Inflammatory Breast Cancer WTF?!

Zoe's back in the breast surgeon’s waiting room with radiotherapy side effects. Laura has a new book for CBC, the Cancer Book Club. October was Breast Cancer Awareness Month, so they muse over cancer language and social media. Follow on Instagram @inflammatorybreastcancer_WTF . Resources (not recommendations) The Use of Photography by Annie Ernaux and Marc Marie review – snapshots of intimacy Brea...

Zoe’s feeling ambivalent about the end of trimodal treatment, and deals with radiotherapy, Phesgo and Zoladex side effects. We talk about Inflammatory Breast Cancer as a hidden disease, the meaning of breasts (!) and prurient/useful cancer books. Follow on Instagram @inflammatorybreastcancer_WTF . Resources (not recommendations) The Body: A Guide for Occupants What Can I Do to Help? Call the Midwi...

Zoe is in the tri of the trimodal Inflammatory Breast Cancer treatment, radiotherapy. What happens? What's the dose? How does it all work? What are the side effects? We lobby a politician, get some stats from the oncologist and share cancer book recommendations. Follow on Instagram @inflammatorybreastcancer_WTF . Resources (not recommendations) Macmillan Cancer Research UK NHS On Topic Off Script...

As Zoe recovers from surgery, she and Laura use the extra headspace to advocate for more attention to be paid to IBC at policy level with Laura’s MP Steff Aquarone. It’s time for a tonic, so Zoe’s off to the seaside. It almost feels…normal? Follow on Instagram @inflammatorybreastcancer_WTF. Resources (not recommendations) Goodburn pleads for more funding for rare cancer research Rare Cancers Act 2...

The lull between surgery and radiotherapy gives space for roving thoughts. Zoe is de-institutionalising, Laura is watching doomy thrillers, and we're feeling a bit more human. Follow on Instagram @inflammatorybreastcancer_WTF. Resources (not recommendations) The Silent Signs Of Breast Cancer

We're back, after a hectic month finishing chemo, prepping for surgery, having surgery, recovering from surgery. It’s mostly about surgery! Follow on Instagram @inflammatorybreastcancer_WTF. Resources (not recommendations) LYMPHA DIEP Flap Reconstruction: Everything you need to know Breast Advocate Breast reconstruction using tissue from your tummy Breast reconstruction

Zoe is preparing for surgery. And having spent too much time in hospitals, she and Laura are obsessing about spaces and weaponised words. What are the odds of getting Inflammatory Breast Cancer? Thanks to magical thinking, Zoe has raised her chance of a big lottery win. Follow on Instagram @inflammatorybreastcancer_WTF Resources Dame Phyllida Barlow DBE RA The Essential Leonard Cohen

Zoe and Laura update the story so far, ramble about AC chemo, reconstructive surgery, and why rowing and the Thames mean so much to Zoe. Oh and why Laura probably won’t write a book called ‘All about me’. Follow on Instagram @inflammatorybreastcancer_WTF . Resources Breast Cancer Predict Tool American Cancer Society Dana Farber Breast Cancer Now Macmillan Cancer Support IBC Network UK The IBC Netw...

Goodbye Paclitaxol and hello AC. Check those side effects! Zoe and Laura are figuring out how a mother helps her adult daughter, and Zoe is challenged by the weird world of breast reconstruction.

Zoe's taste buds have taken a hike, Laura got an MBE, all the 'parents' are happy with how treatment is going, and we dig into Inflammatory Breast Cancer getting lost in the wider breast cancer conversation. Follow on Instagram @inflammatorybreastcancer_WTF Links: Macmillan - Heart Health and Cancer Treatment British Heart Foundation - Chemotherapy and the Heart Macmillan - Peripheral neuropathy N...

It's not about the wine...more's the pity! Zoe and Laura dive into portacath world, and blether about being pissed off with your body when you get Inflammatory Breast Cancer. Resources Cancer Research UK https://www.cancerresearchuk.org/about-cancer/treatment/chemotherapy/how-you-have/into-your-vein/portacath Macmillan https://www.macmillan.org.uk/cancer-information-and-support/treatment/types-of-...

Zoe and Laura have a less personal conversation on the different fertility preservation options when you have Inflammatory Breast Cancer. Make sure you stay till the bitter end! Follow on Instagram @InflammatoryBreastCancer_WTF Links: Cancer and fertility management: FIGO best practice advice https://obgyn.onlinelibrary.wiley.com/doi/epdf/10.1002/ijgo.70426 Macmillan https://www.macmillan.org.uk/c...

It's St Brigid's Day and Zoe's starting chemo for Inflammatory Breast Cancer. We talk about the first session, NHS and private health care, and leave fertility for another day. Follow on Instagram @InflammatoryBreastCancer_WTF

Blindsided by a diagnosis of Inflammatory Breast Cancer at 36, Zoe and her mother Laura give a patient's perspective on symptoms, treatment and battling to keep things normal. Follow on Instagram @InflammatoryBreastCancer_WTF