Paul Ian Clarke
Life with Long Covid
Long Covid is a debilitating reaction to the Covid virus that affects millions worldwide. In this podcast, Paul shares his experience of what it is like to live with it. www.lifewithlongcovid.co.uk
Author
Paul Ian Clarke
Category
Podcast website
Latest episode
Mar 13, 2026
Where to listen?
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Episodes
61: "It's great that you are getting better" 13.03.2026 18:14
Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
60: "What does your daily routine look like?" 02.03.2026 17:13
This week I reflect on an occupational health assessment. Reflecting on our own chronic illness can be hard, but this time I discovered unexpected gains. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
59: "Are you still ill?" 23.02.2026 17:17
In this episode, I reflect on the challenges of having a chronic illness after five years of Long Covid. I also give an update on oxygen therapy. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
58: "You look like a pilot from Top Gun" 13.02.2026 21:11
This episode focuses on my early experiences of high-dose oxygen therapy. With Rachel, I delve into how it has made me feel and the way my life has changed over the past four years. Join the community at www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
57: "What do you do all day?" 06.02.2026 22:00
In this episode, I reflect on a question I was asked recently: “What do you do all day?” It sounds simple, but living with Long Covid means the answer is anything but. I share an honest “day in the life,” from waking with fatigue, attempting small wins like walking the dogs, to the crashes, pacing decisions, and quiet frustration that often shape my days. I also talk about the boredom and guilt th...
56: Interlude: Your messages 30.01.2026 31:42
Life with Long Covid is more than a podcast; it is a community. This week, we read out some of your messages and reflect on how the community is helping one another. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
55: "What does it mean to live without guarantees?" 23.01.2026 20:44
In this episode of Life with Long Covid , I reflect on what illness quietly teaches us about control. Long Covid doesn’t just disrupt plans or routines; it exposes how much of life we assumed we were managing in the first place. When the body becomes unpredictable, effort no longer guarantees outcomes, and familiar systems stop working, the illusion of control begins to unravel. If you’re living w...
54: "Why am i feeling so low in January?" 16.01.2026 23:32
January can feel heavier than we expect. The decorations are down, the light is scarce, the weather has turned cold, and the new year arrives carrying a quiet pressure to feel motivated, hopeful, and ready to begin again. For many of us, that’s exactly when everything feels harder. In this episode, Paul & Rachel sit down to talk honestly about why January can leave us feeling low — emotionally, ph...
53: "What does hope look like in 2026? 08.01.2026 15:56
As a new year begins, we are often encouraged to think about fresh starts and big plans. But what if hope looks different now? In this episode, I reflect on reaching five years of living with long Covid and the quiet mental shift that has come with it. I’m no longer waiting to be better before allowing myself to live. Instead, I’m learning how to live honestly within the limits of my energy, healt...
52: "Happy Christmas" 19.12.2025 20:50
In this episode, I am joined by Rachel to talk about the fear of getting the flu and managing energy levels over Christmas. To join the community, visit our website at www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
52: "It's only Christmas!" 10.12.2025 14:23
Christmas can be magical… but navigating chronic illness makes that harder. This episode explores the hidden labour, the energy budgeting, and the emotional weight of big occasions when your body doesn’t cooperate. Visit www.lifewithlongcovid.co.uk to become part of the community. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
51: "You look better" 03.12.2025 15:11
I recorded something a bit personal this week. Some friends visited recently and reminded me that I’ve made progress this year. I have a little bit more energy, capacity, and can do things I genuinely couldn’t have done twelve months ago. But there’s a tension there, isn’t there? As soon as we say “I’ve improved,” people hear “I’m getting better and it’s never that simple. If you’re living with Lo...
50: "What’s going on with all these bizarre long covid symptoms?" 24.11.2025 20:18
It’s the 50th episode of Life with Long Covid — and what better way to celebrate than by talking about the most baffling, bizarre, and frankly ridiculous symptoms long Covid throws at us? In this episode, I explore the strange side of chronic illness: the jelly legs, the electric zaps, the temperature chaos, the sensory weirdness, and that moment when you forget why you opened the fridge in the fi...
