hypoparaunscripted

HypoPara Unscripted

Science EN ↓ 5 epizód

HypoPara Unscripted brings together experts and patients for meaningful, honest, candid conversations about living with hypoparathroidism, a rare condition of the hypoparathyroid glands (4 tiny endocrine glands in the neck) which which make a hormone that regulates calcuim and phosphorus levels in the blood. From treatments and advances to real life challenges and resilience, the goal of this podcast is simple: to educate, empower and connect the hypopara community.  Hosted by Patty Keating, patient advocate and director of the Hypoparathyroidism Association, this podcast will bring a better u...

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Szerző

hypoparaunscripted

Kategória

Science

A podcast weboldala

hypoparaunscripted.podbean.com

Legutóbbi epizód

2026. jún. 30.

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Epizódok

More Than a Pharmacy; The Team Behind Your Treatment 30.06.2026

What makes specialty pharmacy so special? In this episode of HypoPara Unscripted, Patty speaks with Katie Gillick, patient advocate at Orsini Specialty Pharmacy living with HypoPara, and pharmacist Michelle Hamblin to show us how they get the only FDA approved HypoPara treatment in the hands of patients.  Together, Katie and Michelle tell us how specialty pharmacies are different from retail drug...

Name It, Claim It, Tame It: Heather Novak’s HypoPara Journey 31.05.2026

In honor of World Hypopara Day, Patty sits down with patient advocate and award-winning author Heather Novak for an inspiring conversation about finding purpose while living with the challenges of a rare disease. Heather shares her remarkable journey as a teenager with unexplained broken bones to a diagnosis of hyperparathyroidism, until after she had surgery, when she woke up with hypoparathyroid...

One Diagnosis, Three Lives, One Powerful Pivot 30.04.2026

In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever.  If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not. From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bo...

More Than What the Labs Show - a Conversation with Hypopara Expert Dr. Rubin 26.03.2026

In this second episode of HypoPara Unscripted, Patty talks with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she encour...

Hope, Hormones and Hypopara: A Candid Conversation With Dr. Michael Mannstadt 26.02.2026

In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect...

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