YOPN
YOPN’s Living Well Starts Here
Real, in-depth conversations about living with Young Onset Parkinson’s Disease (YOPD). Join cohosts Esther, Mel, and Chris as they talk with care partners, healthcare experts, and treatment developers to better understand this neurodegenerative disease and those living with it. Brought to you by the Young Onset Parkinson’s Network of PMD Alliance
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Episodes
Perspective of a carepartner - George Ackerman 01.12.2023 1:01:08
The YOPN Podcast is thrilled to welcome George Ackerman to our community. George a PhD, is a dedicated advocate for the Parkinson's Disease (PD) community. Following the passing of his mother, Sharon Riff Ackerman, on January 1, 2020, due to complications from Parkinson's Disease, George has tirelessly worked to advocate and educate everyone about PD. In honor of his mother's memory, George initia...
Rhythms of Resilience: Navigating Life’s Challenges with Carl Beech 28.11.2023 1:01:41
The Young Onset Parkinson's Network is delighted to introduce Carl Beech, a prominent figure on TikTok and the Chief Executive Officer of Spotlight YOPD, a non-profit organization in the UK. In addition to his role as CEO at Edge Ministries, Carl wears many hats – he's an author, keynote speaker, leadership consultant, and broadcaster. Importantly, he is a passionate advocate for raising awareness...
Unveiling Resilience: Journeys Beyond Challenges 13.11.2023 46:33
The Young Onset Parkinson's Network is privileged to present a touching interview with Gavin Mogan. Imagine the shift from being the one in need of care to becoming the caregiver, all the while maintaining a unwavering focus on the positive aspects of life. Just a couple of months ago, Gavin faced the heart-wrenching loss of his wife, Amy, after a year-long battle with brain cancer. Keep your tiss...
Unlocking Minds: Conversations That Inspire with Anna Grill 02.11.2023 44:48
Anna Grill is the driving force behind the Young Onset Parkinson’s Network (YOPN). She was diagnosed with Young Onset Parkinson’s Disease (YOPD) at 38 while excelling in her career and juggling family life. After keeping her condition a secret for a decade, Anna publicly disclosed her diagnosis and noticed a lack of YOPD resources. This inspired her to create a community and provide support for th...
Unstoppable Stories: Susan Scarlett and BJ Bement on Life, Love, and Triumph Over Parkinson’s 24.10.2023 54:27
This episode contains candid discussions about suicide and may not be suitable for younger audiences. The YOPN Podcast proudly features captivating interviews with two remarkable individuals, Susan Scarlett and BJ Bement. Susan Scarlett's love for life shines through every facet of her existence. She embraces roles as a wife, mother, daughter, sister, student, and friend. In 2015, she learned that...
Esther’s Story Part 2 13.10.2023 48:42
In the second part of the Esther Labib-Kiyarash interview, she delves into the topic of hospital and emergency care for Parkinson's disease patients, drawing from her extensive experience as a Certified Professional of Healthcare Quality, where she has worked in both hospital and ambulatory quality management. Her background involves composing plans of correction and executing transformative chan...
Esther’s Story: Part One of Two 04.10.2023 31:48
Welcome to the YOPN Podcast. Our guest today is Esther Labib-Kiyarash, a Certified Professional of Healthcare Quality with extensive experience in both hospital and ambulatory quality management. Esther's specialties encompass regulatory compliance, all facets of Quality Improvement, Lean methodology, and Continuous Survey Readiness. Additionally, she brings her expertise in Patient Safety and Pa...
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