My Invisible Disease

Amanda, a resilient and determined advocate for invisible diseases, embarks on a mission to shatter misconceptions, forge connections, and reclaim her identity amidst the isolating journey of chronic illness. She has firsthand experience living with lupus, an incurable autoimmune disease. After going undiagnosed for 21 years, Amanda has gained a deep understanding of the challenges that come with...

Get ready to meet Saffron Cassady, a talented filmmaker and an incredible woman who has been living with ulcerative colitis since her early twenties. With her background in filmmaking, Saffron took her personal experiences with chronic illness and turned them into a powerful documentary. She dives deep into the world of alternative treatments for ulcerative colitis, shining a spotlight on the intr...

Unlocking the Hidden Secrets of Your Health: The Power of Functional Testing with Heather Gray Struggling with relentless health issues that seemed to have no cure, Heather Gray's life was a constant battle. From Lyme disease at 13 to severe neurological problems, she felt abandoned by the Western medicine system. But just when she thought all hope was lost, a chance encounter with a podcast...

Advanced Directives and Advocacy: Jenna Swanson's Journey with Chronic Illness Join resilient nurse Jenna Swanson as she battles Vesicoureteral Reflux and Chronic Kidney Disease, advocating for self-care and self-advocacy amidst the trauma and isolation of living with chronic illness. It's time-consuming. It's embarrassing. My special guest is Jenna Swanson Jenna Swanson is a loving...

Managing Chronic Illness as a Special Needs Mom with Sarah Young Sarah Young's life seemed destined for struggle, from her childhood diagnosis of Crohn's disease to raising a neurodivergent child. But what's surprising is how she found the strength to persevere and thrive. Through her journey, she discovered the importance of self-care for special needs moms and the unique gifts of...

Healing Together: The Benefits of Connecting with Others on the Invisible Disease Journey Does this sound familiar? You're struggling with an invisible disease, feeling alone and isolated. You've been told to just tough it out or stay positive, but it's not helping. In fact, it's making you feel even more frustrated and misunderstood. The pain of being dismissed and unsupported...

Julie Fry's Journey: Living with Chronic Lymphocytic Leukemia Are you looking for a way to cultivate emotional wellbeing and positivity? Julie Fry is here to share her insight on how to promote joy and self-care through gratitude practices. In this episode, you will be able to: Master the complexities of chronic lymphocytic leukemia diagnosis and treatment for improved decision-making. Achiev...

Does this sound familiar? You're struggling with an invisible disease, feeling alone and isolated. You've been told to just tough it out or stay positive, but it's not helping. In fact, it's making you feel even more frustrated and misunderstood. The pain of being dismissed and unsupported can be overwhelming. But there's hope. Finding a supportive community can make all t...

Unlocking Emotional Healing with River Staines: A Chronic Illness Journey River Staines was just 22 and facing an incurable chronic illness. With numerous healing modalities and a newfound gift for energy work, she was determined to not accept her fate. Against all odds, her remarkable strength and resilience allowed her to heal herself and find her true calling. What was this unexpected twist in...

Unraveling Guillain-Barre Syndrome with Holly Frances: A Mother's Journey Paralyzed just weeks after giving birth to her first child, Holly Frances struggles to adjust to her new reality as she courageously battles Guillain-Barre Syndrome with the help of her inspiring support system and a conquering spirit. In this episode, you will be able to: Discover the intricacies and symptoms of Guilla...

Suzan Jackson is a freelance writer whose work focuses on topics related to health, family, travel, and media reviews and has appeared in many magazines, websites, and anthologies. She has had ME/CFS, an immune disorder, since 2002, and also has Lyme disease. Both of her sons also became ill with ME/CFS in 2004, at ages 6 and 10. Her younger son is now fully recovered, after 10 years of mild illne...

Living with chronic illness can be hard, but finding support and understanding makes all the difference. "It is one of those things that when I was first diagnosed, they were like, everyone knows someone with Ms, but I knew absolutely no one. I had no idea about the condition or that it was actually diagnosed quite young in people at all." Heather Russell-Kay is a teacher and actor diagn...

After Jenny Jones is wrongly dismissed as a "whiny child" with chronic abdominal pain, she discovers she has two rare diseases, undergoes multiple surgeries, and fights for the rights of children with rare diseases to receive the necessary health care. "If you arm yourself with the information and you don't hesitate to ask questions, you don't hesitate to ask for treatment...

"Unlock your inner strength and experience the power of resilience with a chronic illness journey that is truly iconic." "My health may be chronic, but this ass is iconic."- Ambre Minty Ambre Minty is a mum and chronic illness warrior, patient leader, feeding tube advocate, and Oley ambassador. She has been diagnosed with dysautonomia, gastropresis, Ehlers Danlos, colonic inert...

After being diagnosed with an Invisible Disease, two moms battle the physical and emotional roller coaster of chronic illness while also advocating for others and striving to create a community of support. Learn about Advocating for Invisible Disease through listening to two mothers living with chronic illness. This podcast discusses grieving physical losses, such as hair loss due to medications,...

In this episode of My Invisible Disease, Jenny and Kassy are Bitter Bettys. With chronic illness and a short fuse, they desperately seek to strike a balance between protecting themselves, maintaining empathy and compassion, and avoiding petty complaints as they navigate the holidays and a mountain of obligations. This episode is about Self-reflection on communication styles. Through listening to t...

Join us on our journey as we navigate the ups and downs of living with Invisible Disease and finding our balance with our partners and caregivers." This episode was about Caregiving and support, and how I learned that it is important to provide grace to both yourself and your partner when managing a chronic illness. I also learned that it is important to communicate clearly with your partner...

Do you know someone living with an Invisible Disease? How about someone who had to make the difficult decision to go public with their medical condition? Join us as we explore the difficult decision of going public with an Invisible Disease and the courage it takes to do so. Through our stories, we will uncover the emotional turmoil of facing an unpredictable future and the power of community in a...

Kassy Draper, a working mother of two who was leading a busy real estate career until she started experiencing chronic illness symptoms. After many inconclusive tests, she was put on a 10-day cycle of Prednisone to help manage her symptoms. She soon noticed a drastic weight loss, and she was struggling to keep up with her work and home life. On her birthday, she spent the day on the couch, exhaust...

For Jenny, the effects of chronic illness have been part of her life since childhood - her grandfather died of complications with his liver and her mother was the first in their family to undergo a liver transplant. But it wasn't until Jenny was 15 that she was officially diagnosed with polycystic kidney and liver disease. The lack of education in the medical community and the lack of knowled...

Invisible Disease is a podcast about the struggles of two moms living with chronic illness and the hacks they use to get through their day-to-day lives. "But also, I think there's just not enough of it right now. People don't know where to go. And I think when you can share and sometimes be vulnerable and sometimes put your dirty laundry out there, some people are going to hate it a...