Katie Canning

Double Rare: A Mother's Path With Two Rare Diseases

Kids EN ↓ Odcinki: 11

Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired b...

Koniecznie odwiedź stronę podcastu i wesprzyj twórcę: shows.acast.com

Autor

Katie Canning

Kategoria

Kids

Strona podcastu

shows.acast.com

Ostatni odcinek

30 cze 2025

Gdzie słuchać?

Podcasty w aplikacji Replaio Radio Już wkrótce

Podcasty trafią do aplikacji już wkrótce. Zainstaluj teraz i jako pierwszy zobacz nowe podejście do podcastów

Zainstaluj za darmo Android prawie 10 mln pobrań · ocena 4,8 iOS niedługo

Odcinki

Its been a year lets update 30.06.2025 30:22

I am live with my fb and I am doing updates from surgeries to new therapy and we got to go to Boston Hosted on Acast. See acast.com/privacy for more information.

All the bad things rolled in one episode for my 10th episode! 28.08.2024 18:42

So yea what's good without the bad? Hosted on Acast. See acast.com/privacy for more information.

We get to go to Disney?? what?? 27.08.2024 15:45

Talking about good things happening obviously :) I mean....vacation for a medical family? enjoy our info and our podcast? leave a review please! Hosted on Acast. See acast.com/privacy for more information.

We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF 30.06.2024 28:42

On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist. Hosted on Acast. See acast.com/privacy for more information.

DC Leukodystrophy Research Trip Update(UBTF) 27.06.2024 29:30

During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on medical appointments and research, we took the opportunity to visit family members, including his grandparents (nono and yaya) and aunt. We also enjoyed attending a lively Greek festival together, immer...

Sick Policies and what's coming up 03.06.2024 39:53

In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up Hosted on Acast. See acast.com/privacy for more information.

A Little Life Update 26.05.2024 28:17

In this episode we will give a little life update. Stay tuned for some news! Hosted on Acast. See acast.com/privacy for more information.

Mental health along with diagnosis 17.05.2024 33:35

On todays episode we dive into the mental health aspect behind a diagnosis Hosted on Acast. See acast.com/privacy for more information.

Genetic Testing 13.05.2024 27:07

On this episode we will talk about how we came to find out about Carters two ultra rare diseases and what they are. Hosted on Acast. See acast.com/privacy for more information.

Unexpected 6 month checkup 13.05.2024 29:19

On this episode we dive into what happened to start us on this medical journey. Triggers : medical procedures, CPS, Emotions, Blood Hosted on Acast. See acast.com/privacy for more information.

Introduction 12.05.2024 24:38

Welcome to Double Rare, where we delve into the extraordinary journey of a family facing the unimaginable. I'm Katie, and in this inaugural episode, we'll embark on a deeply personal exploration of resilience, hope, and the bonds that unite us in the face of adversity. Join me as I share the remarkable story of my son's battle with not one, but two ultra-rare diseases, intertwined with my own jour...