AAMDSIF Podcasts for Patients

What is a clinical trial? When should a patient consider participating? Olga Rios, RN, at the NHLBI at the National Institutes of Health, answers these questions.

Christina Cline, RN, at the University of Florida Health Cancer Center, describes one of the common symptoms of treatment for bone marrow failure diseases: fatigue. Learn how patients can communicate about their fatigue with their health care team as well as which strategies may help.

What is Intermediate-Risk MDS, or Myelodysplastic Syndromes? Learn about this diagnosis with expert Dr. Swapna Thota in this recording.

Dr. Joshua Zeidner explains why it is critical for patients with MDS to receive an accurate diagnosis. He describes the steps to determine the presence of the disease, and also discusses some of the treatments available. #myelodysplasticsyndromes

Dr. Timothy Pardee discusses treatments for AML, or Acute Myeloid Leukemia, occurring in older adults.

Dr. Norkin explains why and how patients with PNH can develop blood clots, as well as prevention and treatment.

Treating PNH, or paroxysmal nocturnal hemoglobinuria, continues to evolve. Learn about the latest treatments with Dr. Allysono Pishko here.

Older adults may have the option for a bone marrow transplant, depending on a number of factors. Listen to Dr. Nandita Khera here to learn more.

Dr. Rory Shallis details treatment options for MDS, or Myelodysplastic Syndromes.

Dr. Jacqueline Garcia describes how hypomethylating agents are used in treatment.

Dr. Amer Zeidan from Yale School of Medicine explains the uses, benefits, and risks of the newly approved treatment, Inqovi.

Dr. Eunice Wang explains the origin and treatment of secondary MDS. Dr. Wang is the Chief of the Leukemia Service at Roswell Park Comprehensive Center.

Dr. David Steensma discusses MDS and toxins with Leigh Clark, Patient Educator. Dr. Steensma is an associate professor at Harvard Medical School and faculty member in the leukemia program at the Dana-Farber Cancer Institute and Brigham and Women's Hospital in Boston, Massachusetts and the Edward P. Evans Chair in MDS at Dana-Farber Cancer Institute

Dr. Abdulraheem Yacoub talks with Leigh Clark about MDS-MPNs overlap. He includes how molecular testing is used in determining treatment options. He also discusses the newly approved drug, Luspatercept, for the treatment of MDS and MDS-MPN overlap syndromes.

Discussion of the recent approval of Luspatercept with Doctor Amit Verma, Director of the Division of Hematologic Malignancies and a Professor of Oncology at the Albert Einstein College of Medicine in New York City. #MDS #treatingMDS

Dr. Gustavo Rivero describes strategies for management of Low-Risk MDS, or Myelodysplastic Syndromes. He details supportive care for these patients, including transfusions and iron overload therapies.

Dr Vu Duong explains risk classifications for MDS. He dives into IPSS and IPSS-R scores, focused on helping patients to understand the meanings of high-risk and low-risk MDS.

Dr. Tiffany Tanaka from the University of California, San Diego explains the development of High-Risk MDS into AML. She talks about new diagnostic and treatment regimens for these patients.

MDS: Eliot shares his journey of diagnosis, treatment, transplant, and clinical trial for MDS with IDH1 and IDH2 mutations and AML. Myelodysplastic Syndromes, Acute Myeloid Leukemia, bone marrow transplant

Dr. Ehab Atallah describes advances in bone marrow transplant to treat MDS, Myelodysplastic Syndromes, in older patients.

Thomas was too young for MDS, typically. His mom, Terri, describes diagnosis, treatment, and survivorship for him here. #myelodysplasticSyndromes #myelodysplasia #BoneMarrowFailure

Three generations of MDS, and Leigh Ann is stuck in the middle! Discover not only how she and her son are surviving, but also how far clinical research has advanced since her mother's disease here.

Why would I choose a clinical trial? What kind of additional care would I receive? How do I know if I qualify? Christina Cline, RN, BSN, CCRC explains both patient and nurse navigator roles in this recent recording.

Mark had no symptoms prior to diagnosis. Even more surprising was the "watch and wait" treatment plan! Listen to this recently recorded episode where Mark describes living as an MDS survivor now.

Brian's surprise MDS diagnosis leads to an unsettling strategy: watch and wait! Listen to him describe how he makes the most from the long-term waiting with low-risk MDS in this conversation with AAMDSIF.