AAMDSIF Podcasts for Patients

Dr. Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.

New marrow: SCT, BMT, and GvHD with Dr. Corey Cutler, Medical Director, Stem Cell Transplantation Program at Dana Farber Cancer Institute. Learn all about the risks, benefits, and side effects of the transplantation process in this recent recording.

Hedgehog Pathway Inhibitors, Vitamin C, and MDS: what you need to know, featuring Dr. Raoul Tibes of Perlmutter Cancer Center at NYU Langone.

Persistence, Advocacy, and a Clinical Trial: Theresa is now a Survivor!

Thirteenth episode of the AAMDSIF podcast. Imagine being ready to launch your career, then being thrown off course by both aplastic anemia and PNH, all at once! Listen to Sarah's story of her path to survivorship here.

Eleventh episode of the AAMDSIF podcast. Kat hears patients ask: "I have this bone marrow failure problem again, how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.

Tenth episode of the AAMDSIF podcast. From a sunny, lively retirement to MDS then AML? That was Shirley's life! After treatment in a Clinical Trial, she is successfully in remission, still playing accordion! This is her story.

Ninth episode of the AAMDSIF podcast. Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!

Eighth episode of the AAMDSIF podcast. So many decisions! Nancy Corbitt, nurse navigator, coaches us through the decision-making process for bone marrow failure as well as how to deal with side effects of medications.

Seventh episode of the AAMDSIF podcast. Patrice led the charge in her treatment for aplastic anemia, followed by bone marrow transplant. Discover how she made not just surviving but thriving her own goal here!

Sixth episode of the AAMDSIF podcast. Duane shares his story of MDS treatments, and how MDS interrupted his life.

Fifth episode of the AAMDSIF podcast. “Three hours after they drew my blood, my doctor called to tell me to go immediately to the emergency room!” Because Kirollos was a pharmacy student, he understood that having such low blood counts needed fast treatment, but he was still surprised. Discover how he progressed from diagnosis to transplant to survivorship quickly here.

Forth episode of the AAMDSIF podcast. "Never give up!" That's Brandi's advice to patients. Her diagnosis was months in coming, and then more time to find the best allogenic donor for her transplant---over 19 months in the hospital between diagnosis and successful transplant.