomplish if you could walk farther, go faster, and use less energy. For people with mobility-related disabilities, making this a reality with assistive technology would be transformative. In our first season (episode 5), we introduced you to Biomotum, a startup company dedicated to developing life-changing robotic orthotics to improve mobility for disabled people who walk....
S3, 6 - Research Roundup: Updates on Technological Interventions for People with CP 26.07.2024 8:58
Researchers and innovators are creating novel technologies that address unmet needs, improve function, and enhance quality of life for people with disabilities. This short Research Roundup episode features three recent studies that highlight the development and evaluation of new technology-based interventions for people with CP and other disabilities, including a customized 4-D printed hand orthos...
S3, 5 - Starting Up: Helping Blind People See the World Better with Be My Eyes 19.07.2024 45:24
Millions of people around the world navigate their daily lives with low or no vision, and this can be particularly challenging when their environments aren't accessible. Common tasks like doing laundry or buying something online could be made much easier if they could — even just for a moment — see what's in front of them. Be My Eyes meets this need by connecting people with low or no vision to si...
S3, 4 - Research Roundup: New Studies Aim to Improve CP Diagnosis and Outcome Prediction 12.07.2024 9:33
Scientists around the world are continuing to make important advances in research that could improve the lives of people with cerebral palsy (CP) and other disabilities. In this short Research Roundup episode, host Dr. Marie McNeely talks about four recent studies focused on diagnosing CP and other conditions, as well as predicting outcomes. These papers examine new diagnostic approaches being dev...
S3, 3 - Creating Caregiving Robots to Help With Everyday Activities With Drs. Bhattacharjee and Dimitropoulou 28.06.2024 50:25
As the fields of robotics and engineering advance, the utility of robots is no longer limited to performing simple, repetitive tasks. However, for physical robotics to be useful in real-world situations, they must be able to perform in variable and unstructured environments, as well as take into account the needs and characteristics of each individual user. This is particularly important for assis...
S3, 2 - Innovation in 5: Stress Less About Finding Accessible Public Bathrooms with Ahoi and Momentum Refresh 21.06.2024 6:37
Whether you're planning to go to an event or even just catch up with friends over a cup of coffee, you shouldn't have to worry about whether or not there will be a bathroom available that meets your needs. Even if public bathrooms comply with all of the Americans with Disabilities Act Standards for Accessible Design, they can still be difficult or impossible to use for people with cerebral palsy a...
S3, 1 - Monitoring Movements for Earlier CP Diagnosis With Dr. Colleen Peyton 14.06.2024 43:15
For many families, a child's cerebral palsy (CP) diagnosis is made around two years of age or even later. But diagnosing cerebral palsy earlier allows clinicians to take advantage of critical developmental periods during the first two years of life. During this time, a baby's brain rapidly develops, and brain activity and pathways are shaped by their experiences. Starting interventions during crit...
S3, 0 - Jocelyn Cohen and Molly Lazarus Share What's New in Season Three 07.06.2024 6:57
Jocelyn Cohen, Vice President of Education at Cerebral Palsy Alliance Research Foundation (CPARF), and Molly Lazarus, Director of Remarkable US, are featured in this introductory episode for season three of Changing What's Possible: The Disability Innovation Podcast. They share exciting updates from CPARF and Remarkable, and they explore the new types of episodes that we'll feature in season three...
S2, 12 - Improve How You Move and More With Noninvasive Spinal Stimulation from SpineX 06.10.2023 49:57
Cerebral palsy, spinal cord injury, and other neurological conditions can impact how information travels from your brain to other parts of your body. SpineX, a startup company in our 2023 Remarkable US Accelerator Program, develops noninvasive solutions that use painless electrical stimulation to change the nervous system's activity to improve function and enhance quality of life. In this episode,...
Similar podcasts
Replaio is not a podcast publisher; show names, artwork and audio belong to their authors and are distributed through public RSS feeds.