Life with Long Covid

The covid pandemic might be a thing of the past for most people, but to some, it has changed their lives forever. In this episode, I reflect on having to stop doing some of the things I loved and coming to terms with a new life, with long covid. You can purchase my book here . Please subscribe to become a member of the community. Get full access to Life With Long Covid at www.lifewithlongcovid.co....

Chronic Illness can get you down. In this episode, I talk about why I have not uploaded an episode lately and how my illness affects my mental health. It's a candid, raw and honest exploration of how it affects me. Please do consider subscribing here You can purchase my book here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

This week I reflect on a visit to London on the train and rant about assessments! Please support the podcast if you can by subscribing here .My book is available here . Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

This week, I reflect on a recent post and a trip to our local hospital for a blood test. Rachel joins me again, and we read through some of the responses to the post and how, by sharing experiences, we can feel less alone. Subscribe to the show here to join the community and to receive posts and episodes. You can purchase Paul's book here . Get full access to Life With Long Covid at www.lifewithlo...

In this episode, I turn the tables on my wife, Rachel, and ask her about what it's like to live with someone who has Long Covid. It's a candid and honest conversation that will benefit anyone navigating chronic illness or supporting someone dealing with it. You can subscribe to receive more articles and episodes here . You can buy the book here . Get full access to Life With Long Covid at www.life...

This week, I reflect on an assessment I was asked to complete for benefits, aimed at judging how disabled I am due to Long Covid. It helped me reflect on my journey and how my life has changed in the past few years. Join the community here You can purchase Paul's book here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

I triumph on achieving a small task and reflect on Long Covid awareness day. Five years on from the pandemic's beginning, are we doing all we can to explore and treat this illness? You can support the Podcast and receive my articles here . My book is available from Amazon here . Paid subscribers get a free signed copy! Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscrib...

I often talk about 'crashing', but what does it really mean? In this episode I reflect on the different things that cause me to crash and the ways in which I attempt to explain it to others. You can purchase my book, Living with Long Covid, here . You can subscribe for extra content here , and also send me a message/comment on this episode or your Long Covid journey. Get full access to Life With L...

Organising a day out with mobility aids is no small task, but I thought I had cracked it. Armed with meticulous, military like planning and a new wheelchair I confidently planned a trip to Manchester. However, the unknown's are hard to plan for! You can purchase my book, Living with Long Covid, here . You can subscribe for extra content here , and also send me a message. Get full access to Life Wi...

In this week's episode, I discuss how important it is to maintain or rekindle friendships, even though it can be tough when you have an energy-limiting illness. Visit and subscribe to my substack here You can purchase my book here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

This week, I am joined by my wife Rachel as we discuss how I plan my day and how essential it is to look ahead with chronic fatigue. I also talk about using Visible, a useful tool for monitoring and measuring 'pace points'. This Podcast is now hosted with Substack, which means you can comment and subscribe for additional content here . Living with Long Covid, the book is out now! Get it here . Get...

When the lady on the phone told me I had accessible parking for my visit to a football stadium, I was pleased. However, what she left out could have meant being stranded. In this episode, I reflect on a recent day out and how we can feel vulnerable and at the mercy of others. Please take the time to review this podcast wherever you listen from.  Living with Long Covid, the book is out now! Get it...

This week, I reflect on a 'mini crash' and the difficulty of deciding what to do. I also discuss the difficulty of gaining weight and what I have tried to do about it.  Exciting news! I have released a book based on this podcast. You can find it on Amazon using this link; please do consider purchasing the Kindle or paperback version:  Buy it here Send Paul a text here Support the show Bu...

Living with long covid can feel like you are in limbo. I have felt like that for the past three years, and in this episode, I ask myself, "What am I waiting for?".  If you live with chronic illness, you will recognise this question.  I also read out some of your messages.  Please consider supporting my podcast by using the links below and leaving a review wherever you listen.  Send Paul...

I am back after a short hiatus!  In this episode, I explain what I have been up to and consider how Long Covid affects my mental health.  Send Paul a text here Support the show Buy me a coffee Here! Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

Long COVID has transformed the way I view my life and my identity, especially as I navigate the unexpected path of early retirement. How do you explain to others the profound impact of an invisible illness that alters every aspect of your life? This episode is an invitation to walk with me through the maze of isolation and misunderstanding that comes with long COVID. By sharing my personal experie...

I find myself constantly being grumpy with people who just want to help, and equally grumpy with people who don't offer! It is this contradictory mindset that I explore in this episode which hides a deeper fear of being vulnerable. As I come to terms with my disabilities, the move from being carer to being cared for is hard.  As always, I offer you this latest episode in full recognition that...

In this episode, I try to describe what it feels like to feel isolated with long covid. If you have a chronic illness and sometimes feel alone, this one is for you!  Imagine feeling trapped in an invisible world, where the echoes of long COVID linger long after the rest of the world has seemingly moved on. That's been my reality since January 2022.  I talk openly about the mixed bag of reacti...

How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the emotional landscapes and societal hurdles that come with my journey of ill health retirement. In our latest conversation, we confront the misconceptions and judgments that arise when trying to live fully while managing a chronic illness. Rachel and I...

What happens when the world moves on, but your body doesn't? From the isolation of feeling misunderstood to the frustration of being dismissed by others, I share my personal journey of living with persistent symptoms. Whether you're personally affected, know someone who is, or simply wish to broaden your understanding, this episode offers an unfiltered glimpse into the daily reality of l...

What happens when you find yourself facing long COVID for the third time, and the dread of uncertainty looms larger than ever? Join me, as I navigate my way through another bout of illness coinciding with my ill-health retirement. I found myself reflecting on the persistent fear of worsening symptoms and the isolation that comes with a healthcare system seemingly moving on from the pandemic.  This...

Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID, an invisible illness that has forced me to retire prematurely from my role as a vicar. I recorded this on my retirement day, at the age of 52.  Through the lens of my daily struggles with chronic fatigue, discover practical tips that have been pivot...

The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply?     I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive pa...

What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing th...

What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope to the crushing reality of isolation, li...