Rare Remix Team
The Rare Remix
The Rare Remix is a podcast for families navigating rare disease, disability, caregiving, accessibility, developmental differences, and life after a diagnosis changes the rhythm of everything. Hosted by Bryan and Lindsey, The Rare Remix features real conversations with parents, caregivers, advocates, experts, and anyone on a remixed journey. Together, we explore the everyday realities that families quietly learn to navigate, and discuss potential solutions based on first-hand experiences. This may not be the life you imagined. It’s a remix.
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Episodios
Episode 04 - Communication & Education: a Conversation with Susan Norwell and Kourtney Barnum 09.07.2026 52:03
In Episode 4, we sit down with Susan Norwell and Kourtney Barnum from Rett University to explore the transformative world of Augmentative and Alternative Communication (AAC). As internationally recognized specialists in Rett syndrome, communication, and education for individuals with complex needs, Susan and Kourtney share their expertise on a wide range of topics, including AAC, eye gaze technolo...
Episode 03 - Au-Kline Syndrome: a Conversation with Dianne 21.06.2026 34:16
Episode 3 features Dianne, mom to 8-year-old Dru, who lives with Au-Kline syndrome. We discuss the challenges of an ultra-rare diagnosis, navigating life with AAC, and the value of asking for help along the way.
Episode 02 - Rett Syndrome: a Conversation with Karen 21.06.2026 39:56
Episode 2 features Karen, mom to 30-year-old Lynzie, who lives with Rett syndrome. We talk about the unique timing of Lynzie’s diagnosis, the challenges of making tough decisions in adulthood, and the importance of advocacy. Don’t miss this heartfelt conversation.
Welcome to The Rare Remix 19.06.2026 15:41
Bryan and Lindsey introduce The Rare Remix, share the story behind the podcast, and explain why they’re creating a space for real conversations, practical insight, and solutions for families navigating life with a new rhythm.
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