Patients on the Move

In this inspiring episode, host Roger Legtenberg welcomes Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK, who is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care. What to Expect in This Episode: - The daily struggles of living with complex fatigue-related illnesses, the biggest hurdles in car...

In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer. Since 2001, Trish has taught mindfulness, authored several influential books, and is recognized as a leading authority on mindfulness for people with cancer across Europe and beyond. What to Expect in This Episode: - Discover what inspired Trish to dedicate her wor...

In this 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jennifer MacDonald, an Alpha-1 Antitrypsin Deficiency (AATD) patient ambassador from Mexico for Fundacion LovexAir, who is passionate about raising awareness of rare diseases in general and in particular for Alpha-1 AATD in Mexico, the Caribbean, and Latin America. Join this impactful conversation as they...

In this 7th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Pisana Ferrari, a well recognised pulmonary hypertension patient advocate from Italy, who started her advocacy work back in 2001 founding the Italian PH patient association AIPI and founding the European Federation for PH PHA Europe. Join this impactful conversation as they delve into what has been achiev...

In this 6th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Steve Clark, a well recognised stage 4 cancer patient & advocate from the UK who has been living life with the disease for over 10 years so far. Join this impactful conversation as they delve into the importance of positive focus in treatment discussions & the role that patient engagement can play. Hear f...

In this enlightening 5th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jaime Sanders, aka 'The Migraine Diva'. Join this impactful conversation as they delve into medical gaslighting, stigmas in migraine disorders, and potential counter strategies. Hear from Jaime about her personal journey with chronic illness, her unyielding efforts to eradicate healthcare dis...

Together with Bojana Mirosavljevic we discussed how patient advocacy and engagement can help to support patient access.

Our 3rd episode of our Podcast series discusses Patient Involvement in HTA processes.

Our 2nd episode of our Podcast series discusses Patient Community Driven Alliances.