Living With SMA

In the latest episode of the Living With SMA podcast, hosts Stephen, Louis, and Ben delve into the often-overlooked topic of men's wellbeing, particularly in the context of living with spinal muscular atrophy (SMA). With personal stories and practical coping strategies, they highlight the importance of mental health and the unique challenges faced by men in society today. Main Content: Unders...

Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant f...

Motherhood & Living with SMA: Everything You Need to Know   Description:   Becoming a parent is a life-changing journey, and when you’re living with a long-term condition like Spinal Muscular Atrophy (SMA), it comes with its own unique set of challenges and joys. In this video, we dive into  Motherhood—the experience of parenting while managing a disability.   Join us as we discuss:   ✅ Prepa...

Uni Life: Disabled and Thriving* In this episode, host Ross Lannon is joined by Molly Everitt and Zoe to dive into the real, practical side of university life as a disabled student. Together, they discuss everything from navigating campus accessibility to dealing with accommodations, managing workloads, and finding support networks. With personal stories, tips, and advice, this conversation covers...

Uni Bound: Navigating University Life with a Disability In this insightful episode of *Uni Bound*, host Ross Lannon is joined by guests Molly Everitt and Zoe Henderson for a candid discussion on preparing for university while living with a long-term disability. Together, they explore the added pressures of managing university life, from securing accessible accommodations in halls to coordinating s...

Join host Steven on this special Pride episode of *Pride and Possibility*, where we celebrate the vibrant intersection of the LGBTQIA+ community and disability pride. Steven is joined by three incredible guests: Shelby, Emily, and Jordanne, who each bring unique perspectives and experiences as individuals living with disabilities and proudly identifying as part of the LGBTQIA+ community. In this h...

Get ready to roll into the beat of festival vibes with our latest podcast episode, where we explore the world of festivals and gigs through the eyes of wheelchair users Jordanne, Mollie, and Ross, all living with SMA! 🎶✨ Join us as we navigate the highs and lows of festival accessibility, from the thrill of inclusive experiences to the challenges faced by wheelchair users. Jordanne, Molly, and R...

Get ready to witness an incredible feat of determination and resilience in our latest podcast episode, where two powered wheelchair users, Maxwell and Joshua, talk about an awe-inspiring journey to race up Snowdon and raise £100k for a worthy cause. 🏔️💪 In this exhilarating episode, we'll delve into the inspiring story behind their ambitious mission, aptly named #KnowNoBounds. Join us as we...

Step into the great outdoors with us in this special episode of our podcast, "Resonate." Join Molly, Ben, Ellie, Sophie, and Alicia as they share their incredible experiences from a weekend event designed to resonate with adults living with SMA (Spinal Muscular Atrophy). In this conversation, our guests take you on a journey through the beautiful landscapes, shared adventures, and profou...

Welcome to a festive and reflective episode of our podcast, where Ross and Luis take you on a delightful journey through the holiday season and the highlights of 2023. As the year comes to a close, join us in celebrating the joy of Christmas while unravelling Luis's potential undercover Grinch tendencies. In this special episode, we'll rewind the tape and revisit the incredible year we&a...

Welcome to an inspiring episode of our podcast, where we delve into the remarkable journey of Sam and Alex, two extraordinary individuals living with SMA (Spinal Muscular Atrophy). In this heartwarming conversation, we explore "A Positive Mindset and Career Aspirations" and how their experiences have shaped them into the determined, optimistic, and vibrant individuals they are today.   D...

Welcome to a deeply moving and enlightening episode of our podcast, where we shine a spotlight on "The Importance of Spinal Muscular Atrophy Advocacy" and the transformative power of social media in advocacy efforts. In this remarkable conversation, we are joined by four extraordinary individuals - Portia, Eden, Hamany, and Maxwell - who are helping to drive change in the world of Spinal...

Welcome to a thought-provoking and eye-opening episode of our podcast, where we delve into the world of online trolling and how it can impact individuals striving to achieve their goals. In this episode, we have the privilege of speaking with the resilient and inspiring Alex Dacy, who shares her incredible journey of handling ruthless online trolling while pursuing her dreams. Online trolling has...

Welcome back to the highly anticipated second part of our podcast episode on the profound connection between mental health and living with a long-term condition. Building upon the captivating story we shared in Part 1, this episode delves deeper into the transformative power of finding support and the results that can come from it. In this continuation, we explore the pivotal role of support for p...

Welcome to a truly inspiring and heartfelt episode of our podcast, where we embark on a deeply personal journey exploring the powerful connection between mental health and living with a long-term condition. In this first part, we delve into the extraordinary story of how an individual with Spinal Muscular Atrophy found solace and support through an unexpected bond with a Mental Health Professional...

Welcome back to our podcast, where we continue to explore the fascinating journey of transitioning into school. In this special episode, we shift our focus to the next stage: transitioning from primary to secondary school. Join us as we dive deeper into this significant milestone in a child's educational journey. We'll hear from Grace McManus (mum of Sonny who lives with SMA) and our hos...

Welcome to our next episode, where we explore the exciting and sometimes challenging journey of transitioning into school, from nursery to primary. In this episode, we'll be diving deep into the many aspects of this significant milestone in a child's life with SMA. We'll hear from Portia Thorman and Charlotte Lavelle, as we explore the social, emotional, and academic dimensions of t...

Welcome to a brand new episode of our podcast, where we explore the incredible power of sport to transform lives and unleash human potential! In this episode, we'll be diving deep into the many ways in which sport can inspire, challenge, and elevate us to new heights. From the thrill of competition to the camaraderie of team spirit, sport has the unique ability to bring out the best in us, bo...

Welcome to the latest episode of our podcast, where we take an unflinching look at the state of care in the UK today. As one of the wealthiest countries in the world, the UK has a moral obligation to provide high-quality care for all its citizens, particularly those who are vulnerable or in need. But as we'll discover in this episode, the reality is far from ideal. We'll be delving deep...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE ) SMA UK host Ross Lannon chats to guests Luis Canto E Castro and Cath McNicol about festivities and how we can surprise our loved ones with gifts this Christmas when you have a disability. *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA* This content is not solely for the SMA Community.  We hope this discussion will be helpful to...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE ) SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career! *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA* This content is not solely for the SMA Community.  We hope this...

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE ) *TRIGGER WARNING* The conversations that take place today are of a sensitive nature regarding mental health, disability and mindset.  THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️ SMA UK host Ross Lannon chats to guests An...

Welcome to the Living With SMA Podcast. In PART 2️⃣  of Episode 21 of the #LivingWithSMA Podcast we'll be looking at the pros and cons of university. We'll also be talking about work experience and sharing advice for those who decide not to go to university. #LivingWithSMA   #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel here . Each of our guests today share...