YOPN’s Living Well Starts Here

Welcome to the YOPN Podcast! Today's guest is Jennifer Gillick, Program Manager of APDA Northwest Chapter, in this episode she unveils YOPD-CON 2023: Your Gateway to Thriving with Young Onset Parkinson's Disease! Join us at the Four Points by Sheraton Hotel in Seattle, WA, on October 14th and 15th, 2023, for this APDANW-sponsored event. Discover a wealth of family-friendly activities like hiking a...

Today's episode holds a deeply personal significance for me. You see, I grapple with cognitive issues that make it challenging for me to articulate my thoughts clearly and concisely. It's essential to note that these issues aren't indicative of dementia or any similar condition. In fact, my thoughts remain as lucid as ever. However, after battling this disease for 17 years, I've encountered variou...

The YOPN Podcast is proud to present award winning photographer Safi Alia Shabaik. Check out her project Personality Crash: "Personality Crash" is a touching project documenting the author's father's journey through Parkinson's Disease, dementia, and Sundowners Syndrome. Initiated in 2013 to bring them closer before the illnesses took their toll, it uses powerful photographs to illustrate the chal...

The YOPN Podcast is excited to feature Matthew Moore, an actor, director, writer, and teacher who was diagnosed with Young Onset Parkinson's in 2019. Moore turned his diagnosis into an opportunity to raise awareness by writing the play 'What I Didn't Say - A Journey Through Parkinson's.' The play offers a front-row seat to the roller-coaster life of a Parkinson’s patient and their care partner. It...

Get ready to embark on a captivating journey with the Young Onset Parkinson's Network in our podcast series, “5 Years Later” Join us as we reconnect with guests we spoke to over five years ago, who bravely share their experiences and provide valuable insights into the nuanced transformations they've encountered since then. Prepare to be enlightened as we delve into their extraordinary achievements...

Get ready to embark on a captivating journey with the Young Onset Parkinson's Network in our podcast series, “5 Years Later” Join us as we reconnect with guests we spoke to over five years ago, who bravely share their experiences and provide valuable insights into the nuanced transformations they've encountered since then. Prepare to be enlightened as we delve into their extraordinary achievements...

Welcome to the YOPN Podcast, where we are thrilled to bring you a special guest, Dr. Merlin Tuttle. Known as "Batman," Dr. Tuttle has dedicated over six decades to the study of bats. As seen on the Joe Rogan Experience and David Letterman, he joins us today to share his insights. Despite his diagnosis of Parkinson's, Dr. Tuttle continues to contribute valuable knowledge to the field. During our co...

The Young Onset Parkinson's Network (YOPN) Podcast is thrilled to present Lucy Jung, the CEO of Charco Neurotech ( https://charconeurotech.com/ ) Charco Neurotech is a medical technology company focused on improving the quality of life for individuals with Parkinson's disease. Their mission is to bring back smiles to those affected by the condition. Inspired by Professor Charcot's research on vibr...

The YOPN Podcast is proud to present Mark Hasagawa-Johnson and Clarion Mendes as we discuss the Speech Accessibility Project The Speech Accessibility Project aims to collect diverse speech samples to improve the representation of speech patterns in machine learning models. UIUC researchers will recruit paid volunteers to contribute recorded voice samples, creating a private dataset. This dataset w...

The Young Onset Parkinson's Network (YOPN) Podcast, poudly presents Scott Rider.   Scott Rider and his long-time friend Jim Morgan, both diagnosed with Parkinson's disease 17 years ago, embarked on a remarkable journey across America. During their travels, they met numerous inspiring individuals with Parkinson's, as well as educators, movement disorder specialists, and others. Keep an eye out for...

The YOPN Podcast proudly presents an interview with patient advocate Ted Meyer!   Ted Meyer, an artist, curator, and patient advocate, uses art to find inspiration in the adversity of the patient experience. In his 2016 TEDMED Talk, he shares how art can help healthcare providers gain a deeper understanding of their patients' pain, loneliness, and frustration. Through his powerful creations, Ted c...

Passion, Purpose, and Parkinson's: Overcoming Challenges in the Creative World   Discover the inspiring short documentary "Passion, Purpose, and Parkinson's," crafted by the talented 23-year-old director, Olz McCoy. Created in honor of World Parkinson's Month, this remarkable film shares the incredible stories of three individuals—an accomplished painter, a skilled photographer, and a talented mus...