49: "Why is it so hard to explain long covid to other people?" 17.11.2025 18:52
Living with long Covid means explaining the same things again and again — what fatigue really is, why brain fog isn’t just forgetfulness, and why rest isn’t laziness. In this episode, Paul shares the things people with long Covid wish others understood, without having to repeat them every week. I talk about unpredictable symptoms, cancelled plans, the emotional labour of keeping up appearances, an...
48: “What are your plans for the future?” 10.11.2025 22:04
How do you rebuild a future when so much is uncertain? In this episode, I try and explain how I am coming to terms with chronic illness and what things might look like in the future. It is raw and unfiltered (even my dog Maisie makes a background appearance!). To subscribe to receive an update and for all my previous work, including details of my book, visit: www.lifewithlongcovid.co.uk Get full a...
47: “You blame everything on Covid” 02.11.2025 18:00
In this episode, I discuss how Covid has caused secondary conditions and go on a rant about what it is like to live with them! I also reflect on the difficulty of making and keeping hospital appointments. Subscribe and become part of the community at www.lifewithlongcovid.co.uk. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
46: "Do I have to earn my worth?" 27.10.2025 21:46
This week, Rachel joins me as we discuss very honestly how my frustration at not being able to do things makes me question my self-worth. We also discuss whether Florence Nightingale might have had ME/CFS. www.lifewithlongcovid.co.uk To receive weekly posts and support my work, consider becoming a free or paid subscriber. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subsc...
45: "You should be working" 17.10.2025 14:34
It's impossible to live up to others’ expectations when you have a chronic illness. In this episode, I reflect on the negative influence of social media and the feeling that I should be contributing to the workplace. Visit www.lifewithlongcovid.co.uk to subscribe My book is available on Amazon. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
44: "Don't let your illness define your life" 13.10.2025 10:09
In this update, Paul shares openly and honestly about how long covid affects his mental health, particularly during a crash. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
43: "Why are you still talking about Covid?" 03.10.2025 21:00
I have now had the symptoms of Long Covid for more than three years. In this episode, I reflect on the journey so far and how the world seems to have moved on without us. To subscribe, please click here . Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
42 "You Have Changed" 26.09.2025 21:28
What does it feel like to have not only your job, but your self-identity stripped away? In this episode, Paul reflects on how much his life has changed since contracting Covid in 2021 and how the journey is far from over. www.lifewithlongcovid.co.uk Book Available on Amazon now, please click here . Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
41 "You might get a speeding ticket in that!" 19.09.2025 27:07
My scooter and wheelchairs have given me some of my freedom back and I am incredibly grateful for them. However, they also come with a lot of stress and sometimes I get fed up with having to use them. In this episode, I reflect on buying and using my wheeled friends and the shock of how much they cost. Please consider visiting and subscribing to my community here You can purchase my book here . Ge...
40: "You just need a good nights sleep" 12.09.2025 19:59
What is it like to suffer from chronic fatigue? In this episode I try to describe living with this aspect of long covid and peoples reactions to it. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
39: "Did you have a nice holiday?" 01.09.2025 21:59
After a summer break, the podcast is back! This week, I reflect on the experience of going on holiday and the challenge of changing routines with a chronic illness. If you find this podcast useful, please do consider following and reviewing. There is a lot more to 'Life with Long Covid', visit our page here to subscribe and receive all my updates. My book is available on Amazon here . Thank you so...
38: "I should be doing more" 02.06.2025 14:23
Sometimes I get stuck in the past and think that I am the Paul who used to have lots of energy and had lists of things to do everyday. Living with a Chronic illness has meant a period of adjustment, which I am still struggling with. You can purchase my book here You can subscribe to the community here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe
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