Let's Talk MND

Michael Schnieder is the Managing Director of Bunnings Group, Mike is also the Chair of Fight MND. Andrew Danson is a Director of The Leasing Collective. He is a board member of the South Melbourne Market.   Andrew is also President of Motor Neuron Disease Australia He has lived experience with the disease, with his father having passed away at the start of 2020. Fight MND and MNDA have recognised...

Tim Baker is the best-selling author of The Rip Curl Story , Occy, High Surf, Bustin' Down The Door,  Surf For Your Life, Century of Surf and Surfari.   He is a former editor of Tracks, Surfing Life and Slow Living magazines, and a three-time winner of the Surfing Australia Hall of Fame Culture Award. On July 7, 2015, Tim was diagnosed, out of the blue, with stage 4, metastatic prostate cancer I r...

 Andrew Denton is an Australian Gold Logie nominated television presenter and former radio host amongst the many, many, things that Andrew has done. He was the host of the ABC's brilliant interview program and my favorite show ever, Enough Rope. Andrew founded Go Gentle Australia in 2016. Go Gentle is a charity which promotes end of life choices. including the option of voluntary assisted dying. G...

Emma Vulin is a Member of the Victorian Parliament. She is the Member for Pakenham. Emma was diagnosed with MND in April of 2024. Emma is so open and honest about her diagnosis with MND and the changes that are happening to her and her family. Emma is smart, funny, loving and loyal. Enjoy her Podcast. https://www.parliament.vic.gov.au/members/emma-vulin/    

Welcome to the 2025 "Let's Talk MND" Podcast. Mark Puls was diagnosed with MND in 2022. Like many people living with MND, he is doing for others. He is raising funds for Prof Domonic Rowe at Macquarie University. Last year, they raised $13k. They are planning another event this October. This year, members of his family and some friends will climb Mt Fuji in Japan to raise awareness of MND. In this...

Barry Werth is a pharmacist. His wife Trean died of MND. Barry has so much experience and is bringing his wealth of knowledge to many MND research projects. He has also written a fabulous article on MND for Pharmacists so they can better care for their clients.   https://www.australianpharmacist.com.au/role-of-the-pharmacist-in-motor-neurone-disease/#:~:text=MND%20is%20a%20fatal%20disorder%20of%20...

Prof. Paul Tallman is a Neurologist who specialises in MND. Paul also is one of the leaders of the MiNDAUS Registry, he explains it to us, how it can help and how we can help. https://www.mindaus.org

Let's celebrate the first year of our Podcast

Troy Sachs is one of the world's most recognised and awarded Paralympians. He led the Australian Wheelchair Basketball team, the Rollers, to win two gold and one silver medal in five Paralympic Games from 1992 to 2008. In 1997 he was awarded an Order of Australia Medal and Australian Sports Medal in 2000. He is also inducted into the Sport Australia and Basketball Australia Halls of Fame. Since re...

Matt Stickland has been LIVING with MND for 9.5 years. He is a husband and dad, he has had to stop working, but is lucky to live on a rural property. Matt has a beautiful attitude to life, is an amazing support to others with MND and is a demon at fundraising too. I loved chatting to Matt.      

Finn Cadman is 10 years old. He is an MND champion, he is MND Vic's youngest ambassador. Finn is unhappy about the discrepancy between NDIS and Aged Care. Finn is "schmoozing" Politicians to make a change for his Glampa and others.    

Julie Labra is a Project Manager with MNDA. Julie has worked with people with MND for the past 19 years. Julie was the project manager on the new Lived Experience Network (LEN) which brings together people with Lived Experience and people who wish to research different aspect of MND. Working on projects with people who have Lived Experience is teaching her more about what it's like to live with MN...

I was delighted to be included in the Firies for MND climb in the blue mountains and invited to be on the Dirt Church Radio podcast with Matt Pridham, Prof Dom Rowe and Gavin Clifton. Dirt Church radio have kindly allowed me to share their podcast with you all. Prof. Dominic Rowe shares very interesting information about the possible link between the environment with MND.

Dr Rachel Yerbury (Phd) is a registered psychologist as well as a lecturer and researcher in the School of Psychology and Public Health, La Trobe University Australia. Her research area focusses on the connection between humans with Nature / animate worlds and how this impacts mutual well-being. In particular. Rachel is also an author, a mother and the widow of Dr Justin Yerbury. Sunday 28th of Ju...

Kathie Barker Many of us don't know that once we've been diagnosed with a terminal illness we have access to our Superannuation. Kathie is the CEO of "Release My Super" and she tells us how you can access your Superannuation  You also may be eligible to make a TPD super claim for compensation if you've suffered an injury or illness that permanently prevents you from working in your normal job or a...

Our guest this week is Michael Thurn the CEO and Managing Director of PharmAust, a clinical-stage biotechnology company. He tells us about Monepantel which is a well-known veterinary drug. It has been shown to have an effect on the abnormal accumulation of protein in cells. This accumulation is associated with motor neurone disease. Monepantel works by increasing the recycling and removal of exces...

Jason and Anthea Smith are MND Warriors. Jason was diagonsed in 2017 at the age of 39. Together they are battling this disease and raising awareness at the highest levels. They ROCK.

The episode of Let's Talk MND is about the best practice of research collaboration between Dr Marnie Graco and people with MND which is crucial for advancing understanding and care. This approach not only improves the relevance of research programs but also fosters a sense of empowerment and involvement among those directly affected by MND. It's a powerful way to inspire others and drive meaningfu...

Maxine Gee was diagnosed in August of 2023 with Bulbar Onset MND which means she is unable to talk. Maxine is living her life with MND to the MAX Here she and one of her tribe Snez tell us her story  

Pat Cunningham Pat is one of the 3 Amegos' of Neale Daniher, Dr Ian Davis and himself who started Fight MND.   Pat's wife Ange had MND and lost her battle with the beast in 2016, leaving behind Pat & their two small daughters Pat has spearheaded the project management of the Fight MNDs largest public fundraiser – Big Freeze at the G, and also leads the FightMND Care Committee in overseeing the...

Matt Nable is famous, he is an Australian film and television actor, writer, director and acclaimed author. He works non stop in Australia and overseas alongside the likes of Robert DiNero and Clive Owens and Vindisel. In his latest film Infusion, on Stan, he wrote directed and starred with Sam Worthington. He is former professional rugby league player. sports commentator he is also known as the v...

Phil Smith was diagnosed with MND over 6 years ago. Phil has the most wonderful outlook on life and he is living it to the fullest - including playing golf.......how does he do this?

Clare Sullivan is the CEO of Motor Neurone Disease Australia. Clare asked if she could interview me - thats a twist!. I said yes, and this is my story with MND  

Dr Bec Sheean is the Director, Cure Research and Programs at Fight MND Bec has been with Fight MND for 8 years Bec discusses her career, he beloved dog Ruth and the amazing impact Fight MND has on the life of people with MND. Bec is an especially gorgeous human.  

David Neitz or Neita , was the longest-serving captain in the history of the   Melbourne Football Club and the first Melbourne player to achieve the 300-game milestone.  Which basically means in Melbourne he is a hero. However, David is a co-founder of Brewmanity which is more than just a brewery; it's a Melbourne beer brand committed to doing good. Since its inception in 2015, Brewmanity has been...