This week on the Young Onset Parkinson’s Network podcast (YOPN PODCAST) Meet Ian O'Brien, a determined 43-year-old father who refuses to let Parkinson's Disease hinder his enjoyment of life. Ian is an unwavering advocate of pushing his limits and embracing challenges. His latest endeavor? Conquering the highest peaks in all 28 countries of the EU27 and the UK within a span of just 28 days. It's Ju...

Today's YOPN podcast episode features Antonia Kotsiros, who has worked in the music industry and operated businesses in the coffee and holiday accommodation industries. Antonia's life took a dramatic turn when she was diagnosed with Parkinson's disease, leading to the end of her relationship, selling of her businesses, and a significant decline in her health. Antonia's focus on healing her body an...

The YOPN Podcast features Albert Latullippe, who shares his inspiring journey of how a chance encounter with Greg Geheb at his gym, with an expired groupon, led him to start the first Rock Steady Boxing Program in New England. Al went on to build the program from the ground up, expanding to multiple locations, and is now celebrating a 10-year milestone. Tune in to the YOPN Podcast to hear Al's sto...

Jon Pawelkop, an Ambassador for the World Parkinson’s Congress 2023, was recently featured on the YOPN podcast. He promotes Rock Steady Boxing (RSB) and encourages others to "Make It Mean Something" (MIMS). In May 2018, Jon started a personal challenge called "Boxing Grand Tour Fighting Parkinson’s," which involved visiting an RSB affiliate class in every state and working out with the fighters th...

The YOPN Podcast ( https://yopnetwork.org/ ) proudly presents Terri Pease Ph. D. Dr. Pease released a book entitled Love, Dignity and Parkinson's: from Care Partner to Caregiver ( https://www.amazon.com/Love-Dignity-Parkinsons-Partner-Caregiver/dp/B0BK311HKF ) If your spouse or loved one has been diagnosed with Parkinson's Disease, you may be feeling overwhelmed and unsure of how to best care for...

Welcome to this week's episode of YOPN podcast! Today, we have the privilege of sharing the inspiring story of Miguel Sanchez, a skilled professional who worked as a lead on lighting sets for a plethora of movies and television shows, including popular hits like "Brothers and Sisters" and "Parks and Recreation." However, Miguel's life took an unexpected turn when he was diagnosed with Parkinson's...

Get ready for an inspiring episode of the Young Onset Parkinson's Network podcast! Today, we're thrilled to introduce you to Mel Dizon, a content creator and Parkinson's disease advocate who's changing lives through education. From driving the Davis Phinney Foundation's mission to help people live well today, to organizing workshops and webinars, Mel is a force to be reckoned with. But she's not j...

This weeks "Living Well Starts Here" podcast features A.C. Woolnough, a retired school principal diagnosed with Parkinson's Disease in 2015. A.C. has become an active writer, speaker, and advocate within the Parkinson's community, participating in research projects and presenting at conferences and support groups. He has authored two books titled "ON FIRE" and "STILL ON FIRE: Reflections on a Jour...

Dr. Jennifer Johnston has spent 20 years studying neurodegenerative disease, including the discovery of aggresomes and their link to neurodegeneration. She is now the Co-Founder/CEO of NysnoBio, a biotech company focused on modulating the parkin enzyme pathway for unmet medical needs in neurology and oncology. Learn more about her groundbreaking work in neurodegeneration research! #neuroscience #r...

Please note the information on this episode is in process of being fact checked. Welcome to the YOPN podcast! In today's episode, we'll be discussing Tim Brandt's frustrating experience with long-term disability insurance. Many of us rely on insurance to protect us in the event of unforeseen circumstances, but what happens when the system fails us? Our guest today will be sharing his personal stor...

A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the disease for the last 16 years. The students have been working on various activities to raise awareness, such as selling donuts and making bracelets, and wil...

Hey everyone! 📢🎉 The YOPN Podcast is thrilled to introduce our next guest, Melissa Marie Livingston - you may know her as missmliv on Instagram and undeniablyhoneybee on TikTok! At just 13, Melissa lost her mother and had to overcome so much as the "Red headed step child". Her incredible story includes beating a tough marriage, being diagnosed with YOPD, and even hitting one million views on her...

Welcome to this week's episode of the "YOPN Podcast" where we explore the incredible power of human connection and the extraordinary things that can happen when people come together.   Today, we bring you the inspiring story of Michel Planquart and Mark Limbear. These two men met through a shared experience of living with Parkinson's disease, and their friendship sparked an idea that would change...