ImmUnity Canada

Slice of PI

Health EN ↓ Odcinki: 92

A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI. Season 3 of Slice of PI is supported, with thanks, by Pharming

Koniecznie odwiedź stronę podcastu i wesprzyj twórcę: immunitycanada.org

Autor

ImmUnity Canada

Kategoria

Health

Strona podcastu

immunitycanada.org

Ostatni odcinek

1 cze 2026

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Odcinki

Trailer: Ep 34 Research Nurse Coordinators 09.12.2024

Take a listen to what is coming up in the next episode of Slice of PI when host, Andrea, looks at the importance of the research nurse coordinator role when it comes to clinical trials.  Guest: Jordyn Arnold Season 3 is supported by Pharming

Ep 33: Pregnancy and Childbirth, from genetic counselling to IVF 06.12.2024

This week on Slice of PI, Andrea looks at the challenges pregnancy and childbirth poses to the primary immunodeficiency community. Join Andrea as she tackles topics of genetic counselling and IVF, and how these are and can be supported in Canada. This week's guest is Jennifer DiRaimo, a genetic counsellor and researcher with the Platelet Disorder Support Association.  Season 3 is supported by...

Trailer Ep 33: Pregnancy and Childbirth 02.12.2024

Take a quick listen to what's coming up next on Slice of PI in episode 9: Pregancy and Childbirth, from genetic counselling to IVF Season 3 is supported by Pharming

Ep 32: Men's Mental Health 29.11.2024

Join Andrea and special guest MP Matt Jeneroux for a Slice of PI Movember episode on Men's Mental Health.  In this episode they will discuss breaking the stigma of men's mental health and the awareness that is needed to create safe spaces for men in everyday places. Season 3 is supported by Pharming

Trailer Ep 32: Men's Mental Health 25.11.2024

Take a quick listen to what's coming up next as Andrea is joined for a special Movember episode by MP Matt Jeneroux to talk about Men's Mental Health.  Season 3 is supported by Pharming

Ep 31: APDS 22.11.2024

Join Andrea and her guest clinical immunologist, Dr Julia Upton, as they discuss a rare and underdiagnosed primary immunodeficiency, APDS. Would you know the signs, symptoms and what to look for?  Season 3 is supported by Pharming

Trailer Ep 31: APDS 18.11.2024

Take a look at what is coming next week in episode 8, "APDS" Season 3 is supported by Pharming

Ep 30: Social Workers and Life Specialists; the importance of a holistic approach 15.11.2024

This week, Andrea looks at the ins and outs of supporting patients and their families including the planning and emotional strategies. Join her as she explores why professionals such as social workers and child life specialists are so necessary in a holistic approach to care. This week's guests include Danielle Sikora and Stephanie Wanner.  Season 3 is supported by Pharming

Trailer Ep 30: Social Workers 11.11.2024

Take a look at the next episode, "Social workers and child life specialists; the importance of a holistic approach" Season 3 is supported by Pharming

Ep 29: Clinical Trials in Canada 08.11.2024

This week, Andrea talks to two experts, Dr. Thierry Lacaze and Breanne Stewart from RareKids CAN, about the importance of clinical trials for rare disease patients and families in Canada and what they are doing to change things.  Season 3 is supported by Pharming

Trailer: Episode 29, Clinical Trials 04.11.2024

Take a listen to what is coming up in the next episode of Slice of PI, "Clinical Trials in Canada" Season 3 is supported by Pharming

Ep 28: DNA Music, Part 2 01.11.2024

Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 2 of 2  Season 3 is supported by Pharming

Trailer Ep 28: DNA Music, Part 2 28.10.2024

Trailer for episode 5 Season 3 is supported by Pharming

Ep 27: DNA Music Part 1 25.10.2024

Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 1 of 2 episodes Season 3 is supported by Pharming

Trailer Ep 27: DNA Music, Part 1 21.10.2024

Trailer for episode 4, part 1 Season 3 is supported by Pharming

Ep 26: Gene Therapy Abroad 18.10.2024

Gene therapy seems to be everywhere right now. But what is gene therapy? What is happening in Canada with gene therapy? And more importantly, what is happening in other countries that can teach us to create a sustainable solution for children with ultra-rare diseases to access novel gene therapies? In this episode, Andrea talks to Dr. Claire Booth, a pioneer in gene therapy in Europe to answer som...

Trailer Ep 26: Gene Therapy Abroad 14.10.2024

Trailer episode 3 Season 3 is supported by Pharming

Ep 25: National Patient Registries 11.10.2024

What are patient registries? Why are they important and why should patients and caregivers care about about them? How can they impact patient care? Is there a patient registry for primary immunodeficiency in Canada? This week, Andrea talks to Dr. Beata Derfalvi as they answer some of these questions and also look at what Canada can learn from other countries.  Season 3 is supported by Pharming

Trailer Ep 25:National Patient Registries 07.10.2024

Trailer for episode 2 Season 3 supported by Pharming

Ep 24: Intro to Season 3 - We're Back! 04.10.2024

Andrea is back with another season of Slice of PI! In this episode, host Andrea Fernandez de Soto, looks at what is in store over for listeners this season in Slice of PI.  Season 3 is supported by Pharming

Slice of PI Season 3 Trailer - We're Back! 02.10.2024

Slice of PI is back for Season 3!  Trailer for Episode 1, Intro to Season 3 Season 3 is supported by Pharming

Ep 23: Final Thoughts 27.05.2022

In the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.

Trailer S2: Episode 23 20.05.2022

Take a listen to what is coming up in the final episode of "Slice of PI" season 2.

Ep 22: Self Care, Parenting and Fun 13.05.2022

In the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff. 

Trailer S2: E22 09.05.2022

Take a listen to Friday's episode where Andrea will discuss  the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff. 

